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Exploring Socially-Focused Technologies that Can Help Children with Cancer Feel More Like Children Despite their Disease, Treatment and Environment

Published: 02 May 2019 Publication History

Abstract

This describes the background and motivation for dedicating my PhD to the exploration of socially-focused technologies for childhood cancer patients. Very little work has been done, especially in the field of human and child computer interaction, to explore the ways in which the hospital context in conjunction with the cancer experience impact children's social and emotional well-being during middle childhood (ages 6-12), and in turn how technology could improve their experience. My research seeks to (1) empower children with cancer by providing a platform for them to voice their own experiences with isolation, loneliness, and loss of a normal childhood, as well as how technology may better support their needs, (2) contribute design knowledge about how to support meaningful social interaction and play that is age and 'ability' appropriate, and (3) provide insight for future design and evaluation studies by better understanding constraints/opportunities for socially-focused technologies intended for use in a real world pediatric hospital environment.

References

[1]
Abdullah Al Mahmud, Omar Mubin, Johanna Renny Octavia, Suleman Shahid, LeeChin Yeo, Panos Markopoulos, and Jean-Bernard Martens. 2007. aMAZEd: Designing an Affective Social Game for Children. In Proceedings of the 6th International Conference on Interaction Design and Children (IDC '07), 53--56.
[2]
Bas Brederode, Panos Markopoulos, Mathieu Gielen, Arnold Vermeeren, and Huib de Ridder. 2005. pOwerball: The Design of a Novel Mixed-reality Game for Children with Mixed Abilities. In Proceedings of the 2005 Conference on Interaction Design and Children (IDC '05), 32--39.
[3]
Moira Burke, Lada A. Adamic, and Karyn Marciniak. 2013. Families on Facebook. In ICWSM. Retrieved October 26, 2016 from https://pdfs.semanticscholar.org/2ca3/ec8d4e7954df5850a91375e9d34e950ca970.pdf
[4]
Canadian Cancer Society. Childhood cancer statistics. www.cancer.ca. Retrieved September 5, 2016 from http://www.cancer.ca/en/cancer-information/cancer-101/childhood-cancer-statistics/?region=bc
[5]
Canadian Cancer Society. Cancer Cell Development. www.cancer.ca. Retrieved September 5, 2016 from http://www.cancer.ca/en/cancer-information/cancer-101/what-is-cancer/cancer-cell-development/?region=bc
[6]
John W. Creswell. 2013. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. SAGE Publications, Incorporated, Thousand Oaks, CA.
[7]
Larry F. Ellison, Prithwish De, Leslie S. Mery, and Paul E. Grundy. 2009. Canadian cancer statistics at a glance: cancer in children. CMAJ?: Canadian Medical Association Journal 180, 4: 422--424.
[8]
Hala Fakhry, Matthew DO Goldenberg, Gregory Sayer, San San MD Aye, Kara MD || Bagot, Sarah BS Pi, Rassil Ghazzaoui, Ngoctram DO Vo, Shanthi MD ++ Gowrinathan, Michael MD Bolton, and Waguih William MD IsHak. 2013. Health-Related Quality of Life in Childhood Cancer. {Review}. Journal of Developmental 34, 6: 419--440.
[9]
Government of Canada, Public Health Agency of Canada. 2009. The Cancer in Young People in Canada program Chronic Diseases - Public Health Agency Canada. Retrieved September 5, 2016 from http://www.phac-aspc.gc.ca/cdmc/cancer/childhood_cancer-cancer_enfants-eng.php
[10]
Government of Canada, Public Health Agency of Canada. 2012. Cancer in Children in Canada (0--14 years) - Public Health Agency of Canada. Retrieved September 5, 2016 from http://www.phac-aspc.gc.ca/cd-mc/cancer/fs-fi/cancerchild-enfant/index-eng.php
[11]
Katherine Isbister. 2016. Connecting through play. ACM Interactions XXIII.4, 27--33.
[12]
Anne F. Klassen, Sonya J. Strohm, Heleen Maurice-Stam, and Martha A. Grootenhuis. 2009. Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures. Supportive Care in Cancer 18, 9: 1207--1217.
[13]
Susanne Lindberg, Pontus Wärnestå, Jens Nygren, and Petra Svedberg. 2014. Designing Digital Peer Support for Children: Design Patterns for Social Interaction. In Proceedings of the 2014 Conference on Interaction Design and Children (IDC '14), 47--56.
[14]
Leslie S. Liu, Kori M. Inkpen, and Wanda Pratt. 2015. "I'M Not Like My Friends": Understanding How Children with a Chronic Illness Use Technology to Maintain Normalcy. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15), 1527--1539.
[15]
Joseph A. Maxwell. 2012. Qualitative Research Design: An Interactive Approach. SAGE Publications, Incorporated, Thousand Oaks, CA.
[16]
Asaki Miura, Takashi Isezaki, and Kenji Suzuki. 2013. Social Playware with an Enhanced Reach for Facilitating Group Interaction. In CHI '13 Extended Abstracts on Human Factors in Computing Systems (CHI EA '13), 1155--1160.
[17]
Karen Moody, Marc Meyer, Carol A. Mancuso, Mary Charlson, and Laura Robbins. 2006. Exploring concerns of children with cancer. Supportive Care in Cancer 14, 9: 960--966.
[18]
Ben Schneiderman, Catherine Plaisant, Maxine Cohen, Steven Jacobs, Niklas Elmqvist, and Nicholoas Diakoplous. 2016. Grand challenges for HCI researchers | ACM Interactions. ACM Interactions XXIII.5, 24--25.
[19]
Pontus Wärnestå and Jens Nygren. 2013. Building an Experience Framework for a Digital Peer Support Service for Children Surviving from Cancer. In Proceedings of the 12th International Conference on Interaction Design and Children (IDC '13), 269--272.
[20]
Cancer in Children and Adolescents. National Cancer Institute. Retrieved October 31, 2016 from https://www.cancer.gov/types/childhood-cancers/child-adolescent-cancers-fact-sheet

Cited By

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  • (2023)Rethinking the Role of AI with Physicians in Oncology: Revealing Perspectives from Clinical and Research WorkflowsProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581506(1-19)Online publication date: 19-Apr-2023

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  1. Exploring Socially-Focused Technologies that Can Help Children with Cancer Feel More Like Children Despite their Disease, Treatment and Environment

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      cover image ACM Conferences
      CHI EA '19: Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
      May 2019
      3673 pages
      ISBN:9781450359719
      DOI:10.1145/3290607
      Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

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      Published: 02 May 2019

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      Author Tags

      1. child-computer interaction
      2. childhood cancer
      3. design research
      4. in-situ hospital studies
      5. social health

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      • (2023)Rethinking the Role of AI with Physicians in Oncology: Revealing Perspectives from Clinical and Research WorkflowsProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581506(1-19)Online publication date: 19-Apr-2023

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