[go: up one dir, main page]
More Web Proxy on the site http://driver.im/ skip to main content
research-article
Public Access

Embracing Four Tensions in Human-Computer Interaction Research with Marginalized People

Published: 17 April 2021 Publication History

Abstract

Human-computer interaction has a long history of working with marginalized people. We sought to understand how HCI researchers navigate work that engages with marginalized people and considerations researchers might work through to expand benefits and mitigate potential harms. In total, 24 HCI researchers, located primarily in the United States, participated in an interview, survey, or both. Through a reflexive thematic analysis, we identified four tensions—exploitation, membership, disclosure, and allyship. We explore the complexity involved in each, demonstrating that an equitable endpoint may not be possible, but this work is still worth pursuing when researchers make certain considerations. We emphasize that researchers who work with marginalized people should account for each tension in their research approaches to move forward. Finally, we propose an allyship-oriented approach to research that draws inspiration from discourse occurring in tangential fields and activist spaces and pushes the field into a new paradigm of research with marginalized people.

References

[1]
Indigenous Action. 2014. Accomplices Not Allies: Abolishing the Ally Industrial Complex. Retrieved from http://www.indigenousaction.org/accomplices-not-allies-abolishing-the-ally-industrial-complex/.
[2]
A. Aguirre. 2000. Women and Minority Faculty in the Academic Workplace: Recruitment, Retention, and Academic Culture. SHE-ERIC Higher Education Report. ERIC Publications.
[3]
A. A. Ahmed. 2018. Trans competent interaction design: A qualitative study on voice, identity, and technology. Interacting with Computers 30, 1 (2018), 53--71.
[4]
S. Ahmed. 2012. On being included: Racism and diversity in institutional life. Sociological Research Online. Duke University Press Books.
[5]
N. Kumar and S. Bardzell. 2020. An unofficial guide to seven stages of reviewing for CHI. Retrieved from https://nehakumar.medium.com/an-unofficial-guide-to-seven-stages-of-reviewing-for-chi-7938880fc895.
[6]
A. N. Antle. 2017. The ethics of doing research with vulnerable populations. Interactions. 24, 6 (2017), 74--77.
[7]
S. Bardzell and J. Bardzell. 2011. Towards a feminist HCI methodology: Social science, feminism, and HCI. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 675--684.
[8]
G. Bauer, A. Devor, M. Heinz, Z. Marshall, A. Pullen Sansfaçon, and J. Pyne. 2019. CPATH Ethical Guidelines for Research Involving Transgender People & Communities. Retrieved from https://cpath.ca/wp-content/uploads/2019/08/CPATH-Ethical-Guidelines-EN.pdf.
[9]
E. P. S. Baumer and M. S. Silberman. 2011. When the implication is not to design (technology). In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. Paper 25, 1--9.
[10]
R. Benjamin. 2020. Race after technology: Abolitionist tools for the new jim code. Social Forces 98, 4 (2020), 1--3.
[11]
C. L. Bennett, E. Brady, and S. M. Branham. 2018. Interdependence as a frame for assistive technology research and design. In Proceedings of the 20th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS’18). 161--173.
[12]
C. L. Bennett and O. Keyes. 2019. What is the point of fairness? Disability, AI and the complexity of justice. ACM SIGACCESS Accessibility and Computing 125 (2019), Article 5, 1.
[13]
C. L. Bennett and D. K. Rosner. 2019. The promise of empathy: Design, disability, and knowing the “other.” In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper 298, 1--13.
[14]
N. Berenstain. 2016. Epistemic exploitation.Ergo, an Open Access Journal of Philosophy 3, 22 (2016).
[15]
Black in Computing and Our Allies for Equity and Fairness: 2020. Retrieved from https://blackincomputing.org/.
[16]
T. Bratteteig and I. Wagner. 2012. Disentangling power and decision-making in participatory design. In Proceedings of the 12th Participatory Design Conference: Research Papers (PDC’12). 41--50.
[17]
V. Braun and V. Clarke. 2019. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qualitative Research in Sport, Exercise and Health 13, 2 (2019), 201--216.
[18]
V. Braun and V. Clarke. 2006. Using thematic analysis in psychology. Qualitative Research in Psychology 3, 2 (2006), 77--101.
[19]
P. H. Collins. 2002. Black Feminist Thought: Knowledge, Consciousness, and the Politics Of Empowerment. Routledge.
[20]
R. N. Brewer. 2017. Understanding and Developing Interactive Voice Response Systems to Support Online Engagement of Older Adults. Ph.D. Dissertation. Northwestern University, Evanston, IL. Proquest Number: 10603427.
[21]
E. M. Broido. 2000. The development of social justice allies during college: A phenomenological investigation. Journal of College Student Development 41, 1 (2000), 3--18. Retrieved from https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.470.1439&rep=rep1&type=pdf.
[22]
A. K. Brooks and K. Edwards. 2009. Allies in the workplace: Including LGBT in HRD. Advances in Developing Human Resources 11, 1 (2009), 136--149.
[23]
E. Brulé and K. Spiel. 2019. Negotiating gender and disability identities in participatory design. In Proceedings of the 9th International Conference on Communities & Technologies—Transforming Communities. 218--227.
