[go: up one dir, main page]
More Web Proxy on the site http://driver.im/ skip to main content
10.1145/3154862.3154885acmotherconferencesArticle/Chapter ViewAbstractPublication PagespervasivehealthConference Proceedingsconference-collections
research-article

Differences that matter: in-clinic communication challenges

Published: 23 May 2017 Publication History

Abstract

We provide an integrated view of patients' and clinicians' perspectives on the communication challenges faced when patients present their medical issues to the clinicians. By combining the results of a literature review from both the HCI and medical literature with the results of clinician interviews explicitly about in-clinic communication issues, we are able to offer a more complete picture of these crucial in-clinic communication challenges. We discuss similarities and subtle but important differences between patients' and clinicians' perspectives. While patients and clinicians are often talking about the same issue, we found that they differ considerably in opinion and attitude. Drawing upon these subtle yet significant differences and ideas raised by the interviewed clinicians, we offer research suggestions for the design of future in-clinic communication tools.

References

[1]
R. Aarhus and S. A. Ballegaard. Negotiating boundaries: Managing disease at home. In CHI '10, pages 1223--1232. ACM, 2010.
[2]
A. Abyholm and P. Hjortdahl. Being believed is what counts. a qualitative study of experiences with the health service among patients with chronic back pain. Journal of the Norwegian Medical Association, 119(11):1630--1632, 1999.
[3]
D. Aggarwal, B. Ploderer, F. Vetere, M. Bradford, and T. Hoang. Doctor, can you see my squats?: Understanding bodily communication in video consultations for physiotherapy. In DIS '16, pages 1197--1208. ACM, 2016.
[4]
S. Ananthanarayan, M. Sheh, A. Chien, H. Profita, and K. Siek. Pt viz: Towards a wearable device for visualizing knee rehabilitation exercises. In CHI '13, pages 1247--1250. ACM, 2013.
[5]
T. Andersen, J. Bansler, F. Kensing, J. Moll, and K. D. Nielsen. Alignment of concerns: A design rationale for patient participation in ehealth. In HICSS'14, pages 2587--2596. IEEE, 2014.
[6]
Y. Arai and S. Farrow. Access, expectations and communication: Japanese mothers' interaction with gps in a pilot study in north/london. Public Health, 109(5):353--361, 1995.
[7]
O. Asan, H. Young, B. Chewning, and E. Montague. How physician electronic health record screen sharing affects patient and doctor non-verbal communication in primary care. Patient education and counseling, 98(3):310--316, 2015.
[8]
S. J. Attfield, A. Adams, and A. Blandford. Patient information needs: pre- and post-consultation. Health Informatics Journal, 12(2):165--177, 2006.
[9]
K. D. Bertakis, D. Roter, and S. M. Putnam. The relationship of physician medical interview style to patient satisfaction. Journal of Family Practice, 32(2):175--182, 1991.
[10]
T. Bodenheimer, K. Lorig, H. Holman, and K. Grumbach. Patient self-management of chronic disease in primary care. JAMA, 288(19):2469--2475, 2002.
[11]
P. Bowes, F. Stevenson, S. Ahluwalia, and E. Murray. 'i need her to be a doctor': patients' experiences of presenting health information from the internet in GP consultations. British Journal of General Practice, 62(604):732--738, 2012.
[12]
C. M. Boyle. Difference between patients' and doctors' interpretation of some common medical terms. British Medical Journal, 2(5704):286--289, 1970.
[13]
A. Broom. Virtually he@lthy: the impact of internet use on disease experience and the doctor-patient relationship. Qualitative health research, 15(3):325--345, 2005.
[14]
