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From research participant to co-researcher: Chloe's story on co-designing inclusive technologies with people with intellectual disability

Published: 27 October 2024 Publication History

Abstract

This experience report offers the perspective of the first author, Chloe, a woman with intellectual disability, on participation in technology co-design and her views of how technology, particularly social robots, can be designed for everyone’s benefit. The core of the report are quotes from Chloe in response to questions of the research team, with some context in terms of literature and background for her experiences. A short discussion contributed by the academic researcher authors reflects on relationship building throughout series of co-design research projects and highlights future directions for inclusive co-design research, the nuances between co-design research participants and co-researchers.

References

[1]
Manesha Andradi, Filip Bircanin, Laurianne Sitbon, and Margot Brereton. 2021. Expanding Designing for One to Invite Others Through Reverse Inclusion. In Proceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility(ASSETS ’21). Association for Computing Machinery, New York, NY, USA, 1–4. https://doi.org/10.1145/3441852.3476517
[2]
Saminda Sundeepa Balasuriya, Laurianne Sitbon, Andrew A. Bayor, Maria Hoogstrate, and Margot Brereton. 2018. Use of Voice Activated Interfaces by People with Intellectual Disability. In Proceedings of the 30th Australian Conference on Computer-Human Interaction(OzCHI ’18). ACM, New York, NY, USA, 102–112. https://doi.org/10.1145/3292147.3292161
[3]
Saminda Sundeepa Balasuriya, Laurianne Sitbon, and Margot Brereton. 2022. A Support Worker Perspective on Use of New Technologies by People with Intellectual Disabilities. ACM Transactions on Accessible Computing 15, 3 (July 2022), 21:1–21:21. https://doi.org/10.1145/3523058
[4]
Saminda Sundeepa Balasuriya, Laurianne Sitbon, Margot Brereton, and Stewart Koplick. 2020. How Can Social Robots Spark Collaboration and Engagement among People with Intellectual Disability?. In Proceedings of the 31st Australian Conference on Human-Computer-Interaction(OzCHI ’19). Association for Computing Machinery, New York, NY, USA, 209–220. https://doi.org/10.1145/3369457.3370915
[5]
Andrew A. Bayor, Margot Brereton, Laurianne Sitbon, Bernd Ploderer, Filip Bircanin, Benoit Favre, and Stewart Koplick. 2021. Toward a Competency-based Approach to Co-designing Technologies with People with Intellectual Disability. ACM Transactions on Accessible Computing 14, 2 (June 2021), 1–33. https://doi.org/10.1145/3450355
[6]
Andrew A. Bayor, Laurianne Sitbon, Bernd Ploderer, Filip Bircanin, and Margot Brereton. 2019. "TechShops" Engaging Young Adults with Intellectual Disability in Exploratory Design Research. In Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems(CHI EA ’19). ACM, New York, NY, USA, CS31:1–CS31:8. https://doi.org/10.1145/3290607.3299056
[7]
Filip Bircanin, Margot Brereton, Laurianne Sitbon, Bernd Ploderer, Andrew Azaabanye Bayor, and Stewart Koplick. 2021. Including Adults with Severe Intellectual Disabilities in Co-Design through Active Support. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems(CHI ’21). Association for Computing Machinery, New York, NY, USA, 1–12. https://doi.org/10.1145/3411764.3445057
[8]
Elin A. Björling and Emma Rose. 2019. Participatory Research Principles in Human-Centered Design: Engaging Teens in the Co-Design of a Social Robot. Multimodal Technologies and Interaction 3, 1 (2019). https://doi.org/10.3390/mti3010008
[9]
Margot Brereton, Laurianne Sitbon, Muhammad Haziq Lim Abdullah, Mark Vanderberg, and Stewart Koplick. 2015. Design after Design to Bridge between People Living with Cognitive or Sensory Impairments, Their Friends and Proxies. CoDesign 11, 1 (Jan. 2015), 4–20. https://doi.org/10.1080/15710882.2015.1009471
