More Web Proxy on the site http://driver.im/

research-article

Public Access

Integrating Cultural Relevance into a Behavioral mHealth Intervention for Native American Youth

Authors:

Morgan Vigil-Hayes,

Ann Futterman Collier,

Shelby Hagemann,

Giovanni Castillo,

Keller Mikkelson,

Joshua Dingman,

Alexandra McLaughlinAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 5, Issue CSCW1

Article No.: 165, Pages 1 - 29

https://doi.org/10.1145/3449239

Published: 22 April 2021 Publication History

Abstract

Native American communities are disproportionately affected by a number of behavioral health disparities, including higher rates of depression, substance abuse, and suicide. As mobile health (mHealth) interventions gain traction as methods for addressing these disparities, they continue to lack relevance to Native American youth. In an effort to explore the design of relevant behavioral mHealth intervention for Native American communities, we have developed ARORA (Amplifying Resilience Over Restricted Internet Access), a prototype behavioral mHealth intervention that has been co-designed with Native American youth, a community advisory board, and a clinical psychologist. In this paper, we qualitatively analyze our co-design and focus group sessions using a grounded theory approach and identify the key themes that Native American community members have identified as being critical components of relevant mHealth designs. Notably, we find that the Native American youth who participated in our focus groups desired a greater level of didactic interaction with cultural and behavioral health elements. We conclude with a discussion of the significant challenges we faced in our efforts to co-design software with Native American stakeholders and provide recommendations that might guide other HCI researchers and designers through challenges that arise during the process of cross-cultural design.

References

[1]

Mapuana C. K. Antonio and Jane J. Chung-Do. 2015. Systematic Review of Interventions Focusing on Indigenous Adolescent Mental Health and Substance Use. American Indian and Alaska Native Mental Health Research 22, 3 (2015), 36--56.

[2]

Thomas A Arcury, Wilbert M Gesler, John S Preisser, Jill Sherman, John Spencer, and Jamie Perin. 2005. The Effects of Geography and Spatial Behavior on Health Care Utilization Among the Residents of a Rural Region. Health Services Research 40, 1 (2005), 135--156.

[3]

Janette Beals, Douglas K. Novins, Nancy R. Whitesell, Paul Spicer, Christina M. Mitchell, Spero M. Manson, Risk American Indian Service Utilization, Psychiatric Epidemiology, and Protective Factors Project Team. 2005. Prevalence of Mental Disorders and Utilization of Mental Health Services in Two American Indian Reservation Populations: Mental Health Disparities in a National Context. American Journal of Psychiatry 162, 9 (2005), 1723--1732.

[4]

Amy L Best. 2007. Representing Youth: Methodological Issues in Critical Youth Studies. NYU Press.

[5]

Marcelo Bigliassi, Bruno M Galano, Adriano E Lima-Silva, and Romulo Bertuzzi. 2020. Effects of mindfulness on psychological and psychophysiological responses during self-paced walking. Psychophysiology (2020), e13529.

[6]

Richard B Birrer. 1998. Depression and Aging Too Often Do Mix: Accurate Recognition is Half the Battle. Postgraduate Medicine 104, 3 (1998), 143--164.

[7]

Richard J Bischoff, Cody S Hollist, Craig W Smith, and Paul Flack. 2004. Addressing the Mental Health Needs of the Rural Underserved: Findings from a Multiple Case Study of a Behavioral Telehealth Project. Contemporary Family Therapy 26, 2 (2004), 179--198.

[8]

Amanda Blackhorse. 2015. Blackhorse: Do you prefer `Native American' or `American Indian'? https://indiancountrytoday.com/archive/blackhorse-do-you-prefer-native-american-or-american-indian-kHWRPJqIGU6X3FTVdMi9EQ. (May 2015).

[9]

Norman M Bradburn. 1969. The Structure of Psychological Well-being. Aldine.

[10]

Bryan McKinley Jones Brayboy. 2005. Toward a tribal critical race theory in education. The Urban Review 37, 5 (2005), 425--446.

[11]

Michael Calloway, Bruce Fried, Matt Johnsen, and Joseph Morrissey. 1999. Characterization of Rural Mental Health Service Systems. The Journal of Rural Health 15, 3 (1999), 296--307.

[12]

Bronwyn Carlson and Jeff Berglund (Eds.). 2021. Indigenous Peoples Rise Up: The Global Ascendency of Social Media Activism.

[13]

Center for Disease Control and Prevention. 2013. CDC Health Disparities & Inequalities Report. (November 2013).

