Caregiving and Parenting for Chronic Pediatric Diseases

Community Caregivers’ Perspectives on Health IT Use for Children With Medical Complexity: Qualitative Interview Study

Farah Elkourdi, Onur Asan

JMIR Pediatr Parent 2025 (Feb 10); 8:e67289

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Digital Health Program to Support Family Caregivers of Children Undergoing Growth Hormone Therapy: Qualitative Feasibility Study

Alba Jiménez-Díaz, Maitena Pierantonelli, Patricia Morte Coscolín, Amaia Salinas-Uhalte, Silvia Quer-Palomas, Octavio Rivera-Romero, Rocío Herrero, Luis Fernández-Luque, Rosa Baños, Ricardo C Berrios, Antonio de Arriba

JMIR Pediatr Parent 2025 (Feb 05); 8:e55023

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Parental Experiences of Administering Pediatric Tuina for Sleep and Appetite in Early School-Aged Children With Attention-Deficit/Hyperactivity Disorder: Qualitative Study in Hong Kong

Shu-Cheng Chen, Kwai-Ching Lo, Han Li, Pong-Ming Wong, Lok-Yi Pang, Jing Qin, Wing-Fai Yeung

JMIR Pediatr Parent 2025 (Jan 30); 8:e65471

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Families’ Experiences With Family-Focused Web-Based Interventions for Improving Health: Qualitative Systematic Literature Review

Diana Zhu, Aimee L Dordevic, Zoe E Davidson, Simone Gibson

J Med Internet Res 2025 (Jan 30); 27:e58774

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Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial

Christina Reuther, Louise von Essen, Mudassir Imran Mustafa, Markus Saarijärvi, Joanne Woodford

JMIR Form Res 2025 (Jan 28); 9:e67171

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Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy

Neda Barbazi, Ji Youn Shin, Gurumurthy Hiremath, Carlye Anne Lauff

JMIR Form Res 2025 (Jan 27); 9:e63818

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Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Josefin Hagström, Charlotte Blease, Arja Harila, Päivi Lähteenmäki, Isabella Scandurra, Maria Hägglund

JMIR Pediatr Parent 2025 (Jan 27); 8:e63270

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Children’s and Their Parents’ Experiences With Home-Based Guided Hypnotherapy: Qualitative Study

Ilse N Ganzevoort, Adriëlla L van der Veen, Manna A Alma, Marjolein Y Berger, Gea A Holtman

JMIR Pediatr Parent 2025 (Jan 27); 8:e58301

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Using Community Engagement to Create a Telecoaching Intervention to Improve Self-Management in Adolescents and Young Adults With Cystic Fibrosis: Qualitative Study

Christina L Duncan, Emily F Muther, Jennifer J Lindwall, Kristine Durkin, Elizabeth Ruvalcaba, Eliza Williamson, Corrine Ahrabi-Nejad, Evelyn Bord, Angela Green, Megan L Harrison, Deepika Polineni

J Particip Med 2025 (Jan 20); 17:e49941

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Transformative Gamified Binocular Therapy for Unilateral Amblyopia in Young Children: Pilot Prospective Efficacy and Safety Study

Wenqing Zhu, Shuneng Gu, Jian Li, Jin Lin, Chanling Hu, Rui Liu

JMIR Serious Games 2025 (Jan 16); 13:e63384

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases

Tom A Doyle, Samantha L Vershaw, Erin Conboy, Colin M E Halverson

JMIR Hum Factors 2024 (Dec 30); 11:e57833

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Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Kanako Nakamura, Yuko Hamada, Ayaka Fujita, Seiichi Morokuma

Asian Pac Isl Nurs J 2024 (Dec 18); 8:e63946

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Improving Self-Efficacy, Quality of Life, and Glycemic Control in Adolescents With Type 1 Diabetes: Randomized Controlled Trial for the Evaluation of the Family-Centered Empowerment Model

Salah Alzawahreh, Candan Ozturk

JMIR Form Res 2024 (Dec 10); 8:e64463

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Development and Validation of a Prediction Model Using Sella Magnetic Resonance Imaging–Based Radiomics and Clinical Parameters for the Diagnosis of Growth Hormone Deficiency and Idiopathic Short Stature: Cross-Sectional, Multicenter Study

Kyungchul Song, Taehoon Ko, Hyun Wook Chae, Jun Suk Oh, Ho-Seong Kim, Hyun Joo Shin, Jeong-Ho Kim, Ji-Hoon Na, Chae Jung Park, Beomseok Sohn

J Med Internet Res 2024 (Nov 27); 26:e54641

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Touching Technology—Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study

Julie Elizabeth May McCullough, Marlene Sinclair, Jonathan Gillender, Brian McCrossan, Paul F Slater, Rosie Browne, Frank Casey

JMIR Pediatr Parent 2024 (Oct 22); 7:e54598

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Categorization of mHealth Coaching Technologies for Children or Adolescents With Type 1 Diabetes: Systematic Review

Pavel Trnka, Tahmineh Aldaghi, Jan Muzik

JMIR Pediatr Parent 2024 (Oct 10); 7:e50370

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Association of Family-Centered Care With Psychological Distress Among Caregivers of Children With Cancer at a Tertiary-Level Hospital in Ethiopia: Cross-Sectional Study

Leul Deribe, Eshetu Girma, Nataliya Lindström, Abdulkadir Gidey, Solomon Teferra, Adamu Addissie

JMIR Cancer 2024 (Oct 10); 10:e54715

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Stepped-Care Web-Based Parent Support Following Congenital Heart Disease: Protocol for a Randomized Controlled Trial

Marin Taylor, Bianca Christina Bondi, Brendan F Andrade, Stephanie H Au-Young, Vann Chau, Ashley Danguecan, Naddley Désiré, Ting Guo, Dragana Ostojic-Aitkens, Shari Wade, Steven Miller, Tricia Samantha Williams

JMIR Res Protoc 2024 (Oct 04); 13:e64216

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Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial

Nicole E Werner, Makenzie Morgen, Sophie Kooiman, Anna Jolliff, Gemma Warner, James Feinstein, Michelle Chui, Barbara Katz, Brittany Storhoff, Kristan Sodergren, Ryan Coller

JMIR Res Protoc 2024 (Sep 09); 13:e60621

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