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Co-designing smart home technology with people with dementia or Parkinson's disease

Authors:

Aikaterini Bourazeri,

Simone StumpfAuthors Info & Claims

NordiCHI '18: Proceedings of the 10th Nordic Conference on Human-Computer Interaction

Pages 609 - 621

https://doi.org/10.1145/3240167.3240197

Published: 29 September 2018 Publication History

Abstract

Involving users is crucial to designing technology successfully, especially for vulnerable users in health and social care, yet detailed descriptions and critical reflections on the co-design process, techniques and methods are rare. This paper introduces the PERCEPT (PERrsona-CEntred Participatory Technology) approach for the co-design process and we analyse and discuss the lessons learned for each step in this process. We applied PERCEPT in a project to develop a smart home toolset that will allow a person living with early stage dementia or Parkinson's to plan, monitor and self-manage his or her life and well-being more effectively. We present a set of personas which were co-created with people and applied throughout the project in the co-design process. The approach presented in this paper will enable researchers and designers to better engage with target user groups in co-design and point to considerations to be made at each step for vulnerable users.

References

[1]

Tamara Adlin and John Pruitt. 2010. The Essential Persona Lifecycle: Your Guide to Building and Using Personas. Morgan Kaufmann.

Digital Library

[2]

Amid Ayobi, Paul Marshall, Anna L. Cox, and Yunan Chen. 2017. Quantifying the Body and Caring for the Mind: Self-Tracking in Multiple Sclerosis. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17), 6889--6901.

Digital Library

[3]

Susanne Bødker and Ole Sejer Iversen. 2002. Staging a Professional Participatory Design Practice: Moving PD Beyond the Initial Fascination of User Involvement. In Proceedings of the Second Nordic Conference on Human-computer Interaction (NordiCHI '02), 11--18.

Digital Library

[4]

Brian M. Bot, Christine Suver, Elias Chaibub Neto, Michael Kellen, Arno Klein, Christopher Bare, Megan Doerr, Abhishek Pratap, John Wilbanks, E. Ray Dorsey, Stephen H. Friend, and Andrew D. Trister. 2016. The mPower study, Parkinson disease mobile data collected using ResearchKit. Scientific Data 3.

[5]

DanaKai Bradford and Qing Zhang. 2016. How to Save a Life: Could Real-Time Sensor Data Have Saved Mrs Elle? In Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA '16), 910--920.

Digital Library

[6]

Margaret Burnett, Simone Stumpf, Jamie Macbeth, Stephann Makri, Laura Beckwith, Irwin Kwan, Anicia Peters, and William Jernigan. 2016. GenderMag: A Method for Evaluating Software's Gender Inclusiveness. Interacting with Computers 28, 6: 760--787.

[7]

Jacob Buur and Susanne Bødker. 2000. From Usability Lab to "Design Collaboratorium": Reframing Usability Practice. In Proceedings of the 3rd Conference on Designing Interactive Systems: Processes, Practices, Methods, and Techniques (DIS '00), 297--307.

Digital Library

[8]

Daniel G. Cabrero. 2014. Participatory Design of Persona Artefacts for User experience in non-WEIRD Cultures. In Proceedings of the 13th Participatory Design Conference: Short Papers, Industry Cases, Workshop Descriptions, Doctoral Consortium Papers, and Keynote Abstracts - Volume 2 (PDC '14), 247--250.

Digital Library

[9]

Daniel G. Cabrero, Heike Winschiers-Theophilus, Jose Abdelnour-Nocera, and Gereon Koch Kapuire. 2016. A Hermeneutic Inquiry into User-created Personas in Different Namibian Locales. In Proceedings of the 14th Participatory Design Conference: Full Papers - Volume 1 (PDC '16), 101--110.

Digital Library

[10]

Alan Cooper. 2004. The Inmates Are Running the Asylum: Why High Tech Products Drive Us Crazy and How to Restore the Sanity (2Nd Edition). Pearson Higher Education.

Digital Library

[11]

J. Doyle, N. Caprani, and R. Bond. 2015. Older adults' attitudes to self-management of health and wellness through smart home data. In 2015 9th International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth), 129--136.

Digital Library

[12]

Allison Druin. 1999. Cooperative Inquiry: Developing New Technologies for Children with Children. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '99), 592--599.

Digital Library

[13]

Shamal Faily and Ivan Flechais. 2011. Persona Cases: A Technique for Grounding Personas. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11), 2267--2270.

Digital Library

[14]

Erin Friess. 2012. Personas and Decision Making in the Design Process: An Ethnographic Case Study. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 1209--1218.

Digital Library

[15]

Bill Gaver, Tony Dunne, and Elena Pacenti. 1999. Design: Cultural Probes. interactions 6, 1: 21--29.

Digital Library

[16]

Trisha Greenhalgh, Claire Jackson, Sara Shaw, and Tina Janamian. 2016. Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study. The Milbank Quarterly 94, 2: 392--429.

