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An Exploratory Study of Shared Decision-Making (SDM) for Older Adult Patients with Chronic Diseases

Published: 14 October 2023 Publication History

Abstract

Shared decision-making (SDM) is a central feature of clinical practice guidelines, and it is a key way to improve long-term communication and relationships between older adult patients and physicians. Previous studies have found that patients’ engagement in decision-making is closely associated with patient satisfaction and with improved treatment outcomes. However, medical decision-making can be complex. Healthcare often requires decisions that are time-sensitive, and when confronted with multiple possible treatments it is necessary to carefully assess the impact of each treatment on health outcomes and to consider potential harms as well as benefits. Effective communication tools can be useful for conducting this assessment in a shared fashion. In the current project, we conducted interviews with 12 participants, including seven older adults with chronic diseases and five clinicians who work with this patient population, with the goal of better understanding both groups’ perspectives and needs in the clinical setting. The interviews focused on the potential benefits that can be derived from an SDM-based technological platform, and the findings can be useful in the future design of such a platform.

References

[1]
Samira Abbasgholizadeh Rahimi, Matthew Menear, Hubert Robitaille, and France Légaré. 2017. Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?Global Health Action 10, sup3 (June 2017), 1332259. https://doi.org/10.1080/16549716.2017.1332259
[2]
Seljelid B, Varsi C, Solberg Nes L, Øystese Ka, and Børøsund E. 2022. Feasibility of a Digital Patient-Provider Communication Intervention to Support Shared Decision-Making in Chronic Health Care, InvolveMe: Pilot Study. JMIR formative research 6, 4 (April 2022). https://doi.org/10.2196/34738 Publisher: JMIR Form Res.
[3]
D. S. Brody. 1980. The patient’s role in clinical decision-making. Annals of Internal Medicine 93, 5 (Nov. 1980), 718–722. https://doi.org/10.7326/0003-4819-93-5-718
[4]
Hao-Fei Cheng, Ruotong Wang, Zheng Zhang, Fiona O’Connell, Terrance Gray, F. Maxwell Harper, and Haiyi Zhu. 2019. Explaining Decision-Making Algorithms through UI: Strategies to Help Non-Expert Stakeholders. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems(CHI ’19). Association for Computing Machinery, New York, NY, USA, 1–12. https://doi.org/10.1145/3290605.3300789
[5]
Angela Coulter, Diana Stilwell, Jennifer Kryworuchko, Patricia Dolan Mullen, Chirk Jenn Ng, and Trudy van der Weijden. 2013. A systematic development process for patient decision aids. BMC Medical Informatics and Decision Making 13, Suppl 2 (Nov. 2013), S2. https://doi.org/10.1186/1472-6947-13-S2-S2
[6]
Selena Davis, Abdul Roudsari, Rebecca Raworth, Karen L Courtney, and Lee MacKay. 2017. Shared decision-making using personal health record technology: a scoping review at the crossroads. Journal of the American Medical Informatics Association 24, 4 (July 2017), 857–866. https://doi.org/10.1093/jamia/ocw172
[7]
Carlos De Las Cuevas, Wenceslao Peñate, Lilisbeth Perestelo-Pérez, and Pedro Serrano-Aguilar. 2013. Shared decision making in psychiatric practice and the primary care setting is unique, as measured using a 9-item Shared Decision Making Questionnaire (SDM-Q-9). Neuropsychiatric Disease and Treatment 9 (2013), 1045–1052. https://doi.org/10.2147/NDT.S49021
[8]
Glyn Elwyn, Marie Anne Durand, Julia Song, Johanna Aarts, Paul J. Barr, Zackary Berger, Nan Cochran, Dominick Frosch, Dariusz Galasiński, Pål Gulbrandsen, Paul K. J. Han, Martin Härter, Paul Kinnersley, Amy Lloyd, Manish Mishra, Lilisbeth Perestelo-Perez, Isabelle Scholl, Kounosuke Tomori, Lyndal Trevena, Holly O. Witteman, and Trudy Van der Weijden. 2017. A three-talk model for shared decision making: multistage consultation process. BMJ (Clinical research ed.) 359 (Nov. 2017), j4891. https://doi.org/10.1136/bmj.j4891
[9]
Christine M. Gaston and Geoffrey Mitchell. 2005. Information giving and decision-making in patients with advanced cancer: A systematic review. Social Science & Medicine 61, 10 (Nov. 2005), 2252–2264. https://doi.org/10.1016/j.socscimed.2005.04.015
[10]
Manh-Tung Ho, Ngoc-Thang B. Le, Peter Mantello, Manh-Toan Ho, and Nader Ghotbi. 2023. Understanding the acceptance of emotional artificial intelligence in Japanese healthcare system: A cross-sectional survey of clinic visitors’ attitude. Technology in Society 72 (Feb. 2023), 102166. https://doi.org/10.1016/j.techsoc.2022.102166
[11]
Tamara L. McCarron, Karen Moffat, Gloria Wilkinson, Sandra Zelinsky, Jamie M. Boyd, Deborah White, Derek Hassay, Diane L. Lorenzetti, Nancy J. Marlett, and Thomas Noseworthy. 2019. Understanding patient engagement in health system decision-making: a co-designed scoping review. Systematic Reviews 8, 1 (April 2019), 97. https://doi.org/10.1186/s13643-019-0994-8
[12]
Annette M. O’Connor, John E. Wennberg, France Legare, Hilary A. Llewellyn-Thomas, Benjamin W. Moulton, Karen R. Sepucha, Andrea G. Sodano, and Jaime S. King. 2007. Toward the ’tipping point’: decision aids and informed patient choice. Health Affairs (Project Hope) 26, 3 (2007), 716–725. https://doi.org/10.1377/hlthaff.26.3.716
[13]
Ruth E. Pel-Littel, Bianca M. Buurman, Marjolein H. van de Pol, Jos W. R. Twisk, Linda R. Tulner, Mirella M. Minkman, Wilma J. M. Scholte Op Reimer, and Julia C. M. van Weert. 2023. Effects of a shared decision making intervention for older adults with multiple chronic conditions: the DICO study. BMC medical informatics and decision making 23, 1 (March 2023), 42. https://doi.org/10.1186/s12911-023-02099-2
[14]
Arwen H. Pieterse, Anne M. Stiggelbout, and Victor M. Montori. 2019. Shared Decision Making and the Importance of Time. JAMA 322, 1 (July 2019), 25–26. https://doi.org/10.1001/jama.2019.3785
[15]
L. Aubree Shay and Jennifer Elston Lafata. 2014. Understanding patient perceptions of shared decision making. Patient Education and Counseling 96, 3 (Sept. 2014), 295–301. https://doi.org/10.1016/j.pec.2014.07.017
[16]
Julia C. M. van Weert, Barbara C. van Munster, Remco Sanders, René Spijker, Lotty Hooft, and Jesse Jansen. 2016. Decision aids to help older people make health decisions: a systematic review and meta-analysis. BMC Medical Informatics and Decision Making 16, 1 (April 2016), 45. https://doi.org/10.1186/s12911-016-0281-8
[17]
Himanshu Verma, Jakub Mlynar, Roger Schaer, Julien Reichenbach, Mario Jreige, John Prior, Florian Evéquoz, and Adrien Depeursinge. 2023. Rethinking the Role of AI with Physicians in Oncology: Revealing Perspectives from Clinical and Research Workflows. In Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems(CHI ’23). Association for Computing Machinery, New York, NY, USA, 1–19. https://doi.org/10.1145/3544548.3581506
[18]
Thomas H. Wieringa, Rene Rodriguez-Gutierrez, Gabriela Spencer-Bonilla, Maartje de Wit, Oscar J. Ponce, Manuel F. Sanchez-Herrera, Nataly R. Espinoza, Yaara Zisman-Ilani, Marleen Kunneman, Linda J. Schoonmade, Victor M. Montori, and Frank J. Snoek. 2019. Decision aids that facilitate elements of shared decision making in chronic illnesses: a systematic review. Systematic Reviews 8, 1 (May 2019), 121. https://doi.org/10.1186/s13643-019-1034-4