[14]

Center for Disease Control and Prevention. 2017. About Rural Health. https://www.cdc.gov/ruralhealth/about.html. (August 2017).

[15]

Center for Disease Control and Prevention. 2018. Suicide in Rural America. https://www.cdc.gov/ruralhealth/Suicide.html. (January 2018).

[16]

Kok Suen Cheng, Paul E. Croarkin, and Poh Foong Lee. 2019. Heart Rate Variability of Various Video-Aided Mindful Deep Breathing Durations and Its Impact on Depression, Anxiety, and Stress Symptom Severity. Mindfulness 2019, 10 (May 2019), 2082--2094.

[17]

Diane C Clark. 1998. Communication between cultures: Navajo discourse strategies in interethnic interactions. Intercultural Communication Studies (1998), 11--32.

[18]

Janet M Cliff. 1990. Navajo Games. American Indian Culture and Research Journal 14, 3 (1990), 1--81.

[19]

Collaborative for Academic, Social, and Emotional Learning. 2018. What is SEL? https://casel.org/what-is-sel/. (January 2018).

[20]

Anne E. Cox, Sarah Ullrich-French, Elaine A. Hargreaves, and Amanda K. McMahon. 2019. The Effects of Mindfulness and Music on Affective Responses to Self-Paced Treadmill Walking. Sport, Exercise, and Performance Psychology (2019). http://dx.doi.org/10.1037/spy0000192

[21]

Daniel Dickerson, Julie A Baldwin, Annie Belcourt, Lorenda Belone, Joel Gittelsohn, Joseph Keawe'aimoku Kaholokula, John Lowe, Christi A Patten, and Nina Wallerstein. 2020. Encompassing cultural contexts within scientific research methodologies in the development of health promotion interventions. Prevention Science 21, 1 (2020), 33--42.

[22]

Allison Druin. 1999. Cooperative Inquiry: Developing New Technologies for Children with Children. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. Pittsburgh, PA, USA, 592--599.

Digital Library

[23]

Allison Druin. 2010. Children as codesigners of new technologies: Valuing the imagination to transform what is possible. New Directions for Youth Development 2010, 128 (2010), 35--43.

[24]

Marisa Elena Duarte. 2017. Network Sovereignty: Building the Internet across Indian Country. University of Washington Press.

[25]

Bonnie Duran, John Oetzel, Julie Lucero, Yizhou Jiang, Douglas K Novins, Spero Manson, and Janette Beals. 2005. Obstacles for Rural American Indians Seeking Alcohol, Drug, or Mental Health Treatment. Journal of Consulting and Clinical Psychology 73, 5 (2005), 819--828.

[26]

Joseph A. Durlak, Roger P. Weissberg, Allison B. Dymnicki, Rebecca D. Taylor, and Kriston B. Schellinger. 2011. The Impact of Enhancing Students' Social and Emotional Learning: A Meta-analysis of School-based Universal Interventions. Child Development 82, 1 (2011), 405--432.

[27]

Aaron T Ebata and Rudolf H Moos. 1991. Coping and Adjustment in Distressed and Healthy Adolescents. Journal of Applied Developmental Psychology 12, 1 (1991), 33--54.

[28]

Mark S. Eberhardt, Deborah D. Ingram, Diane M. Makuc, E. R. Pamuk, V. M. Freid, S. B. Harper, C. A. Schoenborn, and H. Xia. 2001. Urban and Rural Health Chartbook. Health, United States 2001 (2001).

[29]

Teresa Evans-Campbell. 2008. Historical Trauma in American Indian/Native Alaska Communities: A Multilevel Framework for Exploring Impacts on Individuals, Families, and Communities. Journal of Interpersonal Violence 23, 3 (2008), 316--338.

[30]

Federal Communications Commission. 2018. Broadband Deployment Report. https://apps.fcc.gov/edocs_public/attachmatch/FCC-18--10A1.pdf. (February 2018).

[31]

First Nations Information Governance Centre. 2020. The First Nations Principles of OCAP. https://fnigc.ca/ocap. (January 2020).

[32]

Ellen P Fischer, Jr RR Owen, and Brian J Cuffel. 1996. Substance Abuse, Community Service Use, and Symptom Severity of Urban and Rural Residents with Schizoprhenia. Psychiatric services (Washington, DC) 47, 9 (1996), 980--984.

[33]

Jeanne C Fox, Michael Blank, Virginia G Rovnyak, and Rhoneise Y Barnett. 2001. Barriers to Help Seeking for Mental Disorders in a Rural Impoverished Population. Community Mental Health Journal 37, 5 (2001), 421--436.

