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Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children's Hospital

Authors:

Akash Uday Rode,

Priyanjali Mittal,

Andrew MillerAuthors Info & Claims

CHI EA '22: CHI Conference on Human Factors in Computing Systems Extended Abstracts

Article No.: 444, Pages 1 - 8

https://doi.org/10.1145/3491101.3519787

Published: 28 April 2022 Publication History

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Abstract

When a child is admitted to the hospital with a critical illness, their family must adapt and manage care and stress. HCI and Computer-Supported Cooperative Work (CSCW) technologies have shown the potential for collaborative technologies to support and augment care collaboration between patients and caregivers. However, less is known about the potential for collaborative technologies to augment family caregiving circles experiences, stressors, and adaptation practices, especially during long hospitalization stays. We interviewed 14 parents of children with cancer admitted for extended hospitalizations in this work. We use the Family Adaptive Systems framework from the family therapy fields as a lens to characterize the challenges and practices of families with a hospitalized child. We characterize the four adaptive systems from the theory: Emotion system, Control system, Meaning, and Maintenance system. Then, we focus on the Emotion system, suggesting opportunities for designing future collaborative technology to augment collaborative caregiving and enhance family resilience.

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Cited By

Nikkhah SRode AKulkarni NMittal PMueller EMiller A(2024)Family Resilience in Care Coordination Technologies: Designing for Families as Adaptive SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36869988:CSCW2(1-28)Online publication date: 8-Nov-2024
https://doi.org/10.1145/3686998
Patel SNikkhah SNadkarni SSuryawanshi PSureddi RBhoyar MKulkarni PJogadia DShimala SHarishchandrakar ASanaeipoor SMueller EMiller AFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Designing for Resilient Caregiving Coordination Journeys: Prioritizing Features Across Families and PhasesCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681901(525-532)Online publication date: 11-Nov-2024
https://dl.acm.org/doi/10.1145/3678884.3681901
Cha YGunal YWou ALee JNewman MPark S(2024)Shared Responsibility in Collaborative Tracking for Children with Type 1 Diabetes and their ParentsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642344(1-20)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642344
Show More Cited By

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cover image ACM Conferences

CHI EA '22: Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems

April 2022

3066 pages

ISBN:9781450391566

DOI:10.1145/3491101

Editors:
Simone Barbosa
PUC-Rio, Brazil
,
Cliff Lampe
University of Michigan, USA
,
Caroline Appert
Université Paris-Saclay, France
,
David A. Shamma
Toyota Research Institute, USA

Copyright © 2022 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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Published: 28 April 2022

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April 29 - May 5, 2022

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Cited By

Nikkhah SRode AKulkarni NMittal PMueller EMiller A(2024)Family Resilience in Care Coordination Technologies: Designing for Families as Adaptive SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36869988:CSCW2(1-28)Online publication date: 8-Nov-2024
https://doi.org/10.1145/3686998
Patel SNikkhah SNadkarni SSuryawanshi PSureddi RBhoyar MKulkarni PJogadia DShimala SHarishchandrakar ASanaeipoor SMueller EMiller AFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Designing for Resilient Caregiving Coordination Journeys: Prioritizing Features Across Families and PhasesCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681901(525-532)Online publication date: 11-Nov-2024
https://dl.acm.org/doi/10.1145/3678884.3681901
Cha YGunal YWou ALee JNewman MPark S(2024)Shared Responsibility in Collaborative Tracking for Children with Type 1 Diabetes and their ParentsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642344(1-20)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642344
Gui XLuo YDing XAbdullah SDixon EBardzell S(2023)Designing for and Reflecting upon Resilience in Health and WellbeingCompanion Publication of the 2023 ACM Designing Interactive Systems Conference10.1145/3563703.3591456(135-137)Online publication date: 10-Jul-2023
https://dl.acm.org/doi/10.1145/3563703.3591456
Nikkhah SJohn SYalamarti KMueller EMiller A(2022)Family Care Coordination in the Children's Hospital: Phases and Cycles in the Pediatric Cancer Caregiving JourneyProceedings of the ACM on Human-Computer Interaction10.1145/35551876:CSCW2(1-30)Online publication date: 11-Nov-2022
https://dl.acm.org/doi/10.1145/3555187

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