Abstract
The ABLE.family project deploys disability and crip approaches and universal design, to create a platform that engages diverse older adults with dementia (OAD) and their carers in social engagement and play. Our prototyped gaming platform, created with OAD stakeholders and carers aims to decrease loneliness and despair experienced by OAD and carers during the COVID-19 pandemic, by increasing opportunities for intergenerational family engagement. Pleasurable interactions are encouraged through real-time collaborative play (e.g. art and turn based games) and real-time video-calling embedded in the platform. Our human-centered design approach works with OAD and their carer networks to design the platform interface with features that can be used to effectively collaborate, interact and produce sustainable platforms for OAD and their carer community. This project is supported generously by funding from CABHI (Centre for Aging and Brain Health Innovation), the Alzheimer Society of Hamilton and Halton, and MIRA (the McMaster Institute for Research on Aging); resources and spaces supporting this work are provided by Pulse Lab (funded by the Asper Foundation) and McMaster University.
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Notes
- 1.
Our team is currently working with stakeholders from organized community and university-supported dementia organizations and programs. We recognize that these programs struggle to serve diverse BIPOC, remote, under-resourced and indigenous folks, as well as diverse OAD experiencing varying levels of cognitive impairment. In this study, our stakeholders (primarily carers and service providers) offer their experiences with existing participants in this program, who are normally white, middle class, resourced, Canadians, but do reflect diverse spectrums of cognitive impairment. In this and other dementia research projects, we are working with organizations including Alzheimer Society of Hamilton and Halton, as well as the Hamilton Council on Aging and the Dementia-Friendly Communities, Hamilton, to investigate and redress the lack of engagement by diverse OAD, due to many factors including lack of security, lack of access to services and resources, and structural discrimination due to historic white supremacy and racial and ethnic bias; in future publications we will report on these efforts.
- 2.
Our team has past music intervention experiences for OAD; these new ideas come from conversations with IM Hope (Hamilton, Ontario), who advise the project.
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Gardner, P. et al. (2021). Designing a Dementia-Informed, Accessible, Co-located Gaming Platform for Diverse Older Adults with Dementia, Family and Carers. In: Gao, Q., Zhou, J. (eds) Human Aspects of IT for the Aged Population. Supporting Everyday Life Activities. HCII 2021. Lecture Notes in Computer Science(), vol 12787. Springer, Cham. https://doi.org/10.1007/978-3-030-78111-8_4
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