[24]
C. Cahill. 2007. Including excluded perspectives in participatory action research. Design Studies 28, 3 (2007), 325--340.
[25]
K. Caldwell. 2010. We exist: Intersectional in/visibility in bisexuality & disability. Disability Studies Quarterly 30, 3/4 (2010).
[26]
H. Castleden, T. Garvin, and H. First Nation. 2008. Modifying photovoice for community-based participatory indigenous research. Social Science and Medicine 66, 6 (2008), 1393--1405.
[27]
R. Charlotte Smith, H. Winschiers-Theophilus, A. Paula Kambunga, and S. Krishnamurthy. 2020. Decolonizing participatory design: Memory making in Namibia. In Proceedings of the 16th Participatory Design Conference 2020. 96--106.
[28]
P. A. L. Cochran, C. A. Marshall, C. Garcia-Downing, E. Kendall, D. Cook, L. McCubbin, and R. M. S. Gover. 2008. Indigenous ways of knowing: Implications for participatory research and community. American Journal of Public Health 98, 1 (2008), 22--27.
[29]
Combahee River Collective. 1977. Combahee River Collective: A Black Feminist Statement. Let Nobody Turn Us Around: Voices of Resistance, Reform and Renewal; An African American Anthology. Retrieved from https://www.blackpast.org/african-american-history/combahee-river-collective-statement-1977/.
[30]
R. Cornejo, R. Brewer, C. Edasis, and A. M. Piper. 2016. Vulnerability, sharing, and privacy: Analyzing art therapy for older adults with dementia. In Proceedings of the ACM Conference on Computer Supported Cooperative Work (CSCW’16). 1572--1583.
[31]
S. Costanza-Chock. 2018. Design justice: Towards an intersectional feminist framework for design theory and practice. In Proceedings of the Design Research Society 2018.
[32]
S. Costanza-Chock. 2020. Introduction: #Travelingwhiletrans, Design Justice, and Escape from the Matrix of Domination. MIT Press.
[33]
Crenshaw Kimberle. 1989. Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum 1989 (1989), Article 8, 139--163. http://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8.
[34]
K. Crenshaw. 1991. Mapping the margins: Intersectionality, identity politics, and violence against women of color. Stanford Law Review 43, 6 (1991), 1241--1299.
[35]
A. Gaeta. 2019. Cripping Emotional Labor: A Field Guide. Retrieved from https://disabilityvisibilityproject.com/2019/06/03/cripping-emotional-labor-a-field-guide/.
[36]
C. D'Ignazio, A. Hope, B. Michelson, R. Churchill, and E. Zuckerman. 2016. A feminist HCI approach to designing postpartum technologies: “When I first saw a breast pump I was wondering if it was a joke.” In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 2612--2622.
[37]
C. D'Ignazio and L. F. Klein. 2020. Data Feminism. MIT Press.
[38]
S. Daley, D. L. Wingard, and V. Reznik. 2006. Improving the retention of underrepresented minority faculty in academic medicine. Journal of the National Medical Association 98, 9 (2006), 1435--1440.
[39]
C. A. Le Dantec and W. K. Edwards. 2008. Designs on dignity: Perceptions of technology among the homeless. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 627--636.
[40]
C. A. Le Dantec, R. G. Farrell, J. E. Christensen, M. Bailey, J. B. Ellis, W. A. Kellogg, and W. K. Edwards. 2011. Publics in practice: Ubiquitous computing at a shelter for homeless mothers. In Proceedings of the 2011 SIGCHI Conference on Human Factors in Computing Systems. 1687--1696.
[41]
C. W. Daum. 2020. Social equity, homonormativity, and equality: An intersectional critique of the administration of marriage equality and opportunities for LGBTQ social justice. Administrative Theory and Praxis 42, 2 (2020), 115--132.
[42]
N. Dell and N. Kumar. 2016. The ins and outs of HCI for development. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 2220--2232.
[43]
Design Justice Network. 2018. Design Justice Network Principles. Retrieved from https://designjustice.org/read-the-principles.
[44]
I. Dey. 1999. Grounding Grounded Theory: Guidelines for Qualitative Inquiry. Emerald Publishing Limited.
[45]
T. Dillahunt, J. Mankoff, and E. Paulos. 2010. Understanding conflict between landlords and tenants: Implications for energy sensing and feedback. In Proceedings of the 2010 ACM Conference on Ubiquitous Computing (UbiComp’10). 149--158.
[46]
T. R. Dillahunt and T. C. Veinot. 2018. Getting there: Barriers and facilitators to transportation access in underserved communities. ACM Transactions on Computer-Human Interaction 25, 5 (2018), Article 29.
[47]
K. P. Morgan. 1996. Describing the emperor's new clothes: Three myths of educational (In-)equity. In The Gender Question in Education. A. Diller, B. Houston, K. P. Morgan, M. Ayim, and K. P. Morgan (Eds.), Routledge.
[48]
J. P. Dimond, M. Dye, D. Larose, and A. S. Bruckman. 2013. Hollaback!: The role of collective storytelling online in a social movement organization. In Proceedi ngs of the ACM Conference on Computer Supported Cooperative Work (CSCW’13). 477--490.
[49]
L. Dombrowski, E. Harmon, and S. Fox. 2016. Social justice-oriented interaction design: Outlining key design strategies and commitments. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse (DIS’16). 656--671.
[50]
L. Duggan. 2002. The new homonormativity: The sexual politics of neoliberalism. In Materializing Democracy Toward a Revitalized Cultural Politics. R. Castronovo and D. Nelson (Eds.), Duke University Press.
