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research-article

So, I Can Feel Normal: Participatory Design for Accessible Social Media Sites for Individuals with Traumatic Brain Injury

Authors:

Bilge MutluAuthors Info & Claims

CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

Article No.: 335, Pages 1 - 19

https://doi.org/10.1145/3544548.3581222

Published: 19 April 2023 Publication History

Abstract

Traumatic brain injury (TBI) can result in chronic sensorimotor, cognitive, psychosocial, and communication challenges that can limit social participation. Social media can be a useful outlet for social participation for individuals with TBI, but there are barriers to access. While research has drawn attention to the nature of access barriers, few studies have investigated technological solutions to address these barriers, particularly considering the perspectives of individuals with TBI. To address this gap in knowledge, we used a participatory approach to engage 10 adults with TBI in conceptualizing tools to address their challenges accessing Facebook. Participants described multifaceted challenges in using social media, including interface overload, social comparisons, and anxiety over self-presentation and communication after injury. They discussed their needs and preferences and generated ideas for design solutions. Our work contributes to designing assistive and accessibility technology to facilitate an equal access to the benefits of social media for individuals with TBI.

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Cited By

Hu YLim HKakonge LMitchell JJohnson HTurkstra LDuff MToma CMutlu B(2024)SMART-TBI: Design and Evaluation of the Social Media Accessibility and Rehabilitation Toolkit for Users with Traumatic Brain InjuryProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675641(1-19)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675641
Wimer BSouth LWu KSzafir DBorkin MMetoyer R(2024)Beyond Vision Impairments: Redefining the Scope of Accessible Data RepresentationsIEEE Transactions on Visualization and Computer Graphics10.1109/TVCG.2024.335656630:12(7619-7636)Online publication date: 1-Dec-2024
https://dl.acm.org/doi/10.1109/TVCG.2024.3356566
Toma CHwang JKakonge LMorrow ETurkstra LMutlu BDuff M(2024)Does Facebook Use Provide Social Benefits to Adults with Traumatic Brain Injury?Cyberpsychology, Behavior, and Social Networking10.1089/cyber.2023.021127:3(214-220)Online publication date: 1-Mar-2024
https://doi.org/10.1089/cyber.2023.0211
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Index Terms

So, I Can Feel Normal: Participatory Design for Accessible Social Media Sites for Individuals with Traumatic Brain Injury
1. Human-centered computing
  1. Accessibility
    1. Empirical studies in accessibility

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CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

April 2023

14911 pages

ISBN:9781450394215

DOI:10.1145/3544548

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Google Research, USA60006191
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Massachusetts Institute of Technology, USA60022195
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University of Nottingham, UK60015138

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Cited By

Hu YLim HKakonge LMitchell JJohnson HTurkstra LDuff MToma CMutlu B(2024)SMART-TBI: Design and Evaluation of the Social Media Accessibility and Rehabilitation Toolkit for Users with Traumatic Brain InjuryProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675641(1-19)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675641
Wimer BSouth LWu KSzafir DBorkin MMetoyer R(2024)Beyond Vision Impairments: Redefining the Scope of Accessible Data RepresentationsIEEE Transactions on Visualization and Computer Graphics10.1109/TVCG.2024.335656630:12(7619-7636)Online publication date: 1-Dec-2024
https://dl.acm.org/doi/10.1109/TVCG.2024.3356566
Toma CHwang JKakonge LMorrow ETurkstra LMutlu BDuff M(2024)Does Facebook Use Provide Social Benefits to Adults with Traumatic Brain Injury?Cyberpsychology, Behavior, and Social Networking10.1089/cyber.2023.021127:3(214-220)Online publication date: 1-Mar-2024
https://doi.org/10.1089/cyber.2023.0211
Jacks Siva Sabesh SJenefa AEdward Naveen VSanthiya PSangeetha RLincy A(2024)AI-Powered Trauma Chat Assistance: Identifying Trauma Symptoms from Voice and Text CommunicationsInventive Communication and Computational Technologies10.1007/978-981-97-7710-5_26(351-361)Online publication date: 15-Dec-2024
https://doi.org/10.1007/978-981-97-7710-5_26

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