[go: up one dir, main page]
More Web Proxy on the site http://driver.im/ skip to main content
10.1145/3229434.3229469acmconferencesArticle/Chapter ViewAbstractPublication PagesmobilehciConference Proceedingsconference-collections
research-article

Mobile support for adults with mild learning disabilities during clinical consultations

Published: 03 September 2018 Publication History

Abstract

Previous studies have suggested that the learning disability (LD) population face significant communication barriers when interacting with health professionals. Such obstacles may be considered as preventable; however, there is a surprising lack of research-based technologies available that intend to promote this communication. We aim to address this issue by investigating the potential use of mobile technologies to support adults with mild LDs during clinical consultations. To achieve this, we interviewed 10 domain experts including government advisors, academics, support workers and General Practitioners. The extracted information was used to develop an initial technology probe, which was evaluated by a subset of the aforementioned experts. The overall contribution of this research is a set of design guidelines for the development of Augmentative and Communicative technologies that target the clinical needs of adults with mild LDs.

References

[1]
Alborz, A., McNally, R., Glendinning, C. 2005. Access to health care for people with learning disabilities in the UK: mapping the issues and reviewing the evidence. Journal of Health Services Research & Policy 10, 173--182
[2]
Aggarwal, D. Supporting Bodily Communication in Video-based Clinical Consultations. 2016. In: CHI EA '16 Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 188--192
[3]
Baxter, S., Enderby, P., Evan, P., Judge, S. 2012. Barriers and Facilitators to the use of High-Technology Augmentative and Alternative Communication Devices: A Systematic Review and Qualitative Synthesis. International Journal of Language & Communications Disorders 47, 2, 115--129
[4]
Bell D.M., Cameron L. 2007. From Dare I say...? to I dare say: a case example illustrating the extension of the use of Talking Mats to people with learning disabilities who are able to speak well but unwilling to do so. British Journal of Learning Disabilities 36, 2, 122--127
[5]
Bostrom, P., Eriksson, E. 2015. Design for Self-Reporting Health in Children with Intellectual Disabilities. In: IDC'15 Proceeedings of the 14th International Conference of Interaction Design and Children 279--282
[6]
Bouamrane, M.M., Rector, A., Hurrell M. 2008. Ontology-Driven Adaptive Medical Information Collection System. In International Symposium on Methodologies for Intelligent Systems Matwin S., Raś Z.W., Ślęzak D. (eds) Foundations of Intelligent Systems. ISMIS 2008. Lecture Notes in Computer Science, vol 4994. Springer, Berlin, Heidelberg pages 574--584
[7]
Brodrick, D., Lewis, D., Worth, A., Marland, A. 2011. One-page patient passport for people with learning disabilities. Nursing Standard 25, 47, 35--40
[8]
Chen, L., Yan, N., Kiang, M., Muth, A.S., Krishna, K.S. Innomotion: a web-based rehabilitation system helping patients recover and gain self-awareness of their body away from the clinic. 2014. In: CHI EA '14 CHI '14 Extended Abstracts on Human Factors in Computing Systems, 233--238
[9]
Crabtree, A., Hemmings, T., Rodden, T., Cheverst, K., Clarke, K., Dewsbury, G., Hughes, J., Rouncefield, M. 2003. Designing with care: Adapting cultural probes to inform design in sensitive settings. Ergonomics Society of Australia 4, 13
[10]
Craig, P. MacIntyre, S., Michie, S., Nazareth, N. 2008. Developing and Evaluating Complex Interventions: The New Medical Research Council Guidance. British Medical Journal 33, 5
[11]
Dahl, Y., Linander, H., Hanssen, G.K. Co-designing interactive tabletop solutions for active patient involvement in audiological consultations. 2014. In: NordiCHI '14 Proceedings of the 8th Nordic Conference on Human-Computer Interaction: Fun, Fast, Foundational, 207--216
[12]
Dumas, J.S., Redice, J.C. 1999. A Practical Guide to Usability Testing. Revised Edition. Intellect Ltd. 404p.
[13]
Gale, N.K., Heath G., Cameron, E., Rashid, S., Redwood, S. 2013. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology 13, 117
[14]
Garcia, J.A., Pisan, Y., Tan, C.T., Navarro, K.F. Step kinnection: a hybrid clinical test for fall risk assessment in older adults. 2014. In: CHI EA '14 CHI '14 Extended Abstracts on Human Factors in Computing Systems 471--474
[15]
Gregory, J. 2012. How can we assess pain in people who have difficulty communicating? A practice development project identifying a pain assessment tool for acute care. International Practice Development Project 2, 2 Article 6
[16]
Heslop, P., Blair, P., Fleming, P., Hoghton, M., Marriott, A., Russ, L. 2013. Confidential Inquiry into premature deaths of people with learning disabilities. Norah Fry Research Centre, Bristol. 129p.
[17]
Howells, G. 1995. Primary Medical Care for People with Learning Disabilities: Overcoming the barriers. Paper presented at Enabling People with a Learning Disability to Use the Health Service. Conference held at St George's Hospital Medical School
[18]
Kane, S.K., Jayant, C., Wobbrock, J.O., Ladner, R.E. 2009. Freedom to Roam: A Study of Mobile Device Adoption and Accessibility for People with Visual and Motor Disabilities. In: Assets '09 Proceedings of the 11th international ACM SIGACCESS conference on Computers and accessibility, 115--122
[19]
Krahn, G.L., Hammond, L., Turner, A. 2006. A Cascade of Disparities: Health and Health Care Access for People with Intellectual Disabilities. Developmental Disabilities Research Reviews, 12, 70--82
[20]
Lancaster University, Institute for Health Research. 2004. Key Highlights of Research Evidence on the Health of People with Learning Disabilities. Lancaster University. 12p
[21]
Lauer, E., McCallion, P. 2015. Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data. Journal of Applied Research in Intellectual Disabilities 28, 394--405
[22]
Learning Disabilities Observatory. 2015. People with learning disabilities in England 2015: Main report. Public Health England. 97p.
[23]
Lennox, N.G., Diggens, J.N., Ugoni, A.M.: 1997. The General Practice Care of People With Intellectual Disability: Barriers and Solutions. Journal of Intellectual Disability Research 41, 5, 380--390
[24]
Lewis, C., Sullivan, J., Hoehl. 2009. Mobile Technology for People with Cognitive Disabilities and their Caregivers - HCI Issues. UAHCI '09 Proceedings of the 5th International Conference on Universal Access in Human-Computer Interaction, 385--394
[25]
Light, J., McNaughton, D. 2013. Putting People First: Re-Thinking the Role of Technology in Augmentative and Alternative Communication Intervention. Augmentative and Alternative Communication 29, 4, 299--309.
[26]
Medhi, I., Sagar, A., Toyama, K. 2007. Text-free user interfaces for illiterate and semiliterate users. Journal of Information Technologies and International Development 4, 1, 37--50
[27]
Murphy, J. 2006. Perceptions of Communication between People with Communication Disability and General Practice Staff. Health Expectations 9, 1, 49--59
[28]
Murphy, J., Cameron, L. 2000. Making Choices at the Time of Transition for Young People with a Learning Disability. University of Stirling.
[29]
Niemeijer, D., Donnellan, A.M., Robledo, J. 2012. Taking the Pulse of Augmentative and Alternative Communication on iOS. AssistiveWare.
[30]
Nocon, A. 2006. Equal Treatment - Closing the Gap, Executive Summary. Disability Rights Commission. 122p
[31]
Norman, D., Euchner, J. 2016. Design for Use: An Interview with Don Norman. Research-Technology Management 58, 1, 15--20.
[32]
Rogers, S.J., Dawson, G., Vismara, L.A. 2012. An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn. New York: The Guilford Press, 342p.
[33]
Simpson, N.J. 1995. Bridging Primary and Secondary Care for People with Learning Disabilities. Advances in Psychiatric Treatment 1, 7, 207--13.
[34]
World Health Organization. 2018. Definition: intellectual disability http://www.euro.who.int/en/health-topics/noncommunicable-diseases/mental-health/news/news/2010/15/childrens-right-to-family-life/definition-intellectual-disability Archived at: http://www.webcitation.org/6zPF13Wkz