[34]

Gachupin, F. and Collier, A. F. and Menon, U. 2016. Summary of data collected during the Hopi wellness camp. Be Hopi Be Healthy Partnerships: Hopi Wellness Center, Indigenous Pride Health Worker Program, University of Arizona, and Northern Arizona University. (2016).

[35]

Larry Gamm, Sarah Stone, and Stephanie Pittman. 2010. Mental Health and Mental Disorders-A Rural Challenge: A Literature Review. Rural Healthy People 2 (2010), 97--113.

[36]

Michael Tlanusta Garrett, Mark Parrish, Cyrus Williams, Lisa Grayshield, Tarrell Awe Agahe Portman, Edil Torres Rivera, and Elizabeth Maynard. 2014. Invited Commentary: Fostering Resilience Among Native American Youth Through Therapeutic Intervention. Journal of Youth and Adolescence 43, 3 (2014), 470--490.

[37]

Barney G Glaser. 1965. The Constant Comparative Method of Qualitative Analysis. Social Problems 12, 4 (1965), 436--445.

[38]

L. A. Goodman. 1961. Snowball Sampling. 32 (1961), 148--170.

[39]

Government Accountability Office. 2018. Broadband Internet: FCC's Data Overstate Access on Tribal Lands. (September 2018).

[40]

Rebecca Grist, Joanna Porter, and Paul Stallard. 2017. Mental Health Mobile Apps for Preadolescents and Adolescents: A Systematic Review. (May 2017). http://dx.doi.org/10.2196/jmir.7332

[41]

Omar G Gudi no, Skyler Leonard, and Marylene Cloitre. 2016. STAIR-A for girls: A pilot study of a skills-based group for traumatized youth in an urban school setting. Journal of Child & Adolescent Trauma 9, 1 (2016), 67--79.

[42]

Mona Leigh Guha, Allison Druin, and Jerry Alan Fails. 2013. Cooperative Inquiry Revisited: Reflections of the Past and Guidelines for the Future of Intergenerational Co-design. International Journal of Child-Computer Interaction 1, 1 (2013), 14--23.

[43]

Thich Nhat Hanh. 2008. A Handful of Quiet: Happiness in Four Pebbles. Plum Blossom Books.

[44]

Jean Hardy, Dharma Dailey, Susan Wyche, and Norman Makoto Su. 2018. Rural Computing: Beyond Access and Infrastructure. In Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing. 463--470.

Digital Library

[45]

David Hartley, Donna C Bird, and Patricia Dempsey. 1999. Rural Mental Health and Substance Abuse. Rural Health in the United States (1999), 159--178.

[46]

David Hartley, Catherine Britain, and Stephen Sulzbacher. 2002. Behavioral Health: Setting the Rural Health Research Agenda. The Journal of Rural Health 18, 5 (2002), 242--255.

[47]

Maria Yellow Horse Brave Heart. 2003. The Historical Trauma Response Among Natives and Its Relationship with Substance Abuse: A Lakota Illustration. Journal of Psychoactive Drugs 35, 1 (2003), 7--13.

[48]

Douglas D Heckathorn. 2011. Comment: Snowball versus respondent-driven sampling. Sociological Methodology 41, 1 (2011), 355--366.

[49]

Chris Hollis, Caroline J. Falconer, Jennifer L. Martin, Craig Whittington, Sarah Stockton, Cris Glazebrook, and E. Bethan Davies. 2017. Annual Research Review: Digital health interventions for children and young people with mental health problems -- a systematic and meta-review. (April 2017). http://dx.doi.org/10.1111/jcpp.12663

[50]

L. C. Hone, A. Jarden, and G. M. Schofield. 2015. An evaluation of positive psychology intervention effectiveness trials using the re-aim framework: A practice-friendly review. The Journal of Positive Psychology 10, 4 (2015), 303--322.

[51]

Danny R Hoyt, Rand D Conger, Jill Gaffney Valde, and Karen Weihs. 1997. Psychological Distress and Help Seeking in Rural America. American journal of community psychology 25, 4 (1997), 449--470.

[52]

Robyn Hromek and Sue Roffey. 2009. Promoting Social and Emotional Learning With Games: ?It's Fun and We Learn Things". Simulation & Gaming 40, 5 (2009), 626--644.

Digital Library

[53]

Becky Inkster, Shubhankar Sarda, and Vinod Subramanian. 2018. An empathy-driven, conversational artificial intelligence agent (Wysa) for digital mental well-being: Real-world data evaluation mixed-methods study. JMIR mHealth and uHealth 6, 11 (2018), e12106.