[51]
M. Dye, D. Nemer, L. R. Pina, N. Sambasivan, A. S. Bruckman, and N. Kumar. 2017. Locating the internet in the parks of Havana. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 3867--3878.
[52]
L. Palen. 2014. Empirical Epistemologies Applied to Human-Centered Computing Research: 2014. Retrieved from https://cmci.colorado.edu/~palen/EmpiricalEpistemologiesforHCC-7.pdf.
[53]
K. V. L. England. 1994. Getting personal: Reflexivity, positionality, and feminist research. Professional Geographer 46, 1 (1994), 80--89.
[54]
D. A. Epstein, N. B. Lee, J. H. Kang, E. Agapie, J. Schroeder, L. R. Pina, J. Fogarty, J. A. Kientz, and S. A. Munson. 2017. Examining menstrual tracking to inform the design of personal informatics tools. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 6876--6888.
[55]
S. Erete, A. Israni, and T. Dillahunt. 2018. An intersectional approach to designing in the margins. Interactions 25, 3 (2018), 66--69.
[56]
S. Erete, Y. A. Rankin, and J. O. Thomas. 2020. I can't breathe: Reflections from black women in CSCW and HCI. Proceedings of the ACM on Human-Computer Interaction 4, CSCW3 (2020), Article 234, 23 pages.
[57]
S. L. Erete. 2015. Engaging around neighborhood issues: How online communication affects offline behavior. In Proceedings of the 2015 ACM International Conference on Computer-Supported Cooperative Work and Social Computing (CSCW’15). 1590--1601.
[58]
N. J. Evans, J. L. Assadi, and T. K. Herriott. 2005. Encouraging the development of disability allies. New Directions for Student Services 2005, 110 (2005), 67--79.
[59]
N. J. Evans and V. A. Wall. 1991. Beyond Tolerance: Gays, Lesbians and Bisexuals on Campus. UPA.
[60]
M. Cifor, P. Garcia, T. L. Cowan, J. Rault, T. Sutherland, A. Chan, J. Rode, A. L. Hoffmann, N. Salehi, and L. Nakamura. 2019. Feminist Data Manifest-No. Retrieved from https://www.manifestno.com/.
[61]
C. Fiesler, S. Morrison, and A. S. Bruckman. 2016. An archive of their own: A case study of feminist HCI and values in design. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 2574--2585.
[62]
M. Fine. 1994. Working the hyphens: Reinventing self and other in qualitative research. In Handbook of Qualitative Research. SAGE. Retrieved from http://www.uky.edu/~addesa01/documents/Fine_Hyphens.pdf
[63]
M. Franks. 2002. Feminisms and cross-ideological feminist social research: Standpoint, situatedness and positionality—Developing cross-ideological feminist research. Journal of International Women's Studies 3, 2 (2002), 38--50. Retrieved from http://vc.bridgew.edu/jiws/vol3/iss2/3.
[64]
M. Fricker. 2007. Epistemic Injustice: Power and the Ethics of Knowing. Oxford University Press.
[65]
P. I. Fusch and L. R. Ness. 2015. Are we there yet? Data saturation in qualitative research. Qualitative Report 20, 9 (2015), 1408--1416. Retrieved from https://nsuworks.nova.edu/tqr/vol20/iss9/3.
[66]
M. Gallagher. 2008. “Power is not an evil”: Rethinking power in participatory methods. Children's Geographies 6, 2 (2008), 137--150.
[67]
S. Ghoshal and A. Bruckman. 2019. The role of social computing technologies in grassroots movement building. ACM Transactions on Computer-Human Interaction 26, 3 (2019), Article 18, 36 pages.
[68]
T. Gillespie. 2018. Custodians of the Internet: Platforms, Content Moderation, and the Hidden Decisions that Shape Social Media. Yale University Press.
[69]
S. D. Grady, P. J. Wisniewski, R. Metoyer, P. Gibbs, K. Badillo-Urquiola, S. Elsayed-Ali, and E. Yafi. 2020. Addressing institutional racism within initiatives for SIGCHI's diversity and inclusion. Interactions. Retrieved from https://interactions.acm.org/blog/view/addressing-institutional-racism-within-initiatives-for-sigchis-diversity-an.
[70]
S. D. Grieb, M. M. Eder, K. C. Smith, K. Calhoun, and D. Tandon. 2015. Qualitative research and community-based participatory research: Considerations for effective dissemination in the peer-reviewed literature. Progress in Community Health Partnerships: Research, Education, and Action 9, 2 (2015), 275--282.
[71]
A. Grimes and R. E. Grinter. 2007. Designing persuasion: Health technology for low-income African American communities. In Persuasive Technology (PERSUASIVE’07). Y. de Kort, W. IJsselsteijn, C. Midden, B. Eggen, B. J. Fogg (Eds.), Lecture Notes in Computer Science, Vol. 4744. Springer, Berlin. https://doi.org/10.1007/978-3-540-77006-0_4
[72]
Oliver L. Haimson, Dykee Gorrell, Denny L. Starks, and Z. Weinger. 2020. Designing trans technology: Defining challenges and envisioning community-centered solutions. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI’20). 1--13.
[73]
D. M. Halperin. 2012. How To Be Gay. Belknap Press.
[74]
A. M. Hancock. 2007. When multiplication doesn't equal quick addition: Examining intersectionality as a research paradigm. Perspectives on Politics 5, 1 (2007), 63--79.
[75]
D. Hankerson, A. R. Marshall, J. Booker, H. El Mimouni, I. Walker, and J. A. Rode. 2016. Does technology have race? In Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems. 473--486.
[76]
D. J. Haraway. 2016. Staying with the Trouble. Duke University Press.
[77]
S. Harding. 1992. Rethinking standpoint epistemology: What is “strong objectivity?” The Centennial Review 36, 3 (1992), 437--470. Retrieved December 23, 2020 from http://www.jstor.org/stable/23739232
[78]
