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User Participation When Users have Mental and Cognitive Disabilities

Authors:

Stefan Johansson,

Ann LantzAuthors Info & Claims

ASSETS '15: Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility

Pages 69 - 76

https://doi.org/10.1145/2700648.2809849

Published: 26 October 2015 Publication History

Abstract

Persons with cognitive or mental disabilities have difficulties participating in or are excluded from IT development and assessments exercises due to the problems finding good ways to efficiently collaborate on equal terms. In this paper we describe how we worked closely together with persons that have mental and cognitive disabilities in order to test and develop methods for participation in assessments and in processes for developing, Information and Communication Technology (ICT) products and services. More than 100 persons with mental and cognitive disabilities participated in the study (people with diagnoses such as depression, anxiety disorder, bipolarity, and schizophrenia). To explore the conditions for a more equal and fair participation we have developed and elaborated a set of methods, tools and approaches. By combining scientific research methods with well-established methods for empowerment and participation we have developed methods that are cost effective and that easily can be incorporated in existing processes. We believe that our approach have taken steps to implement possibilities for persons with mental and cognitive disabilities to take part where user participation is needed in order not to discriminate or exclude but also to improve the overall quality of the end result. The results clearly show that it is possible to include persons with mental and cognitive disabilities. A mixed method -- mixed tool approach can increase the possibility for participation. The results also show that the quality of the analysis phase increases if the collaborative approach is extended to also embrace the data analysis phase.

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Cited By

Hadar Souval DHaber YTal ASimon TElyoseph TElyoseph Z(2024)Transforming Perceptions: Exploring the Multifaceted Potential of Generative AI for People with Cognitive Disabilities (Preprint)JMIR Neurotechnology10.2196/64182Online publication date: 10-Jul-2024
https://doi.org/10.2196/64182
Xiao LBandukda MAngerbauer KLin WBhatnagar TSedlmair MHolloway C(2024)A Systematic Review of Ability-diverse Collaboration through Ability-based Lens in HCIProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641930(1-21)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3641930
Guedes LZanardi IMastrogiuseppe MSpan SLandoni M(2024)Scaffolding for Inclusive Co-design: Supporting People with Cognitive and Learning DisabilitiesUniversal Access in Human-Computer Interaction10.1007/978-3-031-60881-0_10(151-170)Online publication date: 29-Jun-2024
https://dl.acm.org/doi/10.1007/978-3-031-60881-0_10
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Index Terms

User Participation When Users have Mental and Cognitive Disabilities
1. Social and professional topics
  1. Professional topics
    1. Computing profession
      1. Assistive technologies
  2. User characteristics
    1. People with disabilities

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Information

Published In

cover image ACM Conferences

ASSETS '15: Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility

October 2015

466 pages

ISBN:9781450334006

DOI:10.1145/2700648

General Chair:
Yeliz Yesilada
Middle East Technical University Northern Cyprus Campus
,
Program Chair:
Jeffrey P. Bigham
Carnegie Mellon University, USA

Copyright © 2015 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

Sponsors

SIGACCESS: ACM Special Interest Group on Accessible Computing

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 26 October 2015

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ASSETS '15

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SIGACCESS

ASSETS '15: The 17th International ACM SIGACCESS Conference on Computers and Accessibility

October 26 - 28, 2015

Lisbon, Portugal

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ASSETS '15 Paper Acceptance Rate 30 of 127 submissions, 24%;

Overall Acceptance Rate 436 of 1,556 submissions, 28%

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Cited By

Hadar Souval DHaber YTal ASimon TElyoseph TElyoseph Z(2024)Transforming Perceptions: Exploring the Multifaceted Potential of Generative AI for People with Cognitive Disabilities (Preprint)JMIR Neurotechnology10.2196/64182Online publication date: 10-Jul-2024
https://doi.org/10.2196/64182
Xiao LBandukda MAngerbauer KLin WBhatnagar TSedlmair MHolloway C(2024)A Systematic Review of Ability-diverse Collaboration through Ability-based Lens in HCIProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641930(1-21)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3641930
Guedes LZanardi IMastrogiuseppe MSpan SLandoni M(2024)Scaffolding for Inclusive Co-design: Supporting People with Cognitive and Learning DisabilitiesUniversal Access in Human-Computer Interaction10.1007/978-3-031-60881-0_10(151-170)Online publication date: 29-Jun-2024
https://dl.acm.org/doi/10.1007/978-3-031-60881-0_10
Palonis BDobesh SBellscheidt SMkaouer MLiu YElglaly Y(2023)Large-Scale Anonymized Text-based Disability Discourse DatasetProceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3597638.3614476(1-5)Online publication date: 22-Oct-2023
https://dl.acm.org/doi/10.1145/3597638.3614476
Dai JMiedema JHernandez SSutton-Lalani AMoffatt K(2023)Cognitive Accessibility of Digital Payments: A Literature ReviewProceedings of the 20th International Web for All Conference10.1145/3587281.3587294(116-121)Online publication date: 30-Apr-2023
https://dl.acm.org/doi/10.1145/3587281.3587294
Piccolo LGruber BKnobel MStähler L(2023)A Digital Support for People with Disabilities Entering the Labour Market: Ideation Process and Design RequirementsProceedings of the 2023 ACM Conference on Information Technology for Social Good10.1145/3582515.3609543(265-270)Online publication date: 6-Sep-2023
https://dl.acm.org/doi/10.1145/3582515.3609543
Henni SMaurud SFuglerud KMoen A(2022)The experiences, needs and barriers of people with impairments related to usability and accessibility of digital health solutions, levels of involvement in the design process and strategies for participatory and universal design: a scoping reviewBMC Public Health10.1186/s12889-021-12393-122:1Online publication date: 6-Jan-2022
https://doi.org/10.1186/s12889-021-12393-1
Mack KMcDonnell EPotluri VXu MZabala JBigham JMankoff JBennett C(2022)Anticipate and Adjust: Cultivating Access in Human-Centered MethodsProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3501882(1-18)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3501882
Colley MKränzle TRukzio E(2022)Accessibility-Related Publication Distribution in HCI Based on a Meta-AnalysisExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3519701(1-28)Online publication date: 27-Apr-2022
https://dl.acm.org/doi/10.1145/3491101.3519701
Cafaro FBrady EChandra SPatil USaxena A(2021)E Pluribus Unum: Using Conceptual Metaphor Theory to Explore and Support Mixed-Ability WorkplacesProceedings of the ACM on Human-Computer Interaction10.1145/34795285:CSCW2(1-31)Online publication date: 18-Oct-2021
https://dl.acm.org/doi/10.1145/3479528
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