[54]

Lilly Irani, Janet Vertesi, Paul Dourish, Kavita Philip, and Rebecca E. Grinter. 2010. Postcolonial Computing: A Lens on Design and Development. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). Association for Computing Machinery, Atlanta, Georgia, USA, 1311--1320. http://dx.doi.org/10.1145/1753326.1753522

Digital Library

[55]

Barbara A Israel, Eugenia Eng, Amy J Schulz, and Edith A Parker. 2013. Methods for Community-based Participatory Research for Health. Jossey-Bass San Francisco, CA. 3--38 pages.

[56]

Barbara A Israel, Amy J Schulz, Edith A Parker, and Adam B Becker. 1998. Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Health 19, 1 (1998), 173--202.

[57]

Kristen Jacklin and Phyllis Kinoshameg. 2008. Developing a participatory aboriginal health research project: "Only if it's going to mean something". Journal of Empirical Research on Human Research Ethics 3, 2 (2008), 53--67.

[58]

Damon E Jones, Mark Greenberg, and Max Crowley. 2015. Early Social-emotional Functioning and Public Health: The Relationship Between Kindergarten Social competence and Future wellness. American Journal of Public Health 105, 11 (2015), 2283--2290.

[59]

David J. Kearney, Tracy L. Simpson, David J. Kearney, and Tracy L. Simpson. 2019. Reflections on teaching specific mindfulness practices. In Mindfulness-based Interventions for Trauma and Its Consequences. American Psychological Association, 89--109. http://dx.doi.org/10.1037/0000154-005

[60]

Allyson Kelley and Clayton Small. 2016. Establishing the Reliability and Validity of the Sources of Strength in One American Indian Community. American Indian & Alaska Native Mental Health Research: The Journal of the National Center 23, 2 (2016).

[61]

Rachel Kenny, Barbara Dooley, and Amanda Fitzgerald. 2015. Feasibility of "CopeSmart": A Telemental Heath App for Adolescents. JMIR Mental Health 2 (August 2015), e22. http://dx.doi.org/10.2196/mental.4370

[62]

Ronald C Kessler. 2000. Psychiatric Epidemiology: Selected Recent Advances and Future Directions. Bulletin of the World Health Organization 78, 4 (2000), 464--474.

[63]

Kurt Kroenke, Robert L. Spitzer, and Janet B. W. Williams. 2001. The PHQ-9 Validity of a Brief Depression Severity Measure. Technical Report.

[64]

Ellen J. Langer and C. T. Ngnouman. 2018. Mindfulness. In Frontiers of Social Psychology. Positive psychology: Established and emerging issues. 97--111.

[65]

Deborah LaVeaux and Suzanne Christopher. 2009. Contextualizing CBPR: Key principles of CBPR meet the Indigenous research context. Pimatisiwin 7, 1 (2009), 1.

[66]

Ann Lendrum, Neil Humphrey, and Michael Wigelsworth. 2013. Social and Emotional Aspects of Learning (SEAL) for Secondary Schools: Implementation Difficulties and Their Implications for School-based Mental Health Promotion. Child and Adolescent Mental Health 18, 3 (2013), 158--164.

[67]

Ioana Literat. 2013. "A Pencil for your Thoughts": Participatory Drawing as a Visual Research Method with Children and Youth. International Journal of Qualitative Methods 12, 1 (2013), 84--98.

[68]

Heather Lord and Joseph L Mahoney. 2007. Neighborhood Crime and Self-care: Risks for Aggression and Lower Academic Performance. Developmental Psychology 43, 6 (2007), 1321--1333.

[69]

Spero Manson. 2000. Mental Health Services for American Indians and Alaska Natives: Need, Use, and Barriers to Effective Care. The Canadian Journal of Psychiatry 45, 7 (2000), 617--626.

[70]

Tracey R McMahon, DenYelle Baete Kenyon, and Jessica S Carter. 2013. "My Culture, My Family, My School, Me": Identifying Strengths and Challenges in the Lives and Communities of American Indian Youth. Journal of Child and Family Studies 22, 5 (2013), 694--706.

[71]

Rudolf H Moos and Bernice S Moos. 1993. Coping Responses Inventory. Psychological Assessment Resources, Odessa, FL, USA.

[72]

Aaron Morsette, Richard van den Pol, David Schuldberg, Gyda Swaney, and Darrell Stolle. 2012. Cognitive behavioral treatment for trauma symptoms in American Indian youth: Preliminary findings and issues in evidence-based practice and reservation culture. Advances in School Mental Health Promotion 5, 1 (2012), 51--62.

