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An Exploration of African-American Pregnant Women's Information-Seeking Behavior in Detroit

Published: 17 June 2020 Publication History

Abstract

In the United States, African-American women are three times more likely to die of pregnancy-related issues, and 57% more likely to have miscarriages than White women. In part, this is due to deficiencies in the information ecology serving pregnant mothers. We report on a qualitative study with 16 low-income, African-American, pregnant women from the Detroit area, focused on understanding their informational needs and information-seeking behavior. We find that our participants consumed information from multiple sources voraciously; treated formal medical sources as no more trustworthy than other information sources; sought corroborative evidence when making decisions; relied on video and social media sources; and voiced requests for material and social support more than for medical information. Among our recommendations are increased use of video as a means for pregnancy-related information dissemination -- particularly testimonials by experienced mothers with similar backgrounds -- and better integration of medically sound voices in spaces where mothers already congregate online.

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    ICTD '20: Proceedings of the 2020 International Conference on Information and Communication Technologies and Development
    June 2020
    340 pages
    ISBN:9781450387620
    DOI:10.1145/3392561
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    Published: 17 June 2020

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    Author Tags

    1. Information seeking
    2. health informatics
    3. low-income women
    4. online health community
    5. peer support
    6. pregnancy

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    • (2024)Understanding Online Parental Help-Seeking and Help-Giving in Early Childhood: The Design Challenges of Supporting Complex Parenting QuestionsProceedings of the ACM on Human-Computer Interaction10.1145/36536908:CSCW1(1-36)Online publication date: 26-Apr-2024
    • (2024)Understanding How Parents Deal With the Health Advice They Receive: A Qualitative Study and Implications for the Design of Message-based Health Dissemination Systems for Child HealthProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3661504(1319-1335)Online publication date: 1-Jul-2024
    • (2023)Engaging the Discourse of Empowerment for Marginalized Communities Through Research and Design ParticipationExtended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544549.3585678(1-7)Online publication date: 19-Apr-2023
    • (2023)Trauma-Informed Social Media: Towards Solutions for Reducing and Healing Online HarmProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581512(1-20)Online publication date: 19-Apr-2023
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    • (2022)Internet-Based Information Behavior After Pregnancy Loss: Interview StudyJMIR Formative Research10.2196/326406:3(e32640)Online publication date: 2-Mar-2022
    • (2022)The miscarriage circle of care: towards leveraging online spaces for social supportBMC Women's Health10.1186/s12905-022-01597-122:1Online publication date: 29-Jan-2022
    • (2022)Design Implications to Support Integrative Medicine in Pregnancy CareProceedings of the ACM on Human-Computer Interaction10.1145/35555406:CSCW2(1-32)Online publication date: 11-Nov-2022
    • (2022)A Descriptive Analysis of Cohesion within Virtual and Physical Small Groups of Mothers in Bandwidth-Constrained Communities in Cape Town.Proceedings of the 5th ACM SIGCAS/SIGCHI Conference on Computing and Sustainable Societies10.1145/3530190.3534793(152-164)Online publication date: 29-Jun-2022
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