Cited By

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  • (2024)"They Make Us Old Before We're Old": Designing Ethical Health Technology with and for Older AdultsProceedings of the ACM on Human-Computer Interaction10.1145/36870178:CSCW2(1-30)Online publication date: 8-Nov-2024
  • (2024)Outcome First or Overview First? Optimizing Patient-Oriented Framework for Evidence-Based Healthcare Treatment Selections with XAI ToolsCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681859(248-254)Online publication date: 11-Nov-2024
  • (2024)Advancing Patient-Centered Shared Decision-Making with AI Systems for Older Adult Cancer PatientsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642353(1-20)Online publication date: 11-May-2024

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cover image ACM Conferences
CSCW '23 Companion: Companion Publication of the 2023 Conference on Computer Supported Cooperative Work and Social Computing
October 2023
596 pages
ISBN:9798400701290
DOI:10.1145/3584931
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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Publication History

Published: 14 October 2023

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Author Tags

  1. Chronic diseases
  2. Clinical decision making
  3. Older adult patients
  4. Qualitative method

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Cited By

View all
  • (2024)"They Make Us Old Before We're Old": Designing Ethical Health Technology with and for Older AdultsProceedings of the ACM on Human-Computer Interaction10.1145/36870178:CSCW2(1-30)Online publication date: 8-Nov-2024
  • (2024)Outcome First or Overview First? Optimizing Patient-Oriented Framework for Evidence-Based Healthcare Treatment Selections with XAI ToolsCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681859(248-254)Online publication date: 11-Nov-2024
  • (2024)Advancing Patient-Centered Shared Decision-Making with AI Systems for Older Adult Cancer PatientsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642353(1-20)Online publication date: 11-May-2024

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