Co-Design with People Who Have Had a Stroke to Better Understand the Transition from Hospital to Home: A Narrative Account

In this paper we report on co-design with people with a lived experience of stroke and their caregivers as part of an ongoing mobile health project to provide better support in the transition from hospital to home. This project was situated in the context of a publicly funded healthcare service in Australia. Our co-design approach involved creating collages and sharing of personal experiences to reflect on support and information received. We focus on the collage and the narrative account of a young woman that illustrates the experiences of living with stroke during this transition and “infrastructuring work” to address gaps in information, services, and support. These gaps did not appear within the healthcare service, but rather in the transition between the healthcare service and home, and also in the transition back to work. Based on these insights, we discuss the design directions for a mobile health prototype to better tailor information and to provide timely support.