C. E. Brown, N. J. Roberts, and M. R. Partridge. Does the use of a glossary aid patient understanding of the letters sent to their general practitioner? Clinical Medicine, 7(5):457--460, 2007.
[15]
D. Casarett, A. Pickard, J. M. Fishman, S. C. Alexander, R. M. Arnold, K. I. Pollak, and J. A. Tulsky. Can metaphors and analogies improve communication with seriously ill patients? Journal of palliative medicine, 13(3):255--260, 2010.
[16]
C. M. Castro, C. Wilson, F. Wang, and D. Schillinger. Babel babble: Physicians' use of unclarified medical jargon with patients. American Journal of Health Behavior, 31(1):85--95, 2007.
[17]
D. J. Cegala and D. M. Post. The impact of patients' participation on physicians' patient-centered communication. Patient Education and Counseling, 77(2):202 -- 208, 2009.
[18]
Y. Chen, V. Ngo, S. Harrison, and V. Duong. Unpacking exam-room computing: Negotiating computer-use in patient-physician interactions. In CHI '11, pages 3343--3352. ACM, 2011.
[19]
C.-F. Chung, K. Dew, A. Cole, J. Zia, J. Fogarty, J. A. Kientz, and S. A. Munson. Boundary negotiating artifacts in personal informatics: Patient-provider collaboration with patient-generated data. In CSCW '16, pages 770--786. ACM, 2016.
[20]
M. F. Clayton and W. N. Dudley. Patient-centered communication during oncology follow-up visits for breast cancer survivors: content and temporal structure. In Oncol Nurs Forum, volume 36, pages 68--79, 2009.
[21]
M. Constantino, P. Hoskins, P. Fowler, C. Pech, R. McFarlane, J. Flack, J. Forrest, D. Yue, and J. Turtle. Interaction between diabetic patients, their general practitioners and a hospital diabetic clinic. The Medical journal of Australia, 155(8):515--518, 1991.
[22]
A. Coulter. Partnerships with patients: The pros and cons of shared clinical decision-making. Journal of Health Services Research, 2(2):112--121, 1997.
[23]
N. H. Crampton, S. Reis, and A. Shachak. Computers in the clinical encounter: a scoping review and thematic analysis. JAMIA, 23(3):654, 2016.
[24]
D. R. Falvo and J. K. Smith. Assessing residents' behavioral science skills: Patients' views of physician-patient interaction. The Journal of family practice, 17(3):479--483, 1983.
[25]
E. Giroldi, W. Veldhuijzen, T. de Leve, T. van der Weijden, H. Bueving, and C. van der Vleuten. 'i still have no idea why this patient was here': An exploration of the difficulties GP trainees experience when gathering information. Patient Education and Counseling, 98(7):837--842, 2015.
[26]
M. J. Gonzales and L. D. Riek. Co-designing patient-centered health communication tools for cancer care. In PervasiveHealth '13, pages 208--215. IEEE, 2013.
[27]
S. Gorter, A. Scherpbier, J. Brauer, J.-J. Rethans, D. van der Heijde, H. Houben, C. van der Vleuten, and S. van der Linden. Doctor-patient interaction: standardized patients' reflections from inside the rheumatological office. The Journal of rheumatology, 29(7):1496--1500, 2002.
[28]
D. Greatbatch, C. Heath, P. Campion, and P. Luff. How do desk-top computers affect the doctor-patient interaction. Family Practice, 12(1):32--36, 1995.
[29]
D. Greatbatch, P. Luff, C. Heath, and P. Campion. Interpersonal communication and human-computer interaction: an examination of the use of computers in medical consultations. Interacting with Computers, 5(2):193--216, 1993.
[30]
S. R. Hahn. Physical symptoms and physician-experienced difficulty in the physician-patient relationship. Annals of Internal Medicine, 134:897--904, 2001.
[31]
M. Hancock, T. ten Cate, S. Carpendale, and T. Isenberg. Supporting sandtray therapy on an interactive tabletop. In CHI '10, pages 2133--2142. ACM, 2010.
[32]
P. Hudelson, M. Dominicé Dao, N. Junod Perron, and A. Bischoff. Interpreter-mediated diabetes consultations: a qualitative analysis of physician communication practices. BMC Family Practice, 14(1):1--9, 2013.