[10]
R. Brown, L. Sitbon, L. Fell, S. Koplick, C. Beaumont, and M. Brereton. 2016. Design Insights into Embedding Virtual Reality Content into Life Skills Training for People with Intellectual Disability. Proceedings of the 28th Australian Computer-Human Interaction Conference, OzCHI 2016 (2016), 581–585. https://doi.org/10.1145/3010915.3010956
[11]
Anne-Marie Callus. 2021. Inclusive Research: Doing Participatory and Emancipatory Research with People with Intellectual Disabilities. In Handbook of Disability: Critical Thought and Social Change in a Globalizing World, Marcia H. Rioux, José Viera, Alexis Buettgen, and Ezra Zubrow (Eds.). Springer Nature, Singapore, 1–15. https://doi.org/10.1007/978-981-16-1278-7_66-1
[12]
Aduén Darriba Frederiks, Johanna Renny Octavia, Cesar Vandevelde, and Jelle Saldien. 2019. Towards Participatory Design of Social Robots. In Human-Computer Interaction – INTERACT 2019, David Lamas, Fernando Loizides, Lennart Nacke, Helen Petrie, Marco Winckler, and Panayiotis Zaphiris (Eds.). Springer International Publishing, Cham, 527–535.
[13]
Shanjana Farhin, Laurianne Sitbon, and Margot Brereton. 2018. Insights from People with ID on a Transport Application. In Proceedings of the 30th Australian Conference on Computer-Human Interaction - OzCHI \textquotesingle18. ACM Press. https://doi.org/10.1145/3292147.3292184
[14]
Mona Leigh Guha, Allison Druin, and Jerry Alan Fails. 2008. Designing with and for children with special needs: an inclusionary model. In Proceedings of the 7th International Conference on Interaction Design and Children (Chicago, Illinois) (IDC ’08). Association for Computing Machinery, New York, NY, USA, 61–64. https://doi.org/10.1145/1463689.1463719
[15]
Mona Leigh Guha, Allison Druin, and Jerry Alan Fails. 2013. Cooperative Inquiry revisited: Reflections of the past and guidelines for the future of intergenerational co-design. International Journal of Child-Computer Interaction 1, 1 (2013), 14–23. https://doi.org/10.1016/j.ijcci.2012.08.003
[16]
Gillian R. Hayes. 2020. Inclusive and Engaged HCI. Interactions 27, 2 (Feb. 2020), 26–31. https://doi.org/10.1145/3378561
[17]
Jessica Korte. 2020. Patterns and Themes in Designing with Children. Foundations and Trends® in Human–Computer Interaction 13, 2 (2020), 70–164. https://doi.org/10.1561/1100000079
[18]
Alicia Mitchell, Laurianne Sitbon, Saminda Sundeepa Balasuriya, Stewart Koplick, and Chris Beaumont. 2021. Social Robots in Learning Experiences of Adults with Intellectual Disability: An Exploratory Study. In Human-Computer Interaction – INTERACT 2021. Vol. 12932. Springer International Publishing, Cham, 266–285. https://doi.org/10.1007/978-3-030-85623-6_17
[19]
Ravihansa Rajapakse, Margot Brereton, and Laurianne Sitbon. 2019. A Respectful Design Approach to Facilitate Codesign with People with Cognitive or Sensory Impairments and Makers. CoDesign (May 2019), 1–29. https://doi.org/10.1080/15710882.2019.1612442
[20]
Janet C. Read, Daniel Fitton, and Matthew Horton. 2014. Giving ideas an equal chance: inclusion and representation in participatory design with children. In Proceedings of the 2014 Conference on Interaction Design and Children (Aarhus, Denmark) (IDC ’14). Association for Computing Machinery, New York, NY, USA, 105–114. https://doi.org/10.1145/2593968.2593986
[21]
Tanya N. Riches, Patricia M. O’Brien, and The CDS Inclusive Research Network. 2020. Can We Publish Inclusive Research Inclusively? Researchers with Intellectual Disabilities Interview Authors of Inclusive Studies. British Journal of Learning Disabilities 48, 4 (Dec. 2020), 272–280. https://doi.org/10.1111/bld.12324
[22]
Nicholas L Robertson, Filip Bircanin, and Laurianne Sitbon. 2021. Designing a Pictorial Communication Web Application With People With Intellectual Disability. In Proceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility(ASSETS ’21). Association for Computing Machinery, Virtual Event, USA, 1–4. https://doi.org/10.1145/3441852.3476527
