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Personal informatics in chronic illness management

Published: 29 May 2013 Publication History

Abstract

Many people with chronic illness suffer from debilitating symptoms or episodes that inhibit normal day-to-day function. Pervasive tools offer the possibility to help manage these conditions, particularly by helping people understand their conditions. But, it is unclear how to design these tools, as prior designs have focused on effortful tracking and many see those tools as a burden to use. We report here on an interview study with 12 individuals with chronic illnesses who collect personal data. We learn that these people are motivated through self-discovery and curiosity. We explore how these concepts may support the design of tools that engage curiosity and encourage self-discovery, rather than emphasize the behaviour change aspect of chronic illness management.

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      Published In

      cover image Guide Proceedings
      GI '13: Proceedings of Graphics Interface 2013
      May 2013
      243 pages
      ISBN:9781482216806

      Sponsors

      • The Canadian Human-Computer Communications Society / Société Canadienne du Dialogue Humaine Machine (CHCCS/SCDHM)

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      Canadian Information Processing Society

      Canada

      Publication History

      Published: 29 May 2013

      Author Tags

      1. chronic disease management
      2. healthcare
      3. personal informatics
      4. qualitative studies

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      Overall Acceptance Rate 206 of 508 submissions, 41%

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      • (2024)Tracking During Ramadan: Examining the Intersection of Menstrual and Religious Tracking Practices Among Muslim Women in the United StatesProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642374(1-19)Online publication date: 11-May-2024
      • (2023)“I left my legacy, told my story”: Understanding Older Adults’ Tracking Practices to Promote Active AgingProceedings of the 2023 ACM Designing Interactive Systems Conference10.1145/3563657.3596083(459-475)Online publication date: 10-Jul-2023
      • (2023)The Perceived Utility of Smartphone and Wearable Sensor Data in Digital Self-tracking Technologies for Mental HealthProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581209(1-16)Online publication date: 19-Apr-2023
      • (2022)Bridging Community, History, and Culture in Personal Informatics ToolsProceedings of the ACM on Human-Computer Interaction10.1145/34928486:GROUP(1-23)Online publication date: 14-Jan-2022
      • (2022)MoodTurner: A Self-Tracking Smart Jewellery to Support Awareness and Reflection in Sensory Processing Sensitivity Self-CareExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3519803(1-6)Online publication date: 27-Apr-2022
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