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Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators

Authors:

Maia L. Jacobs,

Elizabeth D. MynattAuthors Info & Claims

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

Pages 808 - 818

https://doi.org/10.1145/2675133.2675252

Published: 28 February 2015 Publication History

Abstract

As technologies such as personal health records and symptom trackers become more common, we are seeing an increase in patients actively engaging in health tracking behaviors. Patient collected data can provide valuable insight for healthcare providers, particularly in the area of breast cancer. Thus far, little work has examined whether the health information that patients are willing to track and share aligns with the information needs of healthcare providers. Our work provides a comparison between the health information sharing preferences of breast cancer patients, doctors and navigators. We identify discrepancies between stakeholders' preferences, such as patients' hesitation to share feelings of loneliness, signifying where technology can play an important role in helping patients prioritize the health information shared with providers. We present design implications from this work to guide the development of future health information sharing tools that consider the differing needs of healthcare stakeholders.

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Cited By

Jo EZehrung RGenuario KPapoutsaki AEpstein D(2024)Exploring Patient-Generated Annotations to Digital Clinical Symptom Measures for Patient-Centered CommunicationProceedings of the ACM on Human-Computer Interaction10.1145/36869978:CSCW2(1-26)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686997
Chopra SCarroll JPater J(2024)Providing Context to the "Unknown": Patient and Provider Reflections on Connecting Personal Tracking, Patient-Reported Insights, and EHR Data within a Post-COVID ClinicProceedings of the ACM on Human-Computer Interaction10.1145/36869888:CSCW2(1-34)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686988
Mendel TNov OWiesenfeld B(2024)Advice from a Doctor or AI? Understanding Willingness to Disclose Information Through Remote Patient Monitoring to Receive Health AdviceProceedings of the ACM on Human-Computer Interaction10.1145/36869258:CSCW2(1-34)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686925
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Index Terms

Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators
1. Applied computing
  1. Life and medical sciences
2. Human-centered computing
  1. Collaborative and social computing

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Published In

cover image ACM Conferences

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

February 2015

1956 pages

ISBN:9781450329224

DOI:10.1145/2675133

General Chairs:
Dan Cosley
Cornell University, USA
,
Andrea Forte
Drexel University, USA
,
Program Chairs:
Luigina Ciolfi
Sheffield Hallam University, UK
,
David McDonald
University of Washington, USA

Copyright © 2015 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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SIGCHI: ACM Special Interest Group on Computer-Human Interaction

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Association for Computing Machinery

New York, NY, United States

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Published: 28 February 2015

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CSCW '15

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CSCW '15: Computer Supported Cooperative Work and Social Computing

March 14 - 18, 2015

BC, Vancouver, Canada

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CSCW '15 Paper Acceptance Rate 161 of 575 submissions, 28%;

Overall Acceptance Rate 2,235 of 8,521 submissions, 26%

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CSCW '25

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October 18 - 22, 2025

Bergen , Norway

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Cited By

Jo EZehrung RGenuario KPapoutsaki AEpstein D(2024)Exploring Patient-Generated Annotations to Digital Clinical Symptom Measures for Patient-Centered CommunicationProceedings of the ACM on Human-Computer Interaction10.1145/36869978:CSCW2(1-26)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686997
Chopra SCarroll JPater J(2024)Providing Context to the "Unknown": Patient and Provider Reflections on Connecting Personal Tracking, Patient-Reported Insights, and EHR Data within a Post-COVID ClinicProceedings of the ACM on Human-Computer Interaction10.1145/36869888:CSCW2(1-34)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686988
Mendel TNov OWiesenfeld B(2024)Advice from a Doctor or AI? Understanding Willingness to Disclose Information Through Remote Patient Monitoring to Receive Health AdviceProceedings of the ACM on Human-Computer Interaction10.1145/36869258:CSCW2(1-34)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686925
Karizat NVinson AParthasarathy SAndalibi N(2024)Patent Applications as Glimpses into the Sociotechnical Imaginary: Ethical Speculation on the Imagined Futures of Emotion AI for Mental Health Monitoring and DetectionProceedings of the ACM on Human-Computer Interaction10.1145/36373838:CSCW1(1-43)Online publication date: 26-Apr-2024
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Hao YLiu ZRiter RKalantari S(2024)Advancing Patient-Centered Shared Decision-Making with AI Systems for Older Adult Cancer PatientsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642353(1-20)Online publication date: 11-May-2024
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Orii LFeldacker CHuwa JThawani AViola EKiruthu-Kamamia CSande OTweya HAnderson R(2024)HIV Client Perspectives on Digital Health in MalawiProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642245(1-13)Online publication date: 11-May-2024
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Ankrah EMarathe MBhattacharya ARitt-Olson AMilam JTorno LHayes G(2023)Plan For Tomorrow: The Experience of Adolescent and Young Adult Childhood Cancer Survivors as they Transition to Adult CareProceedings of the ACM on Human-Computer Interaction10.1145/36102017:CSCW2(1-27)Online publication date: 4-Oct-2023
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Zubatiy TMathur NHeck LVickers KRozga AMynatt E(2023)"I don't know how to help with that" - Learning from Limitations of Modern Conversational Agent Systems in Caregiving NetworksProceedings of the ACM on Human-Computer Interaction10.1145/36101707:CSCW2(1-28)Online publication date: 4-Oct-2023
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