[73]

Meredith Genevieve Moss. 2015. English with a Navajo Accent: Language and Ideology in Heritage Language Advocacy. Ph.D. Dissertation. Arizona State University.

[74]

Michael Muller and S. Kogan. 2010. Grounded Theory Method in HCI and CSCW. (January 2010).

[75]

Emily Mumford, Herbert J Schlesinger, Gene V Glass, Cathleen Patrick, and Timothy Cuerdon. 1984. A New Look at Evidence About Reduced Cost of Medical Utilization Following Mental Health Treatment. American Journal of Psychiatry 141, 10 (1984), 1145--1158.

[76]

Museum of Northern Arizona. 2018. Pivot: Skateboard Deck Art. https://musnaz.org/on-view/pivot/. (October 2018).

[77]

National Conference of State Legislatures. 2019. Federal and State Recognized Tribes. (October 2019).

[78]

National Institute of Mental Health. 1997. Suicide Facts. In Suicide Research Consortium.

[79]

NVivo. 2020. About. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home. (January 2020).

[80]

Organization for Economic Cooperation and Development. 2014. Urban population by city size. https://data.oecd.org/popregion/urban-population-by-city-size.htm. (January 2014).

[81]

Suzanne T. Ortega, David R. Johnson, Peter G. Beeson, and Betty J. Craft. 1994. The Farm Crisis and Mental Health: A Longitudinal Study of the 1980s. Rural Sociology 59, 4 (1994), 598--619.

[82]

Nicholet Deschine Parkhurst. 2017. Protecting Oak Flat: Narratives Of Survivance As Observed Through Digital Activism. Australasian Journal of Information Systems 21 (July 2017). http://dx.doi.org/10.3127/ajis.v21i0.1567

[83]

Andrew Pomerville, Rachel L. Burrage, and Joseph P. Gone. 2016. Empirical Findings from Psychotherapy Research with Indigenous Populations: A Systematic Review. Journal of Consulting and Clinical Psychology 84, 12 (2016), 1023.

[84]

Gabriele Prati and Luca Pietrantoni. 2009. Optimism, social support, and coping strategies as factors contributing to posttraumatic growth: A meta-analysis. Journal of Loss and Trauma 14, 5 (2009), 364--388.

[85]

Ivan J. Raymond, Matthew Iasiello, Aaron Jarden, and David Michael Kelly. 2018. Resilient futures: An individual and system-level approach to improve the well-being and resilience of disadvantaged young Australians. Translational Issues in Psychological Science 4, 3 (2018), 228.

[86]

John M. Roll, Jae Kennedy, Melanie Tran, and Donelle Howell. 2013. Disparities in Unmet Need for Mental Health Services in the United States, 1997--2010. Psychiatric Services 64, 1 (2013), 80--82.

[87]

Kathryn Rost, John Fortney, Ellen Fischer, and Jeffrey Smith. 2002. Use, Quality, and Outcomes of Care for Mental Health: The Rural Perspective. Medical Care Research and Review 59, 3 (2002), 231--265.

[88]

Kathryn Rost, John Fortney, Mingliang Zhang, Jeffrey Smith, Smith Ir, and G. Richard Smith. 1999. Treatment of Depression in Rural Arkansas: Policy Implications for Improving Care. The Journal of Rural Health 15, 3 (1999), 308--315.

[89]

Kathryn Rost, Mingliang Zhang, John Fortney, Jeff Smith, and G. Richard Smith Jr. 1998. Rural-urban Differences in Depression Treatment and Suicidality. Medical Care 36, 7 (1998), 1098--1107.

[90]

Michelle Sarche and Paul Spicer. 2008. Poverty and Health Disparities for American Indian and Alaska Native Children. Annals of the New York Academy of Sciences 1136, 1 (2008), 126--136.

[91]

Sawyer, M. S. Gale, A. John, and David Lambert. 2006. Rural and Frontier Mental and Behavioral Health Care: Barriers, Effective Policy Strategies, Best Practices. (2006).

[92]

Karen Schrier. 2006. Using augmented reality games to teach 21st century skills. In ACM SIGGRAPH 2006 Educators Program, SIGGRAPH '06. http://dx.doi.org/10.1145/1179295.1179311

Digital Library

[93]

Loretta Serna, Elizabeth Nielsen, Katina Lambros, and Steven Forness. 2000. Primary Prevention with Children at Risk for Emotional or Behavioral Disorders: Data on a Universal Intervention for Head Start classrooms. Behavioral Disorders 26, 1 (2000), 70--84.

