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"I'm Not Like My Friends": Understanding How Children with a Chronic Illness Use Technology to Maintain Normalcy

Authors:

Kori M. Inkpen,

Wanda PrattAuthors Info & Claims

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

Pages 1527 - 1539

https://doi.org/10.1145/2675133.2675201

Published: 28 February 2015 Publication History

Abstract

Children diagnosed with a chronic illness, such as cancer, experience a vastly different childhood than their healthy counterparts. They may struggle with accepting that they are no longer seen as "normal". We surveyed 10 children who have a chronic illness and interviewed 15 healthcare professionals and 7 parents of chronically ill children to understand their communication practices and challenges of how these patients stay connected with their peers. We found that due to the nature of their illness and constant hospitalization, pediatric patients often use various communication technologies to stay in touch with friends and try to maintain normalcy in their lives. Some patients also had to create a "new normal" that balanced life before and after being diagnosed. Based on these results, we suggest opportunities for technology to help patients connect to others and retain a sense of normalcy or to encourage them to embrace their "new normal".

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Cited By

Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
Jeffs LDunbar JSyed SNg CPollack A(2024)Navigating normalcy: designing personal health visualizations for pediatric kidney transplant recipients and caregiversJournal of the American Medical Informatics Association10.1093/jamia/ocae20631:11(2519-2528)Online publication date: 30-Jul-2024
https://doi.org/10.1093/jamia/ocae206
di Padova M(2023)La realtà immersiva e la scuola in ospedale: ambienti di apprendimento innovativi e scenari futuriImmersive reality and the hospital school: innovative learning environments and future developmentsIUL ResearchIUL Research10.57568/iulresearch.v4i7.4214:7(148-163)Online publication date: 19-Jun-2023
https://doi.org/10.57568/iulresearch.v4i7.421
Show More Cited By

Index Terms

"I'm Not Like My Friends": Understanding How Children with a Chronic Illness Use Technology to Maintain Normalcy
1. Applied computing
  1. Life and medical sciences

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Published In

cover image ACM Conferences

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

February 2015

1956 pages

ISBN:9781450329224

DOI:10.1145/2675133

General Chairs:
Dan Cosley
Cornell University, USA
,
Andrea Forte
Drexel University, USA
,
Program Chairs:
Luigina Ciolfi
Sheffield Hallam University, UK
,
David McDonald
University of Washington, USA

Copyright © 2015 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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SIGCHI: ACM Special Interest Group on Computer-Human Interaction

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 28 February 2015

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National Institutes of Health National Library of Medicine

Conference

CSCW '15

Sponsor:

SIGCHI

CSCW '15: Computer Supported Cooperative Work and Social Computing

March 14 - 18, 2015

BC, Vancouver, Canada

Acceptance Rates

CSCW '15 Paper Acceptance Rate 161 of 575 submissions, 28%;

Overall Acceptance Rate 2,235 of 8,521 submissions, 26%

Upcoming Conference

CSCW '25

Sponsor:
sigchi

Computer-Supported Cooperative Work and Social Computing

October 18 - 22, 2025

Bergen , Norway

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Cited By

Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
Jeffs LDunbar JSyed SNg CPollack A(2024)Navigating normalcy: designing personal health visualizations for pediatric kidney transplant recipients and caregiversJournal of the American Medical Informatics Association10.1093/jamia/ocae20631:11(2519-2528)Online publication date: 30-Jul-2024
https://doi.org/10.1093/jamia/ocae206
di Padova M(2023)La realtà immersiva e la scuola in ospedale: ambienti di apprendimento innovativi e scenari futuriImmersive reality and the hospital school: innovative learning environments and future developmentsIUL ResearchIUL Research10.57568/iulresearch.v4i7.4214:7(148-163)Online publication date: 19-Jun-2023
https://doi.org/10.57568/iulresearch.v4i7.421
A. Ankrah EBhattacharya ADonjuan LL. Cibrian FTorno LRitt Olson AMilam JHayes G(2022)When Worlds Collide: Boundary Management of Adolescent and Young Adult Childhood Cancer Survivors and CaregiversProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517544(1-16)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3517544
Feuston JBhattacharya AAndalibi NAnkrah EErete SHandel MMoncur WVieweg SBrubaker J(2022)Researcher Wellbeing and Best Practices in Emotionally Demanding ResearchExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3503742(1-6)Online publication date: 27-Apr-2022
https://dl.acm.org/doi/10.1145/3491101.3503742
Dunbar JBascom EPratt WSnyder JSmith JPollack A(2022)My Kidney Identity: Contextualizing pediatric patients and their families kidney transplant journeysPediatric Transplantation10.1111/petr.1434326:7Online publication date: 21-Jul-2022
https://doi.org/10.1111/petr.14343
Lopatovska IArora KFernandes FRao ASivkoff-Livneh SStamm B(2022)Experiences of the Ukrainian adolescents during the Russia-Ukraine 2022 WarInformation and Learning Sciences10.1108/ILS-07-2022-0093123:11/12(666-704)Online publication date: 10-Oct-2022
https://doi.org/10.1108/ILS-07-2022-0093
Rapp A(2022)How do people experience the temporality of everyday life changes? Towards the exploration of existential time in HCIInternational Journal of Human-Computer Studies10.1016/j.ijhcs.2022.102899167:COnline publication date: 19-Sep-2022
https://dl.acm.org/doi/10.1016/j.ijhcs.2022.102899
Lopatovska ITurpin OYoon JBrown DVroom LNielsen CHayes KRoslund KDickson MAnger D(2022)Measuring the Impact of Conversational Technology Interventions on Adolescent Wellbeing: Quantitative and Qualitative ApproachesProceedings of the Association for Information Science and Technology10.1002/pra2.63959:1(192-204)Online publication date: 14-Oct-2022
https://doi.org/10.1002/pra2.639
Daniels SYang CToohey SWillard V(2021)Perspectives on Social Media from Adolescents and Young Adults with CancerJournal of Pediatric Oncology Nursing10.1177/104345422199231938:4(225-232)Online publication date: 17-Mar-2021
https://doi.org/10.1177/1043454221992319
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