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Design Implications for Health Technology to Support LGBTQ+ Community: a literature review

Published: 02 February 2021 Publication History

Abstract

Despite being overlooked by technology designers, digital sources and online channels are still the most popular places for LGBTQ+ people to seek health information after medical professionals, due to fears of discrimination and stigma [5, 4, 6]. Most designs still only ask individuals to identify as one of the binary sex classifications, male or female, and assume heterosexuality, instantly eliminating the appropriate options for over 10 million people in the United States alone who do not fit into those constraints [4]. This creates a void of information for and about LGBTQ+ communities.
However, due to the lack of a more robust LGBTQ+ identification system, computer scientists and designers continue to ignore a crucial LGBTQ+ demographic. It also creates inaccuracies in health information technologies and their resulting data sets, which fuels disparity and discrimination. This paper contributes to the health service research community a set of design implications for integrating medically relevant categories for health information technology to support the collection and use of LGBTQ+ identity related information like current sex, sex at birth, gender identity, sexual orientation, preferred name and pronouns and illicit more constructive data collection than the current standard binary male/female sex identifiers.

References

[1]
D. P. Subramony, "Not in our Journals - Digital Media Technologies and the LGBTQI Community," TechTrends, vol. 62, pp. 354--363, 2018.
[2]
C. Donald and J. M. Ehrenfeld, "The Opportunity for Medical Systems to Reduce Health Disparities Among Lesbian, Gay, Bisexual, Transgender and Intersex Patients," Journal of Medical Systems, vol. 39, no. 178, 2015.
[3]
G. C. Pereira and M. C. C. Baranauskas, "Supporting people on fighting lesbian, gay, bisexual, and transgender (LGBT) prejudice: a cirtical codesign process," in IHC 2017: Proceedings of the XVI Brazilian Symposium on Human Factors in Computing Systems, Joinville Brazil, 2017.
[4]
S. M. Schueller, J. F. Hunter, C. Figueroa and A. Aguilera, "Use of Digital Mental Health for Marginalized and Underserved Populations," Current Treatment Options Pscychology, vol. 6, pp. 243--255, 2019.
[5]
S. L. Faulkner and P. J. Lannutti, "Representations of lesbian and bisexual women's sexual and relational health in online video and text-based sources," Computers in Human Behavior, vol. 63, pp. 916--921, 2016.
[6]
A. Ventuneac, S. A. John, T. H. Whitfield, B. Mustanski and J. T. Parsons, "Preferences for Sexual Health Smartphone App Features Among Gay and Bisexual Men," AIDS and Behavior, vol. 22, pp. 3384--3394, 2018.
[7]
B. W. Hawkins, M. Morris, T. Nguyen, J. Siegel and E. Vardell, "Advancing the conversation: next steps for lesbian, gay, bisexual, trans, and queer (LGBTQ) health sciences librarianship," Journal of Medical Library Association, vol. 105, no. 4, pp. 316--327, 2017.
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P. Strauss, H. Morgan, D. W. Toussaint, A. Lin, S. Winter and Y. Perry, "Trans and gender diverse young people's attitudes towards game-based digital mental health interventions: A qualitative investigation," Internet Interventions, vol. 18, no. 100280, 2019.
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M. Price-Feeney, M. L. Ybarra and K. J. Mitchell, "Health Indicators of Lesbian, Gay, Bisexual, and Other Sexual Minority (LGB+) Youth Living in Rural Communities," The Journal of Pediatrics, vol. 205, pp. 236--243, February 2019.
[10]
M. Bjorkman and K. Malterud, "Lesbian women's experiences with health care: a qualitative study.," Scandinavian Journal of Primary Health Care, vol. 27, no. 4, pp. 238--43, 2009.
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S. D. Howard, MD, K. L. Lee, MA, A. G. Nathan, MPH, H. C. Wenger, MD, M. H. Chin, MD MPH and S. C. Cook, PhD, "Healthcare Experiences of Transgender People of Color," Journal of General Internal Medicine, vol. 10, no. 34, pp. 2068--74, 2019.
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R. Shrestha, S. H. Lim, F. L. Altice, M. Copenhaver, J. A. Wickersham, R. Saif, M. A. A. Halim and A. Kamarulzaman, "Use of Smartphone to Seek Sexual Health Information Online Among Malaysian Men Who Have Sex with Men (MSM): Implicationsfor mHealth Intervention to Increase HIV Testing and Reduce HIV Risks," Journal of Community Health, vol. 45, pp. 10--19, 2020.
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J. M. White Hughto, J. E. Pachankis and A. I. Eldahan, "You Can't Just Walk Down the Street and Meet Someone": The Intersection of Social-Sexual Networking Technology, Stigma, and Health Among Gay and Bisexual Men in the Small City," American Journal of Men's Health, vol. 11, no. 3, pp. 726--736, 2017.
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I. Kuo, T. Liu, R. Patrick, C. Trezza and L. Bazerman, "Use of an mHealth Intervention to Improve Engagement in HIV Community Based Care Among Persons Recently Released from a Correctional Facility in Washington, DC: A Pilot Study," AIDS and Behavior, vol. 23, pp. 1016--1031, 2019.

Cited By

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  • (2024)Safe and Seen: Codesigning Technology to Address Disparities in Access to Sexual and Reproductive Health by LGBTQ+ People with Uteruses in the UKProceedings of the 13th Nordic Conference on Human-Computer Interaction10.1145/3679318.3685380(1-14)Online publication date: 13-Oct-2024

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      PervasiveHealth '20: Proceedings of the 14th EAI International Conference on Pervasive Computing Technologies for Healthcare
      May 2020
      446 pages
      ISBN:9781450375320
      DOI:10.1145/3421937
      Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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      Published: 02 February 2021

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      Author Tags

      1. KEYWORDS LGBTQ+ identity
      2. design implications
      3. gender
      4. health technology
      5. inclusivity
      6. sexual orientation

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      PervasiveHealth '20 Paper Acceptance Rate 55 of 116 submissions, 47%;
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      View all
      • (2024)Safe and Seen: Codesigning Technology to Address Disparities in Access to Sexual and Reproductive Health by LGBTQ+ People with Uteruses in the UKProceedings of the 13th Nordic Conference on Human-Computer Interaction10.1145/3679318.3685380(1-14)Online publication date: 13-Oct-2024

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