S. G. Harding. 2004. The feminist standpoint theory reader. In The Feminist Standpoint Theory Reader: Intellectual and Political Controversies. Routledge.
[79]
S. Hardouin, T. W. Cheng, E. L. Mitchell, S. J. Raulli, D. W. Jones, J. J. Siracuse, and A. Farber. 2020. Prevalence of unprofessional social media content among young vascular surgeons. Journal of Vascular Surgery 72, 2 (2020), 667--671.
[80]
C. N. Harrington, K. Borgos-Rodriguez, and A. M. Piper. 2019. Engaging low-income African American older adults in health discussions through community-based design workshops. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper 593, 1--15.
[81]
C. N. Harrington, S. Erete, and A. M. Piper. 2019. Deconstructing community-based collaborative design: Towards more equitable participatory design engagements. Proceedings of the ACM on Human-Computer Interaction 3, CSCW, Article 216 (2019), 25 pages.
[82]
C. N. Harrington and A. M. Piper. 2018. Informing design through sociocultural values: Co-creation with low-income African-American older adults. In Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth’18). 294--298.
[83]
P. Harris. 1995. Who am I? Concepts of disability and their implications for people with learning difficulties. Disability & Society 10, 3 (1995), 341--352.
[84]
G. R. Hayes. 2011. The relationship of action research to human-computer interaction. ACM Transactions on Computer-Human Interaction 18, 3 (2011) Article 15, 20 pages.
[85]
M. K. Scheuerman, K. Spiel, O. Haimson, F. Hamidi, and S. M. Branham. 2019. HCI Guidelines for Gender Equity and Inclusivity. Retrieved from https://www.morgan-klaus.com/sigchi-gender-guidelines.
[86]
G. Bauer, A. Devor, M. Heinz, Z. Marshall, A. Pullen Sansfaçon, and J. Pyne. 2019. CPATH Ethical Guidelines for Research Involving Transgender People & Communities. Retrieved from https://cpath.ca/wp-content/uploads/2019/08/CPATH-Ethical-Guidelines-EN.pdf.
[87]
R. Heeks. 2002. Information systems and developing countries: Failure, success, and local improvisations. Information Society 18, 2 (2002), 101--112.
[88]
K. Heimerl, S. Hasan, K. Ali, E. Brewer, and T. Parikh. 2013. Local, sustainable, small-scale cellular networks. In Proceedings of the 6th International Conference on Information and Communication Technologies and Development: Full Papers: Volume 1 (ICTD’13). Association for Computing Machinery, New York, NY, 2--12.
[89]
P. Hill Collins and S. Bilge. 2016. What is intersectionality? Using intersectionality as an analytic tool. Intersectionality 61, 11 (2016), 1036--1039.
[90]
A. L. Hoffmann. 2019. Where fairness fails: data, algorithms, and the limits of antidiscrimination discourse. Information Communication and Society 22, 7 (2019), 900--915.
[91]
P. E. Hopkins. 2009. Women, men, positionalities and emotion: Doing feminist geographies of religion. ACME: An International Journal for Critical Geographies 8, 1 (2009), 1--17. Retrieved from https://acme-journal.org/index.php/acme/article/view/818.
[92]
D. Howard and L. Irani. 2019. Ways of knowing when research subjects care. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. Paper 97, 1--16.
[93]
J. Hui, N. R. Barber, W. Casey, S. Cleage, D. C. Dolley, F. Worthy, K. Toyama, and T. R. Dillahunt. 2020. Community collectives: Low-tech social support for digitally-engaged entrepreneurship. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1--15.
[94]
R. Imrie. 2012. Universalism, universal design and equitable access to the built environment. Disability and Rehabilitation 34, 10 (2012), 873--882.
[95]
R. Dutt-Ballerstadt. 2020. In Our Own Words: Institutional betrayals. Retrieved from https://www.insidehighered.com/advice/2020/03/06/underrepresented-faculty-members-share-real-reasons-they-have-left-various.
[96]
L. Irani, J. Vertesi, P. Dourish, K. Philip, and R. E. Grinter. 2010. Postcolonial computing: A lens on design and development. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 1311--1320.
[97]
B. A. Israel, E. A. Parker, Z. Rowe, A. Salvatore, M. Minkler, J. López, A. Butz, A. Mosley, L. Coates, G. Lambert, P. A. Potito, B. Brenner, M. Rivera, H. Romero, B. Thompson, G. Coronado, and S. Halstead. 2005. Community-based participatory research: Lessons learned from the centers for children's environmental health and disease prevention research. Environmental Health Perspectives 113, 10 (2005), 1463--1471.
[98]
B. A. Israel, C. M. Coombe, R. R. Cheezum, A. J. Schulz, R. J. McGranaghan, R. Lichtenstein, A. G. Reyes, J. Clement, and A. Burris. 2010. Community-based participatory research: A capacity-building approach for policy advocacy aimed at eliminating health disparities. American Journal of Public Health 100, 11 (2010), 2094--2102.
[99]
A. Iyer and C. W. Leach. 2009. Helping disadvantaged out-groups challenge unjust inequality: The role of group-based emotions. In The Psychology of Prosocial Behavior: Group Processes, Intergroup Relations, and Helping. Wiley-Blackwell. https://doi.org/10.1002/9781444307948.ch17
[100]
S. K. Kane, J. P. Bigham, and J. O. Wobbrock. 2008. Slide rule: Making mobile touch screens accessible to blind people using multi-touch interaction techniques. In Proceedings of the 10th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS’08). 73--80.
[101]