[33]
J. Huh, D. W. McDonald, A. Hartzler, and W. Pratt. Patient moderator interaction in online health communities. AMIA'13, 2013:627--636, 2013.
[34]
J. L. Jackson. Communication about symptoms in primary care: impact on patient outcomes. Journal of Alternative & Complementary Medicine, 11(supplement 1):51--56, 2005.
[35]
J. L. Jackson and K. Kroenke. The effect of unmet expectations among adults presenting with physical symptoms. Annals of Internal Medicine, 134:889--897, 2001.
[36]
K. Julliard, J. Vivar, C. Delgado, E. Cruz, J. Kabak, and H. Sabers. What latina patients don't tell their doctors: a qualitative study. The Annals of Family Medicine, 6(6):543--549, 2008.
[37]
R. Klitzman. "patient-time" "doctor-time", and "institution-time": Perceptions and definitions of time among doctors who become patients. Patient education and counseling, 66(2):147--155, 2007.
[38]
S. L. Leong, D. Gingrich, P. R. Lewis, D. T. Mauger, and J. H. George. Enhancing doctor-patient communication using email: a pilot study. The Journal of the American Board of Family Practice, 18(3):180--188, 2005.
[39]
C. Lim, A. B. Berry, T. Hirsch, A. L. Hartzler, E. H. Wagner, E. Ludman, and J. D. Ralston. "it just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers. In DIS '16, pages 1172--1184. ACM, 2016.
[40]
J. R. Loos and E. J. Davidson. Wearable health monitors and physician-patient communication: The physician's perspective. In HICSS'16, pages 3389--3399. IEEE, 2016.
[41]
P. Luff, C. Heath, and D. Greatbatch. Tasks-in-interaction: Paper and screen based documentation in collaborative activity. In CSCW '92, pages 163--170. ACM, 1992.
[42]
H. MacLeod, K. Oakes, D. Geisler, K. Connelly, and K. Siek. Rare world: Towards technology for rare diseases. In CHI '15, pages 1145--1154. ACM, 2015.
[43]
M. S. Matthias, A. L. Parpart, K. A. Nyland, M. A. Huffman, D. L. Stubbs, C. Sargent, and M. J. Bair. The patient-provider relationship in chronic pain care: providers' perspectives. Pain Medicine, 11(11):1688--1697, 2010.
[44]
H. M. Mentis, M. Reddy, and M. B. Rosson. Invisible emotion: Information and interaction in an emergency room. In CSCW '10, pages 311--320. ACM, 2010.
[45]
M. Moffat, J. Cleland, T. van der Molen, and D. Price. Sub-optimal patient and physician communication in primary care consultations: its relation to severe and difficult asthma. Primary Care Respiratory Journal, 15(3):159--165, 2006.
[46]
S. Nettleton, I. Watt, L. O'Malley, and P. Duffey. Understanding the narratives of people who live with medically unexplained illness. Patient education and counseling, 56(2):205--210, 2005.
[47]
T. Ni, A. K. Karlson, and D. Wigdor. AnatOnMe: Facilitating Doctor-patient Communication Using a Projection-based Handheld Device. In CHI '11, pages 3333--3342. ACM, 2011.
[48]
F. Nunes, N. Verdezoto, G. Fitzpatrick, M. Kyng, E. Grönvall, and C. Storni. Self-care technologies in hci: Trends, tensions, and opportunities. ACM Trans. Comput.-Hum. Interact., 22(6):33:1--33:45, 2015.
[49]
L. Ong, J. de Haes, A. Hoos, and F. Lammes. Doctor-patient communication: A review of the literature. Social Science & Medicine, 40(7):903 -- 918, 1995.
[50]
C. Perin, P. Dragicevic, and J.-D. Fekete. Revisiting bertin matrices: New interactions for crafting tabular visualizations. Visualization and Computer Graphics, IEEE Transactions on, 20(12):2082--2091, 2014.
[51]
A. M. Piper and J. D. Hollan. Supporting medical conversations between deaf and hearing individuals with tabletop displays. In CSCW '08, pages 147--156. ACM, 2008.
[52]
M. J. Root. Communication barriers between older women and physicians. Public Health Reports, 102(supplement4):152--155, 1987.
