Abstract
With a growing proportion of elderly in the global population, the role of ‘informal caregivers’ gains importance. Informal caregivers are unpaid family members or friends who provide assistance to home-dwelling adults with health-related needs or limitations. Internationally, informal caregivers provide important medical support to those with a variety of diseases. While informal caregivers will remain vital to the growing aging population’s pursuit of healthy aging, they often suffer from ‘caregiver burnout,’ a state of physical, emotional, and mental exhaustion caused by their caregiving work. Policy and legislation are needed to diminish the burden on caregivers and to help assure that resources are allocated for these caregivers. We describe an initiative aimed at providing appropriate social support for caregivers by partnering among local organizations, hospitals, and health authorities.
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He, W., Goodkind, D. and Kowal, P. (2016) An aging world: 2015 International Population Reports. U.S. Census Bureau, https://www.census.gov/content/dam/Census/library/publications/2016/demo/p95-16-1.pdf, accessed 21 April 2017.
World Health Organization. (2017) Fact sheet no 404. Aging and health, http://www.who.int/mediacentre/factsheets/fs404/en/, accessed 28 April 2017.
Hunter, D.J. and Reddy, K.S. (2013) Noncommunicable diseases. New England Journal of Medicine 369: 1336–1343.
Knickman, J.R. and Snell, E.K. (2012) The 2030 problem. Health Services Research 37(4): 849–884.
Chari, A.V., Engberg, J., Ray, K.N. and Mehrotra, A. (2015) The opportunity costs of informal elder-care in the United States: new estimates from the American time use survey. Health Services Research 50: 871–872.
Akintola, O., Hlengwa, W.M. and Dageid, W. (2013) Perceived stress and burnout among volunteer caregivers working in AIDS care in South Africa. Journal of Advanced Nursing 69(12): 2738–2749.
Mackay, J., Downs, J., Wong, K., Heyworth, J., Epstein, A. and Leonard, H. (2017) Autonomic breathing abnormalities in Rett syndrome: caregiver perspectives in an international database study. Journal of Neurodevelopmental Disorders 9: 15.
Janssen, E.P., de Vugt, M., Kohler, S., Wolfs, C., Kerpershoek, L., Handels, R.L. et al (2017) Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health. Aging and Mental Health 21(1): 49–57.
Ranjbar, V. (2014) The HIV/AIDS caregiver identify as a double-edged sword: a disclosure analysis on HIV/AIDS caregiving in South Africa. African Journal of AIDS Research 13(3): 261–269.
Kimura, H., Tamoto, T., Kanzaki, N. and Shinchi, K. (2011) Burnout and characteristics of mental health of caregivers of elderly dementia patients. Journal of Rural Medicine 6(2): 47–53.
Vitaliano, P.P., Zhang, J. and Scanlan, J.M. (2003) Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin 129: 946.
Hogan, L., Rutherford, B.K. and Kramer, R.E. (2016) 2017–2020 state plan on aging. Maryland Department of Aging, http://aging.maryland.gov/Documents/MDStatePlan2017_2020Dated092216.pdf, accessed 1 May 2017.
Bevans, M.F. and Sternberg, E.M. (2012) Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA 307: 398–403.
Yu, H., Wang, X., He, R., Liang, R. and Zhou, L. (2015) Measuring the caregiver burden of caring for community-residing people with Alzheimer’s disease. PLoS ONE 10: e0132168.
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Galiatsatos, P., Gurley, A. & Daniel Hale, W. Policy and advocacy for informal caregivers: How state policy influenced a community initiative. J Public Health Pol 38, 503–508 (2017). https://doi.org/10.1057/s41271-017-0084-x
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DOI: https://doi.org/10.1057/s41271-017-0084-x