O. Keyes. 2018. The misgendering machines: Trans/HCI implications of automatic gender recognition. Proceedings of the ACM on Human-Computer Interaction 2, CSCW (2018), Article 88, 22 pages.
[102]
O. Keyes, J. Hoy, and M. Drouhard. 2019. Human-computer insurrection: Notes on an Anarchist HCI. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper 339, 1--13.
[103]
O. Keyes, B. Peil, R. M. Williams, and K. Spiel. 2020. Reimagining (Women's) health: HCI, gender and essentialised embodiment. ACM Transactions on Computer-Human Interaction 27, 4 (2020) Article 25, 42 pages.
[104]
J. Kluttz, J. Walker, and P. Walter. 2019. Unsettling allyship, unlearning and learning towards decolonising solidarity. Studies in the Education of Adults 52, 1 (2019), 49--66.
[105]
S. Kolovson, A. Pratap, J. Duffy, R. Allred, S. A. Munson, and P. A. Areán. 2020. Understanding participant needs for engagement and attitudes towards passive sensing in remote digital health studies. In Proceedings of the 14th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth’20).
[106]
R. Koster, K. Baccar, and R. H. Lemelin. 2012. Moving from research ON, to research with and for indigenous communities: A critical reflection on community-based participatory research. Canadian Geographer 56, 2 (2012).
[107]
J. L. Laws. 1975. The psychology of tokenism: An analysis. Sex Roles 1, 51--67 (1975).
[108]
S. De Leeuw, E. S. Cameron, and M. L. Greenwood. 2012. Participatory and community-based research, indigenous geographies, and the spaces of friendship: A critical engagement. Canadian Geographer 56, 2 (2012), 180--194.
[109]
G. Leonard and L. Misumi. 2016. W.A.I.T. (Why Am I Talking?): A dialogue on solidarity, allyship, and supporting the struggle for racial justice without reproducing white supremacy. Harvard Journal of African American Public Policy 61--74.
[110]
C. Lee and J. Hume-Pratuch. 2013. Let's Talk About Research Participants. Retrieved from http://blog.apastyle.org/apastyle/2013/08/lets-talk-about-research-participants.html.
[111]
E. Lightman, A. Vick, D. Herd, and A. Mitchell. 2009. ‘Not disabled enough’: Episodic disabilities and the Ontario disability support program. Disability Studies Quarterly 29, 3 (2009).
[112]
B. Lloyd-Jones. 2014. African-American women in the professoriate: Addressing social exclusion and scholarly marginalization through mentoring. Mentoring and Tutoring: Partnership in Learning 22, 4 (2014), 269--283.
[113]
M. Lugones. 2007. Heterosexualism and the colonial/modern gender system. Hypatia. 22, 1 (2007), 186--219.
[114]
L. Malinverni and N. Pares. 2017. An autoethnographic approach to guide situated ethical decisions in participatory design with teenagers. Interacting with Computers. (2017).
[115]
Black Lives Matter. #TalkAbout Trayvon: A Toolkit for White People. 2017. Retrieved from https://blacklivesmatter.com/wp-content/uploads/2017/10/Toolkit-WhitePpl-Trayvon.pdf.
[116]
W. D. Mignolo. 2018. What does it mean to decolonize? In On Decoloniality. W. D. Mignolo and C. E. Walsh (Eds.), Duke University Press, 105--134.
[117]
M. Minkler. 2004. Ethical challenges for the “outside” researcher in community-based participatory research. Health Education and Behavior 31, 6 (2004), 684--697.
[118]
L. Mizock and K. V. Page. 2016. Evaluating the ally role: Contributions, limitations, and the activist position in counseling and psychology. Journal for Social Action in Counseling and Psychology 8, 1 (2016).
[119]
K. Moon and D. Blackman. 2014. A guide to understanding social science research for natural scientists. Conservation Biology 28, 5 (2014), 1167--1177.
[120]
P. Moss, J. P. Jones, H. J. Nast, and S. M. Roberts. 1999. Thresholds in feminist geography: Difference, methodology, representation. Economic Geography 27, 11 (1999), 1659--1662.
[121]
M. J. Muller. 2003. Participatory design: The third space in HCI. In Human-Computer Interaction Handbook (2nd ed.). CRC Press.
[122]
C. Munteanu, H. Molyneaux, W. Moncur, M. Romero, S. O'Donnell, and J. Vines. 2015. Situational ethics: Re-thinking approaches to formal ethics requirements for human-computer interaction. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. 105--114.
[123]
A. Waller. 2020. Nextdoor removes app's ‘forward to police’ feature. The New York Times. Retrieved from https://www.nytimes.com/2020/06/23/us/nextdoor-forward-to-police-.html.
[124]
J. T. O'Leary, S. Zewde, J. Mankoff, and D. K. Rosner. 2019. Who gets to future? Race, representation, and design methods in Africatown. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper 561, 1--13.
[125]
I. F. Ogbonnaya-Ogburu, A. D. Smith, A. To, and K. Toyama. 2020. Critical race theory for HCI. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. 1--16.
[126]
R. Gay. 2016. On making Black Lives Matter: 2016. Retrieved from https://www.marieclaire.com/culture/a21423/roxane-gay-philando-castile-alton-sterling/.
[127]
W. J. Orlikowski and J. J. Baroudi. 1991. Studying information technology in organizations: Research approaches and assumptions. Information Systems Research 2, 1 (1991), 1--84.
[128]
A. G. Parker, V. Kantroo, H. R. Lee, M. Osornio, M. Sharma, and R. E. Grinter. 2012. Health promotion as activism: Building community capacity to effect social change. In Proceedings of the 2012 CHI Conference on Human Factors in Computing Systems. 99--108.
[129]
A. Peshkin. 1988. In search of subjectivity—One's own. Educational Researcher 17, 7 (1988), 17--21.
