Blog

The gastrostomy tube I relied on for nutrition impacted my confidence for years. But thanks to Trikafta, I no longer need the G-tube and can now focus on my future with improved health and renewed optimism.

Going to college comes with many changes, and for students with cystic fibrosis, there are additional unique challenges like managing medications and health concerns. While adapting to this transition, I became inspired to advocate for CF awareness and discovered how CF influenced my career path.

I refused to let cystic fibrosis define my limits, using it instead as fuel to embrace life’s challenges and inspire others. Through endurance sports, public speaking, and coaching, I encourage people to pursue their dreams and live boldly. 

When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the CF communities of the U.S. and of England

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to managing my CF needs.

We were heartbroken to learn our newborn needed surgery right after birth and felt unprepared for the cystic fibrosis diagnosis that soon followed. Now, six months and five surgeries later, her strength and resilience turned our fears into profound gratitude and love.