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Findings of mobile based palliative care system: towards formulating a generic framework for measuring QoL

Authors:

Munirul M. Haque,

Ferdaus Kawsar,

Md. Adibuzzaman,

Sheikh I. Ahamed,

Tahmina Ferdousy,

Reza SelimAuthors Info & Claims

PervasiveHealth '14: Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare

Pages 1 - 8

https://doi.org/10.4108/icst.pervasivehealth.2014.254960

Published: 20 May 2014 Publication History

Abstract

Here we present the final analysis result of e-ESAS, a mobile based symptom monitoring and management system for terminally ill breast cancer (BC) patients in rural Bangladesh. These patients need palliative care support whose goal is to meet patients' social, spiritual and psychological needs as well as alleviating pain and other symptoms. But in the context of rural Bangladesh, doctors find it very difficult to control even the most significant symptom 'pain' due to a lack of history of symptom data. In this scenario we have deployed e-ESAS which has been used by 10 patients to submit symptom values from their home for 10 months (Nov '11- Sep '12). Our results show how e-ESAS with motivational videos not only helped the patients to have a 'dignified' life but also helped the doctors to achieve the goals of palliative care. Also the analyzed results are shown in 4 categories to appropriately measure the contribution of e-ESAS in improving the quality of life (QoL) of the patients.

References

[1]

WHO Global Burden of Disease, 2004 http://www.who.int/healthinfo/global_burden_disease/2004_report_update/en/index.html

[2]

Bangladesh Bureau of Statistics. (2008). Ministry of Planning. Statistical Yearbook of Bangladesh, 2007.

[3]

Parkin, D. M., Pisani, P. and Ferlay, J. 1999. Global cancer statistics. CA: A Cancer Journal for Clinicians, 49: 33--64.

[4]

http://ecog.dfci.harvard.edu/general/perf_stat.html

[5]

http://www.who.int/cancer/detection/breastcancer/en/index1.html

[6]

ESAS, www.npcrc.org/usr_doc/adhoc/painsymptom/esas.pdf

[7]

DeRenzi, B., Lesh, N., Parikh, T., Sims, C., Mitchell, M., Maokola, W., Chemba, M., Hamisi, Y., Schellenbe, D., Borriello, G. 2010. e-IMCI: Improving Pediatric Health Care in Low-Income Countries. In Proc. CHI '08, 753--762.

Digital Library

[8]

Ramachandran, D., Canny, J., Das, P. D. and Cutrell, E. 2010. Mobile-izing health workers in rural India. In Proc.of CHI '10, 1889--1898.

Digital Library

[9]

http://en.wikipedia.org/wiki/Cronbach's_alpha

[10]

Byock, I. R. 1995. Patient Refusal of Nutrition and Hydration: Walking the Ever-Finer Line. American Journal Hospice & Palliative Care, pp. 8--13.

[11]

Luk R., Ho M., and Aoki M. P. 2008. Asynchronous remote medical consultation for Ghana. In Proc. CHI '08, 743--752.

Digital Library

[12]

Peters, D., Kohli, M., Mascarenhas, M. 2005. Can computers improve patient care by primary health care workers in India? International J. for Quality Health Care. 18 (6): 435--445.

[13]

Mitchell, M., Lesh, N., Crammer, H., Fraser, H., Haivas, I. Wolf, K. 2009. Improving Care -- Improving Access: The Use of Electronic Decision Support with AIDS patients in South Africa. International Journal of Healthcare Technology and Management. 10:3, 156--168.

[14]

Haque, M., Kawsar, F., Adibuzzaman, M., Ahamed, SI., Love, R., Dowla, R., Roe, D., Hossain, S., Selim, R. 2012. Findings of e-ESAS: A Mobile Based Symptom Monitoring System for Breast Cancer Patients in Rural Bangladesh, In Proc. CHI'12, 899--908.

Digital Library

[15]

http://www.healthnet.org/hnuganda.php

[16]

Adams, W. G., Fuhlbrigge, A. L., Miller, C. W., et al. 2003. TLC-Asthma: an integrated information system for patient-centered monitoring, case management, and point-of-care decision support. In Proceedings of the AMIA Annual Symposium, 1--5.

[17]

Tang, W., Aaronson, L., Forbes, S. 2004. Quality of Life in Hospice Patients with Terminal Illness. Western Journal of Nursing Research. 26(1), 113--128.

[18]

Dubenske, L. L., Chih, M. Y., Dinauer, S., Gustafson, D. H., Cleary, J. F. 2008. Development and implementation of a clinician reporting system for advanced stage cancer: initial lessons learned. J Am Med Inform Assoc. 15(5):679--86.

[19]

Velikova, G., Wright, E. P., Smith, A. B., Cull, A., Gould, A., Forman, D., Perren, T., Stead, M., Brown J., Selby P. J. 1999. Automated collection of quality-of-life data: a comparison of paper and computer touch-screen questionnaires. J Clin Oncol. 17(3):998--1007.