[130]
E. S. Poole and T. Peyton. 2013. Interaction design research with adolescents: Methodological challenges and best practices. In Proceedings of the 12th International Conference on Interaction Design and Children (IDC’13). 211--217.
[131]
J. Powell and A. Kelly. 2018. Accomplices in the academy in the age of Black Lives Matter. Journal of Critical Thought and Praxis 6, 2 (2018).
[132]
A. Quijano. 2000. Coloniality of power and eurocentrism in Latin America. International Sociology 15, 2 (2000), 215--232.
[133]
Y. A. Rankin and J. O. Thomas. 2019. Straighten up and fly right: Rethinking intersectionality in HCI research. Interactions 26, 6 (2019), 64--68.
[134]
Y. A. Rankin, J. O. Thomas, and N. M. Joseph. 2020. Intersectionality in HCI: lost in translation. Interactions 27, 5 (2020), 68--71.
[135]
H. W. J. Rittel and M. M. Webber. 1973. Dilemmas in a general theory of planning. Policy Sciences. 4, 2 (1973), 155--169.
[136]
L. S. Rodopoulos. 2004. Becoming an ally: Breaking the cycle of oppression (2nd edn). Australian Social Work 57, 4 (2004), 410--412.
[137]
G. M. Russell. 2011. Motives of heterosexual allies in collective action for equality. Journal of Social Issues 67, 2 (2011), 376--393.
[138]
G. M. Russell and J. S. Bohan. 2016. Institutional allyship for LGBT equality: Underlying processes and potentials for change. Journal of Social Issues 72, 2 (2016), 335--354.
[139]
S. Ryan, J. Yip, M. Stieff, and A. Druin. 2013. Cooperative inquiry as a community of practice. Computer-Supported Collaborative Learning Conference 2, CSCL (2013), 145--148. Retrieved from http://bigyipper.com/wp-content/uploads/2010/11/CSCL2013_ShortPaper_Submission.pdf.
[140]
B. de Sousa Santos. 2014. A critique of lazy reason: Against the waste of experience and toward the sociology of absences and the sociology of emergences. In Epistemologies of the South: Justice Against Epistemicide. B. de S. Santos (Ed.), Routledge. https://doi.org/10.4324/9781315634876
[141]
A. M. Santuzzi, P. R. Waltz, L. M. Finkelstein, and D. E. Rupp. 2014. Invisible disabilities: Unique challenges for employees and organizations. Industrial and Organizational Psychology (2014).
[142]
S. Schalk. 2013. Coming to claim crip: Disidentification with/in disability studies. Disability Studies Quarterly 33, 2 (2013). 10.18061/dsq.v33i2.3705
[143]
M. K. Scheuerman, S. M. Branham, and F. Hamidi. 2018. Safe spaces and safe places: Unpacking technology-mediated experiences of safety and harm with transgender people. Proceedings of the ACM on Human-Computer Interaction 2, CSCW (2018) Article 155.
[144]
A. Schlesinger, W. K. Edwards, and R. E. Grinter. 2017. Intersectional HCI: Engaging identity through gender, race, and class. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. 5412--5427.
[145]
Y. B. Shrinivasan, M. Jain, D. P. Seetharam, A. Choudhary, E. Huang, T. Dillahunt, and J. Mankoff. 2013. Deep conservation in urban India and its implications for the design of conservation technologies. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 1969--1978.
[146]
K. A. Siek, J. S. LaMarche, and J. Maitland. 2009. Bridging the information gap: Collaborative technology design with low-income at-risk families to engender healthy behaviors. In Proceedings of the 21st Annual Conference of the Australian Computer-Human Interaction Special Interest Group - Design: Open 24/7 (OZCHI’09). 89--96.
[147]
C. E. Smith, X. Wang, R. P. Karumur, and H. Zhu. 2018. [Un]breaking news: Design opportunities for enhancing collaboration in scientific media production. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. Paper 381, 1--13.
[148]
L. T. Smith. 2012. Decolonizing Methodologies: Research and Indigenous Peoples (2nd ed.). Zed Books.
[149]
K. Spiel, A. M. Walker, M. A. DeVito, J. Birnholtz, P. Barlas, A. Ahmed, J. R. Brubaker, O. Keyes, E. Brulé, A. Light, J. Hardy, J. A. Rode, and G. Kannabiran. 2019. Queer(ing) HCI: Moving forward in theory and practice. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper SIG11, 1--4.
[150]
A. Strohmayer, R. Comber, and M. Balaam. 2015. Exploring learning ecologies among people experiencing homelessness. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 2275--2284.
[151]
C. Sturm, A. Oh, S. Linxen, J. Abdelnour-Nocera, S. Dray, and K. Reinecke. 2015. How WEIRD is HCI? Extending HCI principles to other countries and cultures. In Proceedings of the 33rd Annual ACM Conference Extended Abstracts on Human Factors in Computing Systems. 2425--2428.
[152]
E. Subašić, K. J. Reynolds, and J. C. Turner. 2008. The political solidarity model of social change: Dynamics of self-categorization in intergroup power relations. Personality and Social Psychology Review 12, 4 (2008), 330--342.
[153]
S. Sultana, F. Guimbretière, P. Sengers, and N. Dell. 2018. Design within a patriarchal society: Opportunities and challenges in designing for rural women in Bangladesh. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. Paper 536, 1--13.
[154]
M. Tanis and T. Postmes. 2005. Short communication a social identity approach to trust: Interpersonal perception, group membership and trusting behaviour. European Journal of Social Psychology (2005).
[155]
