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Holm et al., 2015 - Google Patents

Participant satisfaction with a preference-setting tool for the return of individual research results in pediatric genomic research

Holm et al., 2015

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Document ID
2734967334802427030
Author
Holm I
Iles B
Ziniel S
Bacon P
Savage S
Christensen K
Weitzman E
Green R
Huntington N
Publication year
Publication venue
Journal of Empirical Research on Human Research Ethics

External Links

Snippet

The perceived benefit of return of individual research results (IRRs) in accordance to participants' preferences in genomic biobank research is unclear. We developed an online preference-setting tool for return of IRRs based on the preventability and severity of a …
Continue reading at www.ncbi.nlm.nih.gov (HTML) (other versions)

Classifications

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    • G06Q50/00Systems or methods specially adapted for a specific business sector, e.g. utilities or tourism
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    • G06Q50/24Patient record management
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