Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Participants
2.3. Data Collection
2.4. Ethical Considerations
2.5. Data Analysis
3. Findings
3.1. Participants
3.2. Positive Aspects of Therapy Reported by Mothers
3.2.1. Participation
“I come to see what they do because, for me, it is important for the rehabilitation of my daughter; in the time I spent in the project she improved a lot…”(Mother of a child with cerebral palsy)
“I stay with her during therapy, so I can learn and apply it at home; I see what they do with her and how my daughter progresses.”(Mother of a child with Down syndrome)
“… I come to watch and to be able to help him at home; that would be very important for us—for them to teach the parents exercise techniques to be able to practice at home.”(Mother of a child with cerebral palsy)
3.2.2. Trust and Understanding
“The changes became apparent throughout this process, and we are more attentive and willing to help with the treatment that therapists provide.”(Mother of a child with cerebral palsy)
“I see that he is improving, and, over time, the changes are noticeable; they make him work longer, they do a lot of exercises, and he is active.”(Mother of a child with cerebral palsy)
3.2.3. Benefits of Therapy for the Child
“There are improvements in the movement of his feet and hands; little by little, he is raising his head; before he wasn’t even able to keep his head up; he was lying on the bed and just looking at the ceiling.”(Mother of a child with Down syndrome)
“My son is improving a lot; we can keep still now; before it was impossible; we didn’t know how to handle him, and I always hoped that he would call me mom, that he would be a child that would communicate, but he is like a little baby; he still wears a diaper.”(Mother of a child with ASD and attention deficit and hyperactivity disorder (ADHD))
“My tears dried up when I got here; he’s firmer, he sits alone longer, he doesn’t bite his little fingers so often anymore… he can now integrate with his classmates, he listens to the teacher, and he is more connected to what the other children are doing, even though he doesn’t play with them yet.”(Mother of a child with psychomotor delay)
“We’ve been coming here for three years. I’ve had a lot of help during this time. In just one year, they managed to make my daughter walk; before that, I felt discouraged and I didn’t know where to go… or what to do…”(Mother of a child with cerebral palsy)
3.2.4. Improvements and Benefits for the Family
“The child shows an interest in communicating and interacting. His dad is more attentive to my son; occasionally, he accompanies us to therapy.”(Mother of child with ASD)
“When we consistently attend therapy, yes, it helps him with concentration and he manages to pay attention to us; his dad almost didn’t believe in the treatment, but little by little he began to see results.”(Mother of a child with global developmental delay)
“Yes, now he gets along better with family members. All is well; there is a good interaction between siblings.”(Mother of a child with cerebral palsy)
3.2.5. Attention by Staff
“The treatment that the therapists give us is very good; they are all good; they are always aware of what we need.”(Mother of a child with cerebral palsy)
“As for the therapists, we have no complaints; they treat us well, ask questions, and talk to us. Sometimes they call me if we are missing sessions because we don’t have money to come by public transport.”(Mother of a child with cerebral palsy)
“All the little doctors are very nice—all of them, the graduates and the students too. They are very good; they give us all their attention, to all the things they see as progress; they are always asking.”(Mother of child with ASD)
3.3. Negative Aspects of Therapy Reported by Mothers
“Longer hours, we can’t coincide; since I work, I have no one to bring him in and that hurts us and makes the child miss his therapies.”(Mother of a child with Down syndrome)
“The fact that students rotate and don’t work for long periods of time, come in and out of classes, do not always treat for the full hour; it would be good if they didn’t have different therapists, but perhaps assign only one each year.”(Mother of a child with cerebral palsy)
“More coordination among therapists, with the exercises they do, to improve the children’s condition; often they are starting a treatment, they change the therapist, and once again they change the therapy.”(Mother of child with ASD)
Training
“More communication about treatment so that we can do it at home.”(Mother of a child with cerebral palsy)
“Training parents to be able to work with our children at home.”(Mother of child with ASD)
“That they can teach parents exercise techniques to be able to implement at home.”(Mother of child with ASD)
“That they explain to us in terms we can understand what our child’s diagnosis is and how we can intervene.”(Mother of a child with global developmental delay)
4. Discussion
Limitations
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
References
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Theme | Subtheme | Categories |
---|---|---|
Parents’ perceptions of therapy | Benefits of therapy on the child | Parental involvement Trust in the therapy Understanding and learning Motor progress Changes in socialization Language development Effects on cognition |
Impact on the family | Changes in the family dynamic Involvement Effects on other areas | |
Perception of the project from the parents’ perspective | Role of the project in terms of therapy and staff | Perception of positive changes in child development Lack of time |
Personal | High level of satisfaction and good treatment on behalf of the staff Poor coordination in methodologies |
(a) Age of mother | |||
18–25 years | 26–35 years | 36–45 years | 45–50 years |
6 (22.22%) | 16 (59.25%) | 4 (14.81%) | 1 (3.7%) |
(b) Educational level of mothers | |||
No studies | Basic education | Secondary education | Professional |
8 (29.62%) | 7 (25.92%) | 9 (33.33%) | 3 (11.11%) |
(c) Socio-economic level | |||
Very low | Low | Mid-level | High |
5 (18.51%) | 17 (62.96%) | 4 (14.81%) | 1 (3.7%) |
(d) Type of child pathology | |||
Motor pathology of neurological origin | Global development delay | Down syndrome | Other neurodevelopmental disorders |
17 (62.96%) | 5 (18.51%) | 1 (3.7%) | 4 (14.81%) |
(a) Positive aspects of therapy noted by parents | |
Parent attendance at therapy | 21 (77.77%) |
Understanding treatment | 23 (85.18%) |
Trust in therapy | 26 (96.29%) |
Attention by staff | 21 (77.77%) |
Demand for training and information | 18 (66.66%) |
Overall satisfaction with care provided | 17 (62.96%) |
(b) Negative aspects of the project noted by parents | |
Restricted schedules | 6 (22.22%) |
Poor staff coordination for therapies | 4 (14.81%) |
Staff turnover | 3 (11.11%) |
Specific methodologies and therapies | 3 (11.11%) |
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Pérez-de la Cruz, S.; Ramírez, I. Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study. Int. J. Environ. Res. Public Health 2020, 17, 6409. https://doi.org/10.3390/ijerph17176409
Pérez-de la Cruz S, Ramírez I. Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study. International Journal of Environmental Research and Public Health. 2020; 17(17):6409. https://doi.org/10.3390/ijerph17176409
Chicago/Turabian StylePérez-de la Cruz, Sagrario, and Ivonne Ramírez. 2020. "Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study" International Journal of Environmental Research and Public Health 17, no. 17: 6409. https://doi.org/10.3390/ijerph17176409
APA StylePérez-de la Cruz, S., & Ramírez, I. (2020). Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study. International Journal of Environmental Research and Public Health, 17(17), 6409. https://doi.org/10.3390/ijerph17176409