[94]

K. Bryant Smalley, C. Thresa Yancey, Jacob C. Warren, Karen Naufel, Rebecca Ryan, and James L. Pugh. 2010. Rural Mental Health and Psychological Treatment: A Review for Practitioners. Journal of Clinical Psychology 66, 5 (2010), 479--489.

[95]

Linda Tuhiwai Smith. 2013. Decolonizing Methodologies: Research and Indigenous Peoples. Zed Books Ltd.

[96]

Richard L. Spoth, Linda S. Trudeau, Max Guyll, and Chungyeol Shin. 2012. Benefits of Universal Intervention Effects on a Youth Protective Shield 10 Years After Baseline. Journal of Adolescent Health 50, 4 (2012), 414--417.

[97]

Spyros Spyrou. 2011. The Limits of Children's Voices: From Authenticity to Critical, Reflexive Representation. Childhood 18, 2 (2011), 151--165.

[98]

Robyn L Sterling. 2011. Genetic Research Among the Havasupai: A Cautionary Tale. AMA Journal of Ethics 13, 2 (2011), 113--117.

[99]

Anselm Strauss and Juliet Corbin. 1994. Grounded Theory Methodology. Handbook of Qualitative Research 17, 1 (1994), 273--285.

[100]

Anselm Strauss and Juliet M. Corbin. 1990. Basics of Qualitative Research: Grounded Theory Procedures and Techniques.

[101]

George Sugai, Robert H. Horner, and Frank M. Gresham. 2002. Behaviorally Effective School Environments. Interventions for Academic and Behavior Problems II: Preventive and Remedial Approaches (2002), 315--350.

[102]

Jeffrey L. Susman, Benjamin F. Crabtree, and Gregory Essink. 1995. Depression in Rural Family Practice: Easy to Recognize, Difficult to Diagnose. Archives of Family Medicine 4, 5 (1995), 427.

[103]

D. Thomas, M. MacDowell, and M. Glasser. 2012. Rural Mental Health Workforce Needs Assessment--A National Survey. Rural Remote Health 12, 4 (2012), 2176--2176.

[104]

Alisabeth Thurston-Hicks, Susan Paine, and Michael Hollifield. 1998. Rural Psychiatry: Functional Impairment Associated with Psychological Distress and Medical Severity in Rural Primary Care Patients. Psychiatric Services 49, 7 (1998), 951--955.

[105]

Touchkin. 2019. Wysa: Stress, Depression & Anxiety Therapy Chatbot. https://www.wysa.io/. (November 2019).

[106]

Eve Tuck and K. Wayne Yang. 2012. Decolonization Is Not a Metaphor. Decolonization: Indigeneity, Education & Society 1, 1 (2012).

[107]

United States Census Bureau. 2011. 2010 Census Redistricting Data (Public Law 94--171) Summary File. https://www.census.gov/prod/cen2010/doc/pl94-171.pdf. (January 2011).

[108]

U.S. Department of Health and Human Services, Indian Health Services, Office of Public Health Support, and Division of Program Statistics. 2014. Trends in Indian Health. https://www.ihs.gov/dps/includes/themes/responsive2017/display_objects/documents/Trends2014Book508.pdf. (2014).

[109]

U.S. Department of Health and Human Services Office of Minority Health. 2019. (September 2019).

[110]

U.S. Surgeon General. 1999. Mental Health: A Report of the Surgeon General. Rockville, MD: US Department of Health and Human Services. Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health (1999).

[111]

Pol A. C. van Lier, Patricia Vuijk, and Alfons A. M. Crijnen. 2005. Understanding Mechanisms of Change in the Development of Antisocial Behavior: The Impact of a Universal Intervention. Journal of Abnormal Child Psychology 33, 5 (2005), 521--535.

[112]

Morgan Vigil-Hayes, Marisa Duarte, Nicholet Deschine Parkhurst, and Elizabeth Belding. 2017. #Indigenous: Tracking the Connective Actions of Native American Advocates on Twitter. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). Association for Computing Machinery, Portland, Oregon, USA, 1387--1399.

Digital Library

[113]

Morgan Vigil-Hayes, Nicholet Deschine Parkhurst, and Marisa Duarte. 2019. Complex, Contemporary, and Unconventional: Characterizing the Tweets of the #NativeVote Movement and Native American Candidates through the 2018 U.S. Midterm Elections. Proc. ACM Hum.-Comput. Interact. 3, CSCW, Article 103 (Nov. 2019), 27 pages. http://dx.doi.org/10.1145/3359205

Digital Library

[114]

Nina Wallerstein and Bonnie Duran. 2010. Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity. American Journal of Public Health 100, S1 (2010), S40--S46.