[17]

Aftab Khan, Sebastian Mellor, Eugen Berlin, Robin Thompson, Roisin McNaney, Patrick Olivier, and Thomas Plötz. 2015. Beyond Activity Recognition: Skill Assessment from Accelerometer Data. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp '15), 1155--1166.

Digital Library

[18]

Rashmi Lakshminarayana, Duolao Wang, David Burn, K. Ray Chaudhuri, Clare Galtrey, Natalie Valle Guzman, Bruce Hellman, Ben James, Suvankar Pal, Jon Stamford, Malcolm Steiger, R. W. Stott, James Teo, Roger A. Barker, Emma Wang, Bastiaan R. Bloem, Martijn van der Eijk, Lynn Rochester, and Adrian Williams. 2017. Using a smartphone-based self-management platform to support medication adherence and clinical consultation in Parkinson's disease. npj Parkinson's Disease 3, 1: 2.

[19]

Stephen Lindsay, Daniel Jackson, Guy Schofield, and Patrick Olivier. 2012. Engaging Older People Using Participatory Design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 1199--1208.

Digital Library

[20]

Stephen Lindsay, Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy, Participatory Design and People with Dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 521--530.

Digital Library

[21]

Tuuli Mattelmäki and Katja Battarbee. 2002. Empathy probes. In PDC, 266--271.

[22]

Tara Matthews, Tejinder Judge, and Steve Whittaker. 2012. How Do Designers and User Experience Professionals Actually Perceive and Use Personas? In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 1219--1228.

Digital Library

[23]

Jennifer (Jen) McGinn and Nalini Kotamraju. 2008. Data-driven Persona Development. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '08), 1521--1524.

Digital Library

[24]

Roisin McNaney, Madeline Balaam, Amey Holden, Guy Schofield, Daniel Jackson, Mary Webster, Brook Galna, Gillian Barry, Lynn Rochester, and Patrick Olivier. 2015. Designing for and with People with Parkinson's: A Focus on Exergaming. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15), 501--510.

Digital Library

[25]

Kellie Morrissey, Andrew Garbett, Peter Wright, Patrick Olivier, Edward Ian Jenkins, and Katie Brittain. 2017. Care and Connect: Exploring Dementia-Friendliness Through an Online Community Commissioning Platform. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17), 2163--2174.

Digital Library

[26]

Lene Nielsen. 2011. Personas in Co-creation and Co-design. In Proceedings of the 11th Danish Human-Computer Interaction Research Symposium (DHRS2011), 38--40.

[27]

Lene Nielsen and Kira Storgaard Hansen. 2014. Personas is Applicable: A Study on the Use of Personas in Denmark. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '14), 1665--1674.

Digital Library

[28]

Chimeren Peerbhai, Sylke Grootoonk, Hugo de Waal, Kate McLeish, and Derek L. Hill. 2016. Co-Designing a Digital Platform to Support People With Dementia And Their Carers. Alzheimer's & Dementia 12, 7, Supplement: P154--P155.

[29]

John Pruitt and Jonathan Grudin. 2003. Personas: Practice and Theory. In Proceedings of the 2003 Conference on Designing for User Experiences (DUX '03), 1--15.

Digital Library

[30]

Rebecca M. Quintana, Stephanie R. Haley, Adam Levick, Caitlin Holman, Ben Hayward, and Mike Wojan. 2017. The Persona Party: Using Personas to Design for Learning at Scale. In Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA '17), 933--941.

Digital Library

[31]

Louise Robinson, Katie Brittain, Stephen Lindsay, Dan Jackson, and Patrick Olivier. 2009. Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence. International Psychogeriatrics 21, 3: 494--502.

[32]

Elizabeth B.-N. Sanders and Pieter Jan Stappers. 2008. Co-creation and the new landscapes of design. CoDesign 4, 1: 5--18.

[33]

Michael Scaife, Yvonne Rogers, Frances Aldrich, and Matt Davies. 1997. Designing for or Designing with? Informant Design for Interactive Learning Environments. In Proceedings of the ACM SIGCHI Conference on Human Factors in Computing Systems (CHI '97), 343--350.

Digital Library

[34]

Helena Sustar, Simon Bowen, Andy Dearden, Mark Fisher, and Dan Wolstenholme. 2013. Using popular culture to enable health service co-design with young people. In Crafting the Future.

[35]

Anja Thieme, John Vines, Jayne Wallace, Rachel Elizabeth Clarke, Petr Slovák, John McCarthy, Michael Massimi, and Andrea Grimes Grimes Parker. 2014. Enabling Empathy in Health and Care: Design Methods and Challenges. In CHI '14 Extended Abstracts on Human Factors in Computing Systems (CHI EA '14), 139--142.

Digital Library

[36]

John Vines, Roisin McNaney, Rachel Clarke, Stephen Lindsay, John McCarthy, Steve Howard, Mario Romero, and Jayne Wallace. 2013. Designing For- and With- Vulnerable People. In CHI '13 Extended Abstracts on Human Factors in Computing Systems (CHI EA '13), 3231--3234.