B. D. Tatum. 1994. Teaching white students about racism: The search for White allies and the restoration of hope. Teachers College Record 95, 4 (1994), 462--476. Retrieved from http://www.goldenbridgesschool.org/uploads/1/9/5/4/19541249/teaching_white_students_about_racism.pdf.
[156]
A. Taylor. 2011. Out there. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 685--694.
[157]
J. O. Thomas, N. Joseph, A. Williams, C. Crum, and J. Burge. 2018. Speaking truth to power: Exploring the intersectional experiences of Black women in computing. In Proceedings of the 2018 Research on Equity and Sustained Participation in Engineering, Computing, and Technology (RESPECT’18).
[158]
L. Thompson and S. Reinharz. 1992. Feminist methods in social research. Journal of Marriage and the Family 54, 4 (1992), 996--997.
[159]
A. To, W. Sweeney, J. Hammer, and G. Kaufman. 2020. “They just don't get it”: Towards social technologies for coping with interpersonal racism. Proceedings of the ACM on Human-Computer Interaction 4, CSCW (2020), Article 024, 29 pages.
[160]
K. M. Unertl, C. L. Schaefbauer, T. R. Campbell, C. Senteio, K. A. Siek, S. Bakken, and T. C. Veinot. 2016. Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations. Journal of the American Medical Informatics Association 23, 1 (2016), 60--73.
[161]
A. Vashistha, R. Anderson, A. Garg, and A. A. Raza. 2019. Threats, abuses, flirting, and blackmail: Gender inequity in social media voice forums. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Paper 72, 1--13.
[162]
A. Vashistha, P. Sethi, and R. Anderson. 2018. BSpeak: An accessible crowdsourcing marketplace for low-income blind people. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. Paper 57, 1--13.
[163]
T. C. Veinot, J. S. Ancker, H. Cole-Lewis, E. D. Mynatt, A. G. Parker, K. A. Siek, and L. Mamykina. 2019. Leveling up: On the potential of upstream health informatics interventions to enhance health equity. Medical Care 57, 6 (2019), S108--S114.
[164]
S. Villenas. 1996. The colonizer/colonized Chicana ethnographer: Identity, marginalization, and co-optation in the field. Harvard Educational Review 66, 4 (1996), 711--732.
[165]
J. Vines, R. McNaney, R. Clarke, S. Lindsay, J. McCarthy, S. Howard, M. Romero, and J. Wallace. 2013. Designing for- and with- vulnerable people. In Proceedings of the CHI’13 Extended Abstracts on Human Factors in Computing Systems. 3231--3234.
[166]
J. Vines, R. McNaney, S. Lindsay, J. Wallace, and J. McCarthy. 2014. Designing for and with vulnerable people. Interactions 21, 1 (2014), 44--46.
[167]
N. Shaprio. 2020. Viral #medbikini response to controversial manuscript leads editor to retract article. Forbes. Retrieved from https://www.forbes.com/sites/ninashapiro/2020/07/25/viral-medbikini-response-to-controversial-manuscript-leads-editor-to-retract-article/?sh=283a146c1f47.
[168]
N. B. Wallerstein and B. Duran. 2006. Using community-based participatory research to address health disparities. Health Promotion Practice. (2006).
[169]
J. K. Walter, J. F. Burke, and M. M. Davis. 2013. Research participation by low-income and racial/ethnic minority groups: How payment may change the balance. Clinical and Translational Science 6, 5 (2013), 363--371.
[170]
J. Waycott, G. Wadley, S. Schutt, A. Stabolidis, and R. Lederman. 2015. The challenge of technology research in sensitive settings: Case studies in “Sensitive HCI.” In Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction (OzCHI’15). 240--249.
[171]
S. Wendell. 2016. Unhealthy disabled: Treating chronic illnesses as disabilities. In The Disability Studies Reader (5th ed.). Routledge. https://doi.org/10.1111/j.1527–2001.2001.tb00751.x
[172]
E. P. Williams and J. K. Walter. 2015. When does the amount we pay research participants become “undue influence”? AMA Journal of Ethics 17, 12 (2015), 1116--1121.
[173]
G. R. Williamson and S. Prosser. 2002. Action research: Politics, ethics and participation. Journal of Advanced Nursing 40, 5 (2002), 587--593.
[174]
L. Winner. 1985. Do artifacts have politics? Daedalus 109, 1 (1985), 26--38
[175]
M. Wong-Villacres, A. Kumar, A. Vishwanath, N. Karusala, B. DiSalvo, and N. Kumar. 2018. Designing for intersections. In Proceedings of the 2018 Designing Interactive Systems Conference (DIS’18). 45--58.
[176]
S. Wyche, T. R. Dillahunt, N. Simiyu, and S. Alaka. 2015. “If god gives me the chance I will design my own phone”: Exploring mobile phone repair and postcolonial approaches to design in rural Kenya. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp’15). 463--473.
[177]
S. P. Wyche, M. Densmore, and B. S. Geyer. 2015. Real mobiles: Kenyan and Zambian smallholder farmers? Current attitudes towards mobile phones. In Proceedings of the 7th International Conference on Information and Communication Technologies and Development. Article 9, 1--10.
[178]
S. P. Wyche and L. L. Murphy. 2012. “Dead china-make” phones off the grid: Investigating and designing for mobile phone use in rural Africa. In Proceedings of the Designing Interactive Systems Conference (DIS’12). 186--195.
[179]
A. Ymous, K. Spiel, O. Keyes, R. M. Williams, J. Good, E. Hornecker, and C. L. Bennett. 2020. “I am just terrified of my future”: Epistemic violence in disability related technology research. In Proceedings of the Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems. 1--16.
[180]
S. Linton. 1998. Claiming Disability: Knowledge and Identity. NYU Press.