[115]

Philip S Wang, Gregory Simon, and Ronald C Kessler. 2003. The Economic Burden of Depression and the Cost-effectiveness of Treatment. International Journal of Methods in Psychiatric Research 12, 1 (2003), 22--33.

[116]

Donald Warne and Denise Lajimodiere. 2015. American Indian Health Disparities: Psychosocial Influences. Social and Personality Psychology Compass 9, 10 (2015), 567--579.

[117]

Sarah Watts, Anna Mackenzie, Cherian Thomas, Al Griskaitis, Louise Mewton, Alishia Williams, and Gavin Andrews. 2013. CBT for depression: A pilot RCT comparing mobile phone vs. computer. BMC Psychiatry 13 (feb 2013). http://dx.doi.org/10.1186/1471-244X-13-49

[118]

Kathryn Whetten, Jane Leserman, Rachel Whetten, Jan Ostermann, Nathan Thielman, Marvin Swartz, and Dalene Stangl. 2006. Exploring Lack of Trust in Care Providers and the Government as a Barrier to Health Service Use. American Journal of Public Health 96, 4 (2006), 716--721.

[119]

Brenda K. Wiederhold. 2019. Is Augmented Reality the Next Frontier in Behavioral Health? Cyberpsychology, Behavior, and Social Networking 22, 2 (February 2019), 101--102. http://dx.doi.org/10.1089/cyber.2019.29139.bkw

[120]

Jason C. Yip, Kiley Sobel, Caroline Pitt, Kung Jin Lee, Sijin Chen, Kari Nasu, and Laura R. Pina. 2017. Examining Adult-Child Interactions in Intergenerational Participatory Design. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). Denver, Colorado, USA, 5742--5754. http://dx.doi.org/10.1145/3025453.3025787

Digital Library

[121]

Mingliang Zhang, Kathryn M. Rost, and John C. Fortney. 1999. Depression Treatment and Cost Offset for Rural Community Residents with Depression. Journal of Social Service Research 25, 3 (1999), 99--110.

Cited By

Thong JTing RTakeuchi TJobson LPhipps M(2024)A qualitative study exploring the epistemology of suffering within a Malaysian Indigenous tribeTranscultural Psychiatry10.1177/13634615231225158Online publication date: 14-Feb-2024
https://doi.org/10.1177/13634615231225158
Vigil-Hayes MPanguluri LDececco HHossain MCollier AJoseph DAmresh A(2024)ICT-facilitated Health Interventions for Indigenous Communities: A Critical Literature ReviewACM Journal on Responsible Computing10.1145/36871331:4(1-26)Online publication date: 10-Aug-2024
https://dl.acm.org/doi/10.1145/3687133
Baker-Ramos RParkin MRaza-Furtado ANaihe AHobbs JVierra JRamirez ARubin-Molina CKaaialii CMason CSangar YOkihiro MHester J(2024)Enabling Restorative Hawaiian Futurism via a Tabletop Role-Playing Game and Digital Ha‘i Mo‘oleloCompanion Proceedings of the 2024 Annual Symposium on Computer-Human Interaction in Play10.1145/3665463.3678822(11-17)Online publication date: 14-Oct-2024
https://dl.acm.org/doi/10.1145/3665463.3678822
Show More Cited By

Index Terms

Integrating Cultural Relevance into a Behavioral mHealth Intervention for Native American Youth
1. Human-centered computing
  1. Interaction design
    1. Interaction design process and methods
      1. User centered design
  2. Ubiquitous and mobile computing

Recommendations

Designing and Evaluating mHealth Interventions for Vulnerable Populations: A Systematic Review
CHI '18: Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

Diverse disciplines, including Human-Computer Interaction have explored how mobile health (mHealth) applications can transform healthcare and health promotion. Increasingly, research has explored how mHealth tools can promote healthy behaviors within ...
Designing a Mobile Game That Develops Emotional Resiliency in Indian Country
CHI EA '19: Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems

Communities in Indian Country experience severe behavioral health inequities [11, 12]. Based on recent research investigating scalable behavioral health interventions and therapeutic best practices for Native American (NA) communities, we propose ARORA, ...
Designing a Resilience Resource Database with Hopi Behavioral Health Services
DIS '24 Companion: Companion Publication of the 2024 ACM Designing Interactive Systems Conference

Despite high incidence of depression, anxiety, and post traumatic stress disorder, stigma and lack of access to culturally responsive behavioral health care resources prevents many Native Americans (NA) from seeking care. However, the rise of culturally-...