[23]
Sirinthip Roomkham and Laurianne Sitbon. 2024. Restarting the Conversation about Conversational Search: Exploring New Possibilities for Multimodal and Collaborative Systems with People with Intellectual Disability. In Proceedings of the 2024 Conference on Human Information Interaction and Retrieval(CHIIR ’24). Association for Computing Machinery, New York, NY, USA, 231–242. https://doi.org/10.1145/3627508.3638339
[24]
Laurianne Sitbon, Saminda Balasuriya, and Liam Percy. 2023. Guiding Non-Verbal Conversation about Meal Choices with Intelligent Technologies. In Proceedings of OzCHI 2023. Te Whanganui-a-tara (Wellington), Aotearoa (New Zealand). https://doi.org/10.1145/3638380.3638443
[25]
Laurianne Sitbon, Gerd Berget, and Margot Brereton. 2023. Perspectives of Neurodiverse Participants in Interactive Information Retrieval. Foundations and Trends® in Information Retrieval 17, 2 (2023), 124–243. https://doi.org/10.1561/1500000086
[26]
Laurianne Sitbon, Margot Brereton, and Filip Bircanin. 2024. Reframing Search and Recommendation as Opportunities for Communication for People with Intellectual Disability. Human–Computer Interaction 39, 3-4 (July 2024), 206–224. https://doi.org/10.1080/07370024.2023.2247394
[27]
Laurianne Sitbon, Ross Brown, and Lauren Fell. 2019. Turning Heads: Designing Engaging Immersive Video Experiences to Support People with Intellectual Disability When Learning Everyday Living Skills. In The 21st International ACM SIGACCESS Conference on Computers and Accessibility. 171–182. https://doi.org/10.1145/3308561.3353787
[28]
Laurianne Sitbon and Shanjana Farhin. 2017. Co-Designing Interactive Applications with Adults with Intellectual Disability: A Case Study. In Proceedings of the 29th Australian Conference on Computer-Human Interaction(OzCHI ’17). Association for Computing Machinery, New York, NY, USA, 487–491. https://doi.org/10.1145/3152771.3156163
[29]
Laurianne Sitbon, Benoit Favre, Margot Brereton, Stewart Koplick, and Lauren Fell. 2020. Engaging the Abilities of Participants with Intellectual Disabilityin IIR Research. In Proceedings of CHIIR 2020. Vancouver, BC, Canada. https://doi.org/10.1145/3343413.3377972
[30]
Vanessa Vega-Córdova, Izaskun Álvarez-Aguado, Cristina Jenaro, Herbert Spencer-González, and Mauricio Díaz Araya. 2020. Analyzing Roles, Barriers, and Supports of Co-researchers in Inclusive Research. Journal of Policy and Practice in Intellectual Disabilities 17, 4 (Dec. 2020), 318–331. https://doi.org/10.1111/jppi.12354
[31]
Adele Vogel and Jessica L Korte. 2024. What Factors Motivate Culturally Deaf People to Want Assistive Technologies?. In Extended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems(CHI EA ’24). Association for Computing Machinery, New York, NY, USA, Article 371, 7 pages. https://doi.org/10.1145/3613905.3650871
[32]
Cara Wilson, Laurianne Sitbon, Bernd Ploderer, Jeremy Opie, and Margot Brereton. 2020. Self-Expression by Design: Co-Designing the ExpressiBall with Minimally-Verbal Children on the Autism Spectrum. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, New York, NY, USA, 1–13.

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        cover image ACM Conferences
        ASSETS '24: Proceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility
        October 2024
        1475 pages
        ISBN:9798400706776
        DOI:10.1145/3663548
        Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

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        Published: 27 October 2024

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        Author Tags

        1. Accessibility
        2. Inclusion
        3. Intellectual Disabilities
        4. Museums
        5. Social Robots
        6. User Experience

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