Digital Library

[37]

Jayne Wallace, Anja Thieme, Gavin Wood, Guy Schofield, and Patrick Olivier. 2012. Enabling Self, Intimacy and a Sense of Home in Dementia: An Enquiry into Design in a Hospital Setting. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 2629--2638.

Digital Library

[38]

Jayne Wallace, Peter C. Wright, John McCarthy, David Philip Green, James Thomas, and Patrick Olivier. 2013. A Design-led Inquiry into Personhood in Dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '13), 2617--2626.

Digital Library

[39]

Pontus Wärnestål, Petra Svedberg, Susanne Lindberg, and Jens M Nygren. 2017. Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors. Journal of Medical Internet Research 19, 5.

[40]

David Werner. 1998. Nothing About Us Without Us: Developing Innovative Technologies For, By, and With Disabled Persons. Healthwrights, Palo Alto.

[41]

Peter West, Richard Giordano, Max Van Kleek, and Nigel Shadbolt. 2016. The Quantified Patient in the Doctor's Office: Challenges & Opportunities. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16), 3066--3078.

Digital Library

[42]

Irith Williams, Margot Brereton, Jared Donovan, Karalyn McDonald, Tanya Millard, Alex Tam, and Julian H. Elliott. 2014. A collaborative rapid persona-building workshop : creating design personas with health researchers. International Journal of Sociotechnology and Knowledge Development 6, 2: 17--35.

Digital Library

[43]

Stephanie Wilson, Abi Roper, Jane Marshall, Julia Galliers, Niamh Devane, Tracey Booth, and Celia Woolf. 2015. Codesign for people with aphasia through tangible design languages. CoDesign 11, 1: 21--34.

[44]

Peter Wright and John McCarthy. 2008. Empathy and Experience in HCI. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '08), 637--646.

Digital Library

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cover image ACM Other conferences

NordiCHI '18: Proceedings of the 10th Nordic Conference on Human-Computer Interaction

September 2018

1002 pages

ISBN:9781450364379

DOI:10.1145/3240167

General Chairs:
Tone Bratteteig
University of Oslo
,
Frode Eika Sandnes
Oslo Metropolitan University
,
Publications Chair:
Gerd Berget
Oslo Metropolitan University

Copyright © 2018 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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Published: 29 September 2018

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NordiCHI'18

NordiCHI'18: Nordic Conference on Human-Computer Interaction

September 29 - October 3, 2018

Oslo, Norway

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NordiCHI '18 Paper Acceptance Rate 59 of 240 submissions, 25%;

Overall Acceptance Rate 379 of 1,572 submissions, 24%

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Spalla GYaddaden AKenfack Ngankam HGouin-Vallerand CBier N(2024)Assistive technologies designed to support executive function impairments while promoting independence: A scoping reviewJournal of Rehabilitation and Assistive Technologies Engineering10.1177/2055668324126865811Online publication date: 1-Aug-2024
https://doi.org/10.1177/20556683241268658
Chen HGouin-Vallerand CBouchard KGaboury SNgankam HLussier MCouture MBier NGiroux S(2024)Utilizing Self-Supervised Learning for Recognizing Human Activity in Older Adults through Labeling Applications in Real-World Smart HomesProceedings of the 2024 International Conference on Information Technology for Social Good10.1145/3677525.3678671(275-283)Online publication date: 4-Sep-2024
https://dl.acm.org/doi/10.1145/3677525.3678671
Sheahan JCardamone EVines J(2024)Exploring Generative Postcard Futures with Older AdultsAdjunct Proceedings of the 2024 Nordic Conference on Human-Computer Interaction10.1145/3677045.3685502(1-6)Online publication date: 13-Oct-2024
https://dl.acm.org/doi/10.1145/3677045.3685502
Branco DMóteiro MBouça-Machado RMiranda RReis TDecoroso ÉCardoso RRamalho JRato FMalheiro JMiranda DCaniça VPona-Ferreira FGuerreiro DLeitão MBraz AJ Ferreira JGuerreiro T(2024)Co-designing Customizable Clinical Dashboards with Multidisciplinary Teams: Bridging the Gap in Chronic Disease CareProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642618(1-18)Online publication date: 11-May-2024
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Owens OBeer JLeonard MSudduth BBurton LWu X(2024)(Re)Defining Smart Home Through an HCI Perspective: A Systematic Review of over Two Decades of Smart Home Conceptualization and ResearchInternational Journal of Human–Computer Interaction10.1080/10447318.2024.2437112(1-24)Online publication date: 13-Dec-2024
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Zhu DAl Mahmud ALiu W(2023)Digital storytelling intervention to enhance social connections and participation for people with mild cognitive impairment: a research protocolFrontiers in Psychiatry10.3389/fpsyt.2023.121732314Online publication date: 11-Oct-2023
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Oleson ASolomon MPerdriau CKo A(2023)Teaching Inclusive Design Skills with the CIDER Assumption Elicitation TechniqueACM Transactions on Computer-Human Interaction10.1145/354907430:1(1-49)Online publication date: 7-Mar-2023
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