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 5, Issue CSCW1

CSCW

April 2021

5016 pages

EISSN:2573-0142

DOI:10.1145/3460939

Editor:
Jeff Nichols
Apple Inc., United States

Issue’s Table of Contents

Copyright © 2021 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 22 April 2021

Published in PACMHCI Volume 5, Issue CSCW1

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Badges

Best Paper

Author Tags

Qualifiers

Research-article

Funding Sources

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

20
Total Citations
View Citations
1,304
Total Downloads

Downloads (Last 12 months)483
Downloads (Last 6 weeks)55

Reflects downloads up to 23 Dec 2024

Other Metrics

View Author Metrics

Citations

Cited By

Thong JTing RTakeuchi TJobson LPhipps M(2024)A qualitative study exploring the epistemology of suffering within a Malaysian Indigenous tribeTranscultural Psychiatry10.1177/13634615231225158Online publication date: 14-Feb-2024
https://doi.org/10.1177/13634615231225158
Vigil-Hayes MPanguluri LDececco HHossain MCollier AJoseph DAmresh A(2024)ICT-facilitated Health Interventions for Indigenous Communities: A Critical Literature ReviewACM Journal on Responsible Computing10.1145/36871331:4(1-26)Online publication date: 10-Aug-2024
https://dl.acm.org/doi/10.1145/3687133
Baker-Ramos RParkin MRaza-Furtado ANaihe AHobbs JVierra JRamirez ARubin-Molina CKaaialii CMason CSangar YOkihiro MHester J(2024)Enabling Restorative Hawaiian Futurism via a Tabletop Role-Playing Game and Digital Ha‘i Mo‘oleloCompanion Proceedings of the 2024 Annual Symposium on Computer-Human Interaction in Play10.1145/3665463.3678822(11-17)Online publication date: 14-Oct-2024
https://dl.acm.org/doi/10.1145/3665463.3678822
Chandra SThompson VVargas Meléndez GPurnell TMartin-Hammond A(2024)Co-Designing Emotion: Supporting Positive Affect in a Culturally Sensitive Application for African-American Heart HealthExtended Abstracts of the CHI Conference on Human Factors in Computing Systems10.1145/3613905.3650893(1-6)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3650893
Aldaweesh SAlateeq DVan Kleek MShadbolt N(2024)“If Someone Walks In On Us Talking, Pretend to be My Friend, Not My Therapist": Challenges and Opportunities for Digital Mental Health Support in Saudi ArabiaProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642642(1-19)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642642
Panguluri LVigi-Hayes MAmresh A(2024)Applying the uMars Scale to Evaluate a Mindfulness-based mHealth App2024 IEEE 12th International Conference on Serious Games and Applications for Health (SeGAH)10.1109/SeGAH61285.2024.10639604(1-5)Online publication date: 7-Aug-2024
https://doi.org/10.1109/SeGAH61285.2024.10639604
Kabbes NBugra AWissanji HOsmanlliu E(2024)Telehealth for Indigenous Children Worldwide: A Scoping ReviewJournal of Pediatric Surgery10.1016/j.jpedsurg.2024.01.04159:5(908-917)Online publication date: May-2024
https://doi.org/10.1016/j.jpedsurg.2024.01.041
Au-Yeung AMarfatia DBeers KGeneral DMcQueen KMartin-Hill DWekerle CGreen T(2023)Exploring the feasibility of a mental health application (JoyPopTM) for Indigenous youthFrontiers in Psychiatry10.3389/fpsyt.2023.126934714Online publication date: 6-Oct-2023
https://doi.org/10.3389/fpsyt.2023.1269347
Trinidad SShane AGuinn TApok CCollier AAvey JDonovan D(2023)The Cultural Adaption of a Sobriety Support App for Alaska Native and American Indian People: Qualitative Feasibility and Acceptability StudyJMIR Formative Research10.2196/388947(e38894)Online publication date: 7-Feb-2023
https://doi.org/10.2196/38894
Moecke DHolyk TBeckett MChopra SPetlitsyna PGirt MKirkham AKamurasi ITurner JSneddon DFriesen MMcDonald IDenson-Camp NCrosbie SCamp P(2023)Scoping review of telehealth use by Indigenous populations from Australia, Canada, New Zealand, and the United StatesJournal of Telemedicine and Telecare10.1177/1357633X23115883530:9(1398-1416)Online publication date: 13-Mar-2023
https://doi.org/10.1177/1357633X231158835
Show More Cited By

View Options

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Article

Media

Figures

Other

Tables

View Issue’s Table of Contents