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Understanding patients: participatory approaches for the user evaluation of vital data presentation

Published: 17 June 2002 Publication History

Abstract

The objective of our research was to undertake first steps to analyse patient access to their electronic health records (EHR) as a crucial universal access issue: Why is patient involvement becoming a key issue, what approaches are available to learn more about patient attitudes and needs, which concrete outcomes can be obtained from such research? The paper outlines a reference scenario for tele home monitoring of chronically ill patients including measurement devices and system environment, provides an assessment of selected participatory approaches like questionnaires, interviews and group discussions, and reports about universal access design issues from a patient perspective. Concrete conclusions concerning access devices and presentation of EHR contents are developed. To allow all citizens equality in access, to benefit from advances in eHealth and to avoid a "Medical Divide", creativity, innovations and support are needed to progress towards a true Information Society for all also in the health arena.

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        cover image ACM Conferences
        CUU '03: Proceedings of the 2003 conference on Universal usability
        November 2003
        166 pages
        ISBN:158113701X
        DOI:10.1145/957205
        • cover image ACM SIGCAPH Computers and the Physically Handicapped
          ACM SIGCAPH Computers and the Physically Handicapped Just Accepted
          June-September 2002
          157 pages
          ISSN:0163-5727
          DOI:10.1145/960201
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        Association for Computing Machinery

        New York, NY, United States

        Publication History

        Published: 17 June 2002

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        Author Tags

        1. assessment
        2. electronic health record
        3. participatory approaches
        4. patient
        5. telemonitoring
        6. universal access
        7. validation

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        CUU03
        CUU03: Conference on Universal Usability 2003
        November 10 - 11, 2003
        British Columbia, Vancouver, Canada

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        • (2013)An investigation of a healthcare management system with the use of multimodal interaction and 3D simulationJournal of Enterprise Information Management10.1108/1741039131128962226:1/2(183-197)Online publication date: 8-Feb-2013
        • (2013)Switching from Traditional Medical Applications to Mobile Devices: Cardiac and Cochlear ImplantsWireless Mobile Communication and Healthcare10.1007/978-3-642-37893-5_16(138-145)Online publication date: 2013
        • (2012)Implants cochléairesProceedings of the 2012 Conference on Ergonomie et Interaction homme-machine10.1145/2652574.2653416(97-104)Online publication date: 16-Oct-2012
        • (2010)A patient-centered health monitoring systemWireless Health 201010.1145/1921081.1921109(196-197)Online publication date: 5-Oct-2010
        • (2010)Supporting medical communication with a multimodal surface computerCHI '10 Extended Abstracts on Human Factors in Computing Systems10.1145/1753846.1753880(2899-2902)Online publication date: 9-Apr-2010
        • (2010)Exploring the accessibility and appeal of surface computing for older adult health care supportProceedings of the SIGCHI Conference on Human Factors in Computing Systems10.1145/1753326.1753461(907-916)Online publication date: 10-Apr-2010
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        • (undefined)Privacy and Healthcare Informatics: A Critical AnalysisSSRN Electronic Journal10.2139/ssrn.2902243
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