Cited By
View all- King J(2019)"Becoming Part of Something Bigger"Proceedings of the ACM on Human-Computer Interaction10.1145/33592603:CSCW(1-33)Online publication date: 7-Nov-2019
DTC genetic testing and consumer comprehension
Pages 582 - 583
Abstract
Personal genetic tests first emerged in the consumer marketplace in 2006. Classified as Direct-To-Consumer (DTC) genetic testing, companies participating in this market enabled customers to buy tests online without doctor involvement. Customers of the DTC company 23andMe were invited to participate in an online survey to determine if the exclusion of medical professionals impacted customers' abilities to interpret and comprehend test results. DTC customers were asked to interpret the results of two mock test cases, where results were translated into disease probability for an individual compared to the public. When asked to evaluate the risk, only 23.8% of those surveyed were able to interpret both the cases correctly. Participants who took time to read the provided supplemental material were 3.93 times (p = .040) more likely to correctly interpret both test results than those who did not. The odds for correctly answering both cases were 3.289 times (p = .011) higher for those who made > $50k than those who made less. As the market for DTCs expands, correct interpretations will become more critical. Involving more health professionals may be needed to ensure high levels of comprehension.
References
[1]
Collins, F. S. The language of life: DNA and the revolution in personalized medicine. HarperCollins, 2010.
[2]
Ginsburg, G. S. and McCarthy, J. J. Personalized medicine: revolutionizing drug discovery and patient care. TRENDS in Biotechnology, 19, 12 2001, 491--496.
[3]
Hogarth, S., Javitt, G. and Melzer, D. The current landscape for direct-to-consumer genetic testing: legal, ethical, and policy issues. Annu. Rev. Genomics Hum. Genet., 9 2008, 161--182.
[4]
Kaufman, D. J., Bollinger, J. M., Dvoskin, R. L. and Scott, J. A. Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing. Journal of genetic counseling, 21, 3 2012, 413--422.
[5]
Lachance, C. R., Erby, L. A., Ford, B. M., Allen, V. C. and Kaphingst, K. A. Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers. Genetics in Medicine, 12, 5 2010, 304--312.
[6]
Nielsen-Bohlman, L., Panzer, A. M. and Kindig, D. A. Health literacy: a prescription to end confusion. National Academies Press, 2004.
[7]
Salari, K. The dawning era of personalized medicine exposes a gap in medical education. PLoS medicine, 6, 8 2009, e1000138.
[8]
Topol, E. J., Murray, S. S. and Frazer, K. A. The genomics gold rush. JAMA: the journal of the American Medical Association, 298, 2 2007, 218--221.
[9]
Venter, J. C. Multiple personal genomes await. Nature, 464, 7289 2010), 676--677.
[10]
Zimmern, R. and Khoury, M. The impact of genomics on public health practice: the case for change. Public Health Genomics, 15, 3-4 2012, 118--124.
Index Terms
- DTC genetic testing and consumer comprehension
Recommendations
Consumer Addressability and Customized Pricing
The increasing availability of customer information is giving many firms the ability to reach and customize price and other marketing efforts to the tastes of the individual consumer. This ability is labeled as consumer addressability. Consumer ...
Direct-to-Consumer Genetic Testing: Interdisciplinary Crossroads
Genetics has fascinated societies since ancient times, and references to traits or behaviors that appear to be shared or different among related individuals have permeated legends, literature, and popular culture. Biomedical advances from the past ...
Shopping Behavior and Consumer Preference for Store Price Format: Why "Large Basket" Shoppers Prefer EDLP
<P>In recent years, the supermarket industry has become increasingly competitive. One outcome has been the proliferation of a variety of pricing formats, and considerable debate among academics and practitioners about how these formats affect consumers' ...
Comments
Please enable JavaScript to view thecomments powered by Disqus.Information & Contributors
Information
Published In
Copyright © 2014 Owner/Author.
Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.
Sponsors
Publisher
Association for Computing Machinery
New York, NY, United States
Publication History
Published: 20 September 2014
Check for updates
Author Tags
Qualifiers
- Poster
Conference
BCB '14
Sponsor:
Acceptance Rates
Overall Acceptance Rate 254 of 885 submissions, 29%
Contributors
Other Metrics
Bibliometrics & Citations
Bibliometrics
Article Metrics
- View Citations1Total Citations
- 95Total Downloads
- Downloads (Last 12 months)2
- Downloads (Last 6 weeks)1
Reflects downloads up to 31 Dec 2024
Other Metrics
Citations
Cited By
View all- King J(2019)"Becoming Part of Something Bigger"Proceedings of the ACM on Human-Computer Interaction10.1145/33592603:CSCW(1-33)Online publication date: 7-Nov-2019
View Options
Login options
Check if you have access through your login credentials or your institution to get full access on this article.
Sign in