[53]
Y. Sada, R. L. Street Jr, H. Singh, R. Shada, and A. D. Naik. Primary care and communication in shared cancer care: a qualitative study. The American journal of managed care, 17(4):259, 2011.
[54]
C. G. Shields, C. J. Coker, S. S. Poulsen, J. M. Doyle, K. Fiscella, R. M. Epstein, and J. J. Griggs. Patient-centered communication and prognosis discussions with cancer patients. Patient Education and Counseling, 77(3):437 -- 442, 2009.
[55]
K. A. Siek, K. H. Connelly, and Y. Rogers. Pride and prejudice: Learning how chronically ill people think about food. In CHI '06, pages 947--950. ACM, 2006.
[56]
J. Y. Siu. Communicating under medical patriarchy: gendered doctor-patient communication between female patients with overactive bladder and male urologists in hong kong. BMC women's health, 15(1):1, 2015.
[57]
T. M. Spruill, T. G. Pickering, J. E. Schwartz, E. Mostofsky, G. Ogedegbe, L. Clemow, and W. Gerin. The impact of perceived hypertension status on anxiety and the white coat effect. Annals of Behavioral Medicine, 34(1):1--9, 2007.
[58]
M. M. Step, L. A. Siminoff, and J. H. Rose. Differences in oncologist communication across age groups and contributions to adjuvant decision outcomes. Journal of the American Geriatrics Society, 57(s2):279--282, 2009.
[59]
A. Strauss and J. M. Corbin. Grounded theory in practice. Sage, 1997.
[60]
F. Sullivan and J. C. Wyatt. How computers can help to share understanding with patients. BMJ, 331(7521):892--894, 2005.
[61]
S. Sun, X. Zhou, J. C. Denny, T. S. Rosenbloom, and H. Xu. Messaging to your doctors: Understanding patient-provider communications via a portal system. In CHI '13, pages 1739--1748. ACM, 2013.
[62]
D. C. Thomasma. Beyond medical paternalism and patient autonomy: A model of physician conscience for the physician-patient relationship. Annals of Internal Medicine, 98(2):243--248, 1983.
[63]
S. Thorne, E.-A. Armstrong, S. R. Harris, T. G. Hislop, C. Kim-Sing, V. Oglov, J. L. Oliffe, and K. I. Stajduhar. Patient real-time and 12-month retrospective perceptions of difficult communications in the cancer diagnostic period. Qualitative Health Research, 19(10):1383--1394, 2009.
[64]
S. Thorne, T. G. Hislop, M. Kuo, and E.-A. Armstrong. Hope and probability: Patient perspectives of the meaning of numerical information in cancer communication. Qualitative Health Research, 16(3):318--336, 2006.
[65]
K. T. Unruh, M. Skeels, A. Civan-Hartzler, and W. Pratt. Transforming clinic environments into information workspaces for patients. In CHI '10, pages 183--192. ACM, 2010.
[66]
J. C. Van Wieringen, J. A. Harmsen, and M. A. Bruijnzeels. Intercultural communication in general practice. The European journal of public health, 12(1):63--68, 2002.
[67]
E. Vegni, D. Leone, C. Biasoli, and E. A. Moja. Difficult encounters with a hemophilic patient: The inner perspective of physicians. Journal of health psychology, 19(12):1499--1507, 2014.
[68]
N. Weibel, C. Emmenegger, J. Lyons, R. Dixit, L. L. Hill, and J. D. Hollan. Interpreter-mediated physician-patient communication: Opportunities for multimodal healthcare interfaces. In PervasiveHealth' 13, pages 113--120. IEEE, 2013.
[69]
R. W. White and E. Horvitz. Cyberchondria: Studies of the escalation of medical concerns in web search. ACM Trans. Inf. Syst., 27(4):23:1--23:37, Nov. 2009.
[70]
L. Wilcox, S. Feiner, N. Elhadad, D. Vawdrey, and T. Tran. Remedy: Supporting consumer-centered medication information search. In PervasiveHealth' 13, pages 317--318. IEEE, 2013.
[71]
L. Wilcox, S. Feiner, N. Elhadad, D. Vawdrey, and T. H. Tran. Patient-centered tools for medication information search. In PervasiveHealth '14, pages 49--56. IEEE, 2014.