[20]

Brauchli, K., O'Mahony, D., Banach, L., Oberholzer, M. 2005. iPath -- A Telemedicine Platform to Support Health Providers in Low Resource Settings. J. IT in Healthcare. 3, 4 (2005), 227--235.

[21]

DuBenske, L. L., Gustafson, D. H., Shaw, B. R., Cleary, J. F. 2010. Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes. Med Decis Making. 30(6):732--44

[22]

WHOQOL Group. The WHO Quality of Life assessment: Soc. Sci. Med. 1995; 46:1569--1585.

[23]

Das, A. Faxvaag, A., and Svanæs, D. 2011. Interaction design for cancer patients: do we need to take into account the effects of illness and medication? In Proceedings of the CHI '11, 21--24.

Digital Library

[24]

http://www.anapsid.org/cnd/files/sf36.pdf

[25]

Brady, M. J., Cella, D. F., Mo, F., et al. 1997. Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument. J Clin Oncol. 15: 974--986.

[26]

http://www.dyingwell.org/MVQOLI.htm

[27]

Selman, L., Higginson, I., Agupio, G., Dinat, N., Downing, J., Gwyther, L., Mashao, T., Mmoledi, K., Moll, T., Sebuyira, L., Ikin, B., and Harding, R. 2011. Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study. Health Qual Life Outcomes. 9: 21.

[28]

Cherry, J. C., Moffatt, T. P., Rodriguez, C., Dryden, K. 2002. Diabetes disease management program for an indigent population empowered by telemedicine technology. Diabetes Technol & Ther. 4(6):783--791.

[29]

Patra, R., Nedevschi, S., Surana, S., Sheth, A., Subramanian, L., Brewer, E. 2007. WiLDNet: Design and Implementation of High Performance WiFi Based Long Distance Networks. In Proceedings of USENIX NSDI, 87--100.

Digital Library

[30]

Haque, M., Kawsar, F., Adibuzzaman, M., Ahamed, S. I., Love, R., Dowla, R., Roe, D., Salim, R. 2012. Mobile Based health Care Solution for Breast Cancer Patients. In Proceedings of Mobile for Development (M4D), 23--35.

[31]

Kawsar, F., Haque, M., Adibuzzaman, M., Ahamed, S. I., Uddin, M. M.2012. e-ESAS: Improving Quality of Life for Breast Cancer Patients in Developing Countries. In Proceedings of MobileHealth in Conjunction With MobiHoc, 9--14.

Digital Library

[32]

Haque, M., Kawsar, F., Adibuzzaman, M., Ahamed, S. I., Love, R., Hasan, R., Dowla, R., Salim, R. 2014. Barriers for Breast Cancer (BC) Patients in Rural Bangladesh: Design and Deployment of a Mobile based Solution. In Proceedings of AMCIS '14, Aug 7-10, Georgia, USA (To be published)

Cited By

Wolf SFriedrich PHurtienne J(2024)Still Not a Lot of Research? Re-Examining HCI Research on Religion and SpiritualityExtended Abstracts of the CHI Conference on Human Factors in Computing Systems10.1145/3613905.3651058(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3651058
Taylor AWilcock G(2018)A prototype design for a virtual hospice and initial usability studyProceedings of the 32nd International BCS Human Computer Interaction Conference10.14236/ewic/HCI2018.106(1-5)Online publication date: 4-Jul-2018
https://dl.acm.org/doi/10.14236/ewic/HCI2018.106

Index Terms

Findings of mobile based palliative care system: towards formulating a generic framework for measuring QoL
1. Human-centered computing

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Information & Contributors

Information

Published In

cover image ACM Other conferences

PervasiveHealth '14: Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare

May 2014

459 pages

ISBN:9781631900112

General Chair:
Andreas Hein
OFFIS-Institute for IT, Oldenburg, Germany
,
Program Chairs:
Susanne Boll
OFFIS-Institute for IT, Oldenburg, Germany
,
Friedrich Köhler
Charité, Berlin, Germany

In-Cooperation

SIGCHI: ACM Special Interest Group on Computer-Human Interaction

Publisher

ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering)

Brussels, Belgium

Publication History

Published: 20 May 2014

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PervasiveHealth '14

PervasiveHealth '14: 8th International Conference on Pervasive Computing Technologies for Healthcare

May 20 - 23, 2014

Oldenburg, Germany

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Overall Acceptance Rate 55 of 116 submissions, 47%

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Cited By

Wolf SFriedrich PHurtienne J(2024)Still Not a Lot of Research? Re-Examining HCI Research on Religion and SpiritualityExtended Abstracts of the CHI Conference on Human Factors in Computing Systems10.1145/3613905.3651058(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3651058
Taylor AWilcock G(2018)A prototype design for a virtual hospice and initial usability studyProceedings of the 32nd International BCS Human Computer Interaction Conference10.14236/ewic/HCI2018.106(1-5)Online publication date: 4-Jul-2018
https://dl.acm.org/doi/10.14236/ewic/HCI2018.106

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