Cited By

View all
  • (2021)Exploring A Reporting Tool to Empower Individuals with Intellectual and Developmental Disabilities to Self-Report AbuseProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445150(1-13)Online publication date: 6-May-2021
  • (2020)Alternative and Augmentative Communication Technologies to Support Adults with Mild Intellectual Disabilities during Clinical Consultations: A Scoping Review (Preprint)JMIR Rehabilitation and Assistive Technologies10.2196/19925Online publication date: 6-May-2020
  • (2020)Lessons from Expert Focus Groups on how to Better Support Adults with Mild Intellectual Disabilities to Engage in Co-DesignProceedings of the 22nd International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3373625.3417008(1-12)Online publication date: 26-Oct-2020
  • Show More Cited By

Recommendations

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Conferences
MobileHCI '18: Proceedings of the 20th International Conference on Human-Computer Interaction with Mobile Devices and Services
September 2018
552 pages
ISBN:9781450358989
DOI:10.1145/3229434
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Sponsors

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 03 September 2018

Permissions

Request permissions for this article.

Check for updates

Author Tags

  1. AAC technologies
  2. clinical consultations
  3. learning disabilities

Qualifiers

  • Research-article

Conference

MobileHCI '18
Sponsor:

Acceptance Rates

Overall Acceptance Rate 202 of 906 submissions, 22%

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • Downloads (Last 12 months)10
  • Downloads (Last 6 weeks)0
Reflects downloads up to 23 Jan 2025

Other Metrics

Citations

Cited By

View all
  • (2021)Exploring A Reporting Tool to Empower Individuals with Intellectual and Developmental Disabilities to Self-Report AbuseProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445150(1-13)Online publication date: 6-May-2021
  • (2020)Alternative and Augmentative Communication Technologies to Support Adults with Mild Intellectual Disabilities during Clinical Consultations: A Scoping Review (Preprint)JMIR Rehabilitation and Assistive Technologies10.2196/19925Online publication date: 6-May-2020
  • (2020)Lessons from Expert Focus Groups on how to Better Support Adults with Mild Intellectual Disabilities to Engage in Co-DesignProceedings of the 22nd International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3373625.3417008(1-12)Online publication date: 26-Oct-2020
  • (2020)Designing Clinical AAC Tablet Applications with Adults who have Mild Intellectual DisabilitiesProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376159(1-13)Online publication date: 21-Apr-2020
  • (2019)Ontology-Driven, Adaptive, Medical Questionnaires for Patients with Mild Learning DisabilitiesArtificial Intelligence XXXVI10.1007/978-3-030-34885-4_8(107-121)Online publication date: 19-Nov-2019
  • (2018)Design Requirements for a Digital Aid that Supports Adults with Mild Learning Disabilities during Clinical Consultations (Preprint)JMIR Rehabilitation and Assistive Technologies10.2196/10449Online publication date: 3-Apr-2018

View Options

Login options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

Media

Figures

Other

Tables

Share

Share

Share this Publication link

Share on social media