Cited By

View all
  • (2024)A Data Visualization Tool for Patients and Healthcare Providers to Communicate during Inpatient Stroke RehabilitationProceedings of the 50th Graphics Interface Conference10.1145/3670947.3670978(1-14)Online publication date: 3-Jun-2024
  • (2024)HIV Client Perspectives on Digital Health in MalawiProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642245(1-13)Online publication date: 11-May-2024
  • (2023)How Do Team-Level and Individual-Level Linguistic Styles Affect Patients’ Emotional Well-Being—Evidence from Online Doctor TeamsInternational Journal of Environmental Research and Public Health10.3390/ijerph2003191520:3(1915)Online publication date: 20-Jan-2023
  • Show More Cited By

Recommendations

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Other conferences
PervasiveHealth '17: Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare
May 2017
503 pages
ISBN:9781450363631
DOI:10.1145/3154862
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 23 May 2017

Permissions

Request permissions for this article.

Check for updates

Qualifiers

  • Research-article

Conference

PervasiveHealth '17

Acceptance Rates

Overall Acceptance Rate 55 of 116 submissions, 47%

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • Downloads (Last 12 months)37
  • Downloads (Last 6 weeks)2
Reflects downloads up to 02 Mar 2025

Other Metrics

Citations

Cited By

View all
  • (2024)A Data Visualization Tool for Patients and Healthcare Providers to Communicate during Inpatient Stroke RehabilitationProceedings of the 50th Graphics Interface Conference10.1145/3670947.3670978(1-14)Online publication date: 3-Jun-2024
  • (2024)HIV Client Perspectives on Digital Health in MalawiProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642245(1-13)Online publication date: 11-May-2024
  • (2023)How Do Team-Level and Individual-Level Linguistic Styles Affect Patients’ Emotional Well-Being—Evidence from Online Doctor TeamsInternational Journal of Environmental Research and Public Health10.3390/ijerph2003191520:3(1915)Online publication date: 20-Jan-2023
  • (2021)Learning from Healthcare Providers’ Strategies: Designing Technology to Support Effective Child Patient-Provider CommunicationProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445120(1-15)Online publication date: 6-May-2021
  • (2021)Communicating Patient Health Data: A Wicked ProblemIEEE Computer Graphics and Applications10.1109/MCG.2021.311284541:6(179-186)Online publication date: 1-Nov-2021
  • (2020)Sociocultural Dimensions of Tracking Health and Taking CareProceedings of the ACM on Human-Computer Interaction10.1145/34152004:CSCW2(1-24)Online publication date: 15-Oct-2020
  • (2020)Addressing Cognitive and Emotional Barriers in Parent-Clinician Communication through Behavioral Visualization WebtoolsProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376181(1-12)Online publication date: 21-Apr-2020
  • (2019)Electronic Health Records Are More Than a Work ToolProceedings of the 2019 CHI Conference on Human Factors in Computing Systems10.1145/3290605.3300865(1-13)Online publication date: 2-May-2019
  • (2019)Supporting Communication About Values Between People with Multiple Chronic Conditions and their ProvidersProceedings of the 2019 CHI Conference on Human Factors in Computing Systems10.1145/3290605.3300700(1-14)Online publication date: 2-May-2019
  • (2018)Supporting Collaborative Health Tracking in the HospitalProceedings of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3173574.3174224(1-14)Online publication date: 21-Apr-2018

View Options

Login options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

Figures

Tables

Media

Share

Share

Share this Publication link

Share on social media