AI-READI: rethinking AI data collection, preparation and sharing in diabetes research and beyond

This work was supported by the US National Institutes of Health (NIH) through grants OT2OD032644 and P30 DK035816. We thank the Microsoft AI for Good Lab for supporting the cloud services needed for the project. We thank Topcon Corporation (Tokyo, Japan), Optomed (Oulu, Finland), iCare World (Raleigh, NC) and Carl Zeiss (Oberkochen, Germany) for loaning their devices for research purposes at no cost. We thank Heidelberg Engineering (Heidelberg, Germany), Dexcom (San Diego, CA) and Garmin (Olathe, KS) for research discounts on study devices. We also thank the study participants and the AI-READI Advisory Council.

Authors and Affiliations

1. University of California San Diego, La Jolla, CA, USA

   Sally L. Baxter, Virginia R. de Sa, Linda M. Zangwill, Samantha Hurst, Camille Nebeker, Katie Crist, Victoria Patronilo, Brittany York, Charles E. Amankwa, Monique Bangudi, Nada Haboudal, Shahin Hallaj, Anna Heinke, Lingling Huang, Fritz Gerald P. Kalaw, Apoorva Karsolia & Kyongmi Simpkins

2. Johns Hopkins University, Baltimore, MD, USA

   Kadija Ferryman, T. Y. Alvin Liu, Christopher G. Chute, Stephanie Hong & Jessica Mitchell

3. Stanford University, Stanford, CA, USA

   Prachee Jain, Jennifer Li-Pook-Than, Amir Bahmani, Sara J. Singer, Arash Alavi, Adrienne Baer, Colleen Cuddy, Hanna Pittock & Kate Watkins

4. University of Washington, Seattle, WA, USA

   Cecilia S. Lee, Julia P. Owen, Aaron Y. Lee, Catherine Ashley, Marian Blazes, Nayoon Gim, Trina Kim, Caitlyn Ngadisastra, Jamie Shaffer, Kevin Zhao & Caroline Drolet

5. FAIR Data Innovations Hub, California Medical Innovations Institute, San Diego, CA, USA

   Bhavesh Patel, Aydan Gasimova & Sanjay Soundarajan

6. National Center for Complementary and Integrative Health, NIH, Bethesda, MD, USA

   Qilu Yu

7. University of Alabama at Birmingham, Birmingham, AL, USA

   Jeffrey C. Edberg, Gerald McGwin, Cynthia Owsley & Dawn Matthies

8. Oregon Health & Science University, Portland, OR, USA

   Hiroshi Ishikawa, Shannon McWeeney, Riddhiman Adib, Mohammad Adibuzzaman, Erik Benton, Aaron Cohen, Benjamin Cordier, Wei-Chun Lin, Abigail Lucero & Hadi Khazaei

9. Portland State University, Portland, OR, USA

   Hadi Khazaei

10. Meharry Medical College, Nashville, TN, USA

    Muna Mohammed

11. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), NIH, Bethesda, MD, USA

    Xujing Wang

Consortia

Contributions

The Writing Committee members created the first draft, which was reviewed, edited and approved by all the authors.

Corresponding author

Correspondence to Aaron Y. Lee.

Competing interests

S.B.: funding — NIH, University of California Office of the President, Research to Prevent Blindness; consultant — Topcon; equipment — Optomed. V.R.d.S.: funding — NSF, UCSD Social Sciences, Sanford Institute for Empathy and Compassion (Center for Empathy and Technology), Intel, Mathworks, UCSD instructional improvement grant, equipment funding from Adobe and NVIDIA, Kavli Institute for Brain and Mind, IBM, past funding from Sony; member — Cognitive Science Society Governing Board. K.F.: member — Institutional Review Board for the All of Us Research Program, Digital Ethics Advisory Panel for Merck KGaA (Merck Germany). C.S.L.: funding — NIH, Alzheimer’s Disease Drug Discovery Foundation, Gates Ventures, Research to Prevent Blindness. T.Y.A.L.: funding — Research to Prevent Blindness, Dr. H. James and Carole Free Career Development Award. B.P.: funding — NIH. L.M.Z: funding — NEI, NIH, The Glaucoma Foundation, Heidelberg Engineering, DRCR Retina Network/JAEB Center for Health Research, The Krupp Foundation; receipt of equipment, materials, software — Optomed, ICare, Topcon, Heidelberg Engineering, Carl Zeiss Meditec, Optovue/Visionix; consultant — Abbvie, Topcon Medical Systems; co-founder, inventor, board member, equity holder — AISight Health Inc. S.H.: funding — NIH, NIH/NARCH, RWJF, UCSD Herbert Wertheim School of Public Health. H.I.: funding — NIH; founder, stock holder — Gobiquity, Inc. A.Y.L.: funding — Santen, Topcon, Carl Zeiss Meditec, Regeneron, Amazon, Meta, Research to Prevent Blindness; personal fees — Genentech, Sanofi, US FDA, Johnson and Johnson, Boehringer Ingelheim, Gyroscope; non-financial support — iCareWorld, Optomed, Heidelberg, Microsoft. S.M.: Funding — NIH, Edward P. Evans Foundation, OHSU Knight Cancer Institute; receipt of in-kind contribution — Nike. C.N.: funding — NIH, NSF, PCORI. C.O.: consultant — Johnson and Johnson. L.H.: funding — NIH Grant UL1TR001442; consultant — Bristol Myers Squibb. The remaining authors declare no competing interests.

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