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Mobile self-management guide for young men with mild hemophilia in cases of minor injuries

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Abstract

Hemophilia is a group of inherited disorders where a defect or absence of a clotting factor protein limits the ability of the blood to clot following injury. The most common form is Hemophilia A; it is classified as severe, moderate or mild. Those with severe and moderate Hemophilia are likely to experience bleeding into joints and muscles following minor injury and are advised to limit participation in rough activities. Those with milder disorders usually experience bleeds only after significant injury, and may participate in vigorous sports with few consequences. As a result, they sometimes ‘forget’ that they have Hemophilia, and are slow to recognize injuries which may require treatment. In our ongoing project, we designed a mobile app which is a self-assessment guide for young men with mild hemophilia. The mobile application guides the user in assessing suspected bleeds, applying appropriate first aid, and locating the nearest hemophilia treatment center. In this paper, we detail the architectural design of the mobile app (“HIRT?”). We proposed a three-layered distributed system architecture comprised of the mobile devices, a cloud-oriented proxy and a database server where user feedback is stored for further analysis. The proxy framework is designed to address the challenges of network latency in mobile environments since the primary means of communication is over wireless media. Preliminary evaluation of the proposed system shows high performance boost in terms of the minimization of latency. Furthermore, the usability test shows that the application is convenient to use by both mobile techies and non-techies.

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Notes

  1. http://xamarin.com/.

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Acknowledgments

We will like to thank the following individuals and agencies: BHAP—The Bayer Hemophilia Award Program (BHAP) MITACS Accelerate Program, and The Canadian Hemophilia Society (CHS) for their support on hosting the App. Also, thanks to Prof. Reda Alhajj, the reviewers and editors of Network Modeling Analysis in Health Informatics and Bioinformatics.

Author information

Authors and Affiliations

  1. Department of Computer Science, University of Saskatchewan, 110 Science Place, Saskatoon, SK, S7N 5C9, Canada

    Richard K. Lomotey & Ralph Deters

  2. Children’s Hospital, Health Sciences Center, Winnipeg, Canada

    Kathy Mulder

  3. Saskatchewan Bleeding Disorder Program, Royal University Hospital, Saskatoon, Canada

    JoAnn Nilson

  4. School of Physical Therapy, University of Saskatchewan, Saskatoon, Canada

    Candice Schachter

  5. Department of Paediatrics and Child Health, University of Manitoba, Manitoba, Canada

    Kristy Wittmeier

Authors
  1. Richard K. Lomotey
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  2. Kathy Mulder
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  3. JoAnn Nilson
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  4. Candice Schachter
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  5. Kristy Wittmeier
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  6. Ralph Deters
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Corresponding author

Correspondence to Richard K. Lomotey.

Appendix

Appendix

See Table 2.

Table 2 Comparing HIRT? to other frameworks
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Lomotey, R.K., Mulder, K., Nilson, J. et al. Mobile self-management guide for young men with mild hemophilia in cases of minor injuries. Netw Model Anal Health Inform Bioinforma 3, 64 (2014). https://doi.org/10.1007/s13721-014-0064-z

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  • DOI: https://doi.org/10.1007/s13721-014-0064-z

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