Cited By

View all
  • (2024)Design Colaborativo em Literacia de Dados no Complexo do Alemão: Uma Abordagem Inspirada no Método Paulo FreireAnais Estendidos do XIX Simpósio Brasileiro de Sistemas Colaborativos (SBSC Estendido 2024)10.5753/sbsc_estendido.2024.238573(39-48)Online publication date: 29-Apr-2024
  • (2024)Mapeando Iniciativas de Literacia de Dados em Favelas do Rio de Janeiro e Regiões VizinhasAnais do XIX Simpósio Brasileiro de Sistemas Colaborativos (SBSC 2024)10.5753/sbsc.2024.238071(157-166)Online publication date: 29-Apr-2024
  • (2024)“It Was Something I Naturally Found Worked and Heard About Later”: An Investigation of Body Doubling with Neurodivergent ParticipantsACM Transactions on Accessible Computing10.1145/368964817:3(1-30)Online publication date: 23-Aug-2024
  • Show More Cited By

Index Terms

  1. Embracing Four Tensions in Human-Computer Interaction Research with Marginalized People

    Recommendations

    Comments

    Please enable JavaScript to view thecomments powered by Disqus.

    Information & Contributors

    Information

    Published In

    cover image ACM Transactions on Computer-Human Interaction
    ACM Transactions on Computer-Human Interaction  Volume 28, Issue 2
    April 2021
    264 pages
    ISSN:1073-0516
    EISSN:1557-7325
    DOI:10.1145/3461620
    Issue’s Table of Contents
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

    Publisher

    Association for Computing Machinery

    New York, NY, United States

    Publication History

    Published: 17 April 2021
    Accepted: 01 December 2020
    Revised: 01 November 2020
    Received: 01 November 2019
    Published in TOCHI Volume 28, Issue 2

    Permissions

    Request permissions for this article.

    Check for updates

    Author Tags

    1. Marginalized people
    2. allyship, tensions
    3. disclosure
    4. exploitation
    5. membership

    Qualifiers

    • Research-article
    • Research
    • Refereed

    Funding Sources

    Contributors

    Other Metrics

    Bibliometrics & Citations

    Bibliometrics

    Article Metrics

    • Downloads (Last 12 months)2,163
    • Downloads (Last 6 weeks)299
    Reflects downloads up to 12 Dec 2024

    Other Metrics

    Citations

    Cited By

    View all
    • (2024)Design Colaborativo em Literacia de Dados no Complexo do Alemão: Uma Abordagem Inspirada no Método Paulo FreireAnais Estendidos do XIX Simpósio Brasileiro de Sistemas Colaborativos (SBSC Estendido 2024)10.5753/sbsc_estendido.2024.238573(39-48)Online publication date: 29-Apr-2024
    • (2024)Mapeando Iniciativas de Literacia de Dados em Favelas do Rio de Janeiro e Regiões VizinhasAnais do XIX Simpósio Brasileiro de Sistemas Colaborativos (SBSC 2024)10.5753/sbsc.2024.238071(157-166)Online publication date: 29-Apr-2024
    • (2024)“It Was Something I Naturally Found Worked and Heard About Later”: An Investigation of Body Doubling with Neurodivergent ParticipantsACM Transactions on Accessible Computing10.1145/368964817:3(1-30)Online publication date: 23-Aug-2024
    • (2024)Whose Knowledge is Valued? Epistemic Injustice in CSCW ApplicationsProceedings of the ACM on Human-Computer Interaction10.1145/36870628:CSCW2(1-28)Online publication date: 8-Nov-2024
    • (2024)Paradoxes of Openness: Trans Experiences in Open Source SoftwareProceedings of the ACM on Human-Computer Interaction10.1145/36870478:CSCW2(1-24)Online publication date: 8-Nov-2024
    • (2024)Together in the Mikrokosmos: Exploring Disabled Embodied Experiences in Designed Sociotechnical WorldsProceedings of the ACM on Human-Computer Interaction10.1145/36869748:CSCW2(1-39)Online publication date: 8-Nov-2024
    • (2024)The Politics of Fear and the Experience of Bangladeshi Religious Minority Communities Using Social Media PlatformsProceedings of the ACM on Human-Computer Interaction10.1145/36869268:CSCW2(1-32)Online publication date: 8-Nov-2024
    • (2024)Reimagining Communities through Transnational Bengali Decolonial Discourse with YouTube Content CreatorsProceedings of the ACM on Human-Computer Interaction10.1145/36869008:CSCW2(1-36)Online publication date: 8-Nov-2024
    • (2024)Positionality of Researchers Identifying with the "Global South": Shared Heritages, Ways of Thinking and Doing ResearchCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3687142(679-683)Online publication date: 11-Nov-2024
    • (2024)Carefully Unmaking the “Marginalized User”: A Diffractive Analysis of a Gay Online CommunityACM Transactions on Computer-Human Interaction10.1145/367322931:6(1-30)Online publication date: 14-Jun-2024
    • Show More Cited By

    View Options

    View options

    PDF

    View or Download as a PDF file.

    PDF

    eReader

    View online with eReader.

    eReader

    HTML Format

    View this article in HTML Format.

    HTML Format

    Login options

    Full Access

    Media

    Figures

    Other

    Tables

    Share

    Share

    